Liberated Then Go Backwards then Improve

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Liberated Then Go Backwards then Improve

Postby Salerdog » Mon Jan 10, 2011 2:58 pm

Anyone had the CCSVI procedure and gotten worse than before procedure? Then as time has gone on have you started to see any improvements? (My wife has not restenosed, and does not have any current clots.) Still on Coumadin. Done Sept 24 2010 SPMS still not back to where she was when she got on the table. Before transfers, walker walking, exercise bike, turning in bed. Now needs help with all transfers, no walking, can not get on bike,can not feel legs to turn in bed.
Bob the caregiver.
Last edited by Salerdog on Tue Jan 11, 2011 1:52 pm, edited 1 time in total.
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Postby broomdancer » Mon Jan 10, 2011 4:00 pm

This would interest me also. My husband isnot worse than pre-treatment but he has lost some of his gains. A Doppler tech told us that Dr Zamboni told her that it could take 6-18 months to see the full impact of the treatment. Although I have yet to learn of anyone this has happened too but we are still in the early stages, so here's hoping and praying...
Cheers Diana
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Postby javabean » Mon Jan 10, 2011 9:29 pm

I had a few days of improvements about a week after the treatment and then back to whrwe I was if not a little worse. I had my procedure one month ago.
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