a role for post-procedure oxygenation?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby vivavie » Wed Jan 12, 2011 9:20 am

Cece, I need help!

I tried to find on DrS tread the post from one of his early patient that restenosed twice after a flight. 1st after treatement in NY, 2nd after a trip to Rome!? If I remember correctly her name was Marie and she was from northern Europe. I can't remember what Dr S answered. I search the Doc index tread without success.

Thanks for your memory and your search talent!
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Postby Cece » Wed Jan 12, 2011 9:26 am

I think her user name was mlrm....

yup, it was. :)

http://www.thisisms.com/ftopicp-141877.html#141877
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Postby vivavie » Wed Jan 12, 2011 9:41 am

Thank you Cece!

Funny it is dated nov 15 and in my foggy brain I thought it happened in August!!!

It is reassuring to read Dr S answer. In my mind I did not want to risk taking another plane :oops:
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Postby Cece » Wed Jan 12, 2011 9:47 am

last spring he talked about the plane ride home too:
http://www.thisisms.com/ftopicp-101798.html#101798
;)
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Postby silverbirch » Wed Jan 12, 2011 12:56 pm

EJC wrote:Did you feel the oxygen treatment helped?

Emma and I are talking this through between us, we've had so many reports of this treatment helping people that it's something we're trying to organise.

Nearest centre to us is a 45 minute drive, which is fine except they only open during working hours and Emma can no longer drive.

EJC lovely to see Emma had the procedure I hope you are all recovered from your hectic schedule in getting the procedure ……………………….

A weird thing to say I can’t feel any benefits but I go in believing that it is doing my MS good in ways that I can’t feel by example delivering oxygen to the brain repairing brain tissue I look upon it in the same way taking the omegas & vitamins....
The chamber was brought to my attention having attended an MS ball one lady reported she had no increase in her MS over the last 12 years she attributed this to the chamber….. (Who knows were all stabbing in the dark) I looked into the chamber and its reports look good I am only 30 minutes from the centre so no real hardship for me.

Patients that do have mobility problems use their taxi card staff at the chamber are very helpful. The centre can also have physiotherapy, massage…. The chamber I attend holds up to 6 people chairs are removed to put in wheelchairs or staff often help those with limited mobility into a chair.
Others have reported that they feel tired and suffer bladder issues when they have missed a dive.

The chamber I attend the paitents have been attending for 10, 15, 20 years but like me can’t really report its benefits Its weird really ……

Patients with Parkinson’s, stroke and amputees also attend the chamber.

Cost of dive £12 ( single) I had to attend every day for 3 weeks then twice weekly and now I just do once weekly.
They have a different dives 15 ft. 23 ft. or 33ft or numbers near to this.
Some suffer ear problems when diving similar to the effects of being on a plane when taking off and landing

Silver........
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Postby EJC » Wed Jan 12, 2011 1:07 pm

Thanks Silver, We are trying to work out a viable way of getting to Guildford to at least try this out.

Quite a few people we met at the Edinburgh Clinic we very vocal about how much the oxygen treatment has helped them.

We are going to pursue this.
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Re: a role for post-procedure oxygenation?

Postby 1eye » Mon Oct 10, 2011 9:21 am

Don't want to be a wet blanket: I think oxygenation is important and slow flow will make lack of oxygen more destructive, faster, so HBOT is a rescue measure and also a legitimate follow-up approach, especially with advancing age. The skin below my knees is getting very slow to heal.

I asked the doctor who prescribed mitoxantrone to me, why I measured with high hemoglobin levels, if I had sleep apnea. He said it was because the body tries to compensate for low oxygen by increasing the iron, and having more oxygen transport available. Is this true? I don't even know if I remembered it right. Anyway using CPAP sounds like a lower-cost approach for people who do have apnea (I don't anymore, because of weight loss). It might help if the problem is worse because of what happens when lying down.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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