Almost instant improvement....

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Almost instant improvement....

Postby tikrtokr » Wed Jan 12, 2011 1:28 pm

I had the Doppler scan last Wednesday, and the procedure Friday. After four hours in recovery, I was putting my pants back on and noticed that my balance was back...drastically improved since that morning. I wasn't expecting any immediate improvements.

As I put pants on every day, I've been very well aware of my balance issues. I either have to sit down, or hold onto the bed (or something sturdy) while putting them on. Even then, it's rather difficult and sometimes scary (I hate falling).

I haven't been able to stand on one foot for several years, but now, post procedure, I can.

I surely hope this is a permanent fix!
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Postby CCSVIhusband » Wed Jan 12, 2011 1:40 pm

Yes, that was one of the many symptoms a lot of people talk about and they notice improvement in right away.

What did you have done during the procedure? What ballooned, where, stents ... the usual questions.

Congrats!
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Postby EJC » Wed Jan 12, 2011 1:44 pm

What did you have "fixed"?

Jugs, azygos or both?

It's great to have any form of instant result and we'd be delighted if you'd like to share more with us.
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Postby tikrtokr » Wed Jan 12, 2011 2:12 pm

Seriously...it's just all "in my head" (and my neck)!

I had 60% stenosis in my left jug...50% in my right jug. Had a venogram and balloon procedure.

In addition to the improved balance, I have improved energy (yes, my wife agrees), and my vision is less hazy.
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Postby EJC » Wed Jan 12, 2011 2:33 pm

Outstanding.

As you notice things, make a note of them, then next time you're on update us.
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Postby tikrtokr » Wed Jan 19, 2011 1:20 pm

Improvements so far:

-Balance continues to be significantly better

-Cog-Fog significantly better

-Vision is better (especially noticeable at night)

-Numbness is better

-Haven't had the tingling in spine since procedure (was experiencing this daily)


Two days ago, I went for a 5.5 mile bike ride on a road bike. I felt so good afterward that I got out my mountain bike and rode through some very challenging terrain for an hour and a half. Walked 2.5 miles today....

I'm really addicted to feeling better!
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Postby Luvsadonut » Wed Jan 19, 2011 2:42 pm

fantastic news, you said that you walked for 2.5 miles and had a bike ride for 5.5 miles, how far could you achieve prior to the op?
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Postby tikrtokr » Wed Jan 19, 2011 3:35 pm

Walking prior to procedure: struggled to make a mile...wiped out afterwards

Biking prior to procedure: haven't been able to road bike (due to lack of balance) for several years. Have sporadically been able to ride mountain bike on smooth. level surfaces. Of course, with a mountain bike, you're seated rather upright. With a road bike it's more difficult because you're leaning forward over the handlebars.....


The biggest issues I'm having right now (by far) are the side effects of Avonex.
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Postby bluesky63 » Thu Jan 20, 2011 7:05 am

I wrote about this in someone else's thread, but I also had balance improvement -- however, it was "head" balance stuff, not core trunk balance, if you know what I mean. So vertigo-related stuff improved -- I was able to look left and right without feeling dizzy-sick, for instance. But if I lean over too far while sitting I will still . . . slowly . . . go . . . down. :-) I guess that's strength, not balance?

Congratulations. I am so happy for you. Stay hydrated! :-)
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