This Is MS Multiple Sclerosis Community: Knowledge & Support

hi, i'd like to hear from anyone that got ccsvi done in bulgaria about june and how are you getting on since? i got it done then, my walking hasnt really improved though i do feel better, not as tired etc. has anyone gone back the 2nd time, where veins still opne? anyone redone? stented??

John

CCSVI on June 3. First check up on Sept 7 also in bg. Everything was great. Up to november 1, relapse. Went back again in December. Veins wide open. More than ever before. Another relapse right now.
Not tired though.
You?

Had it done May 31st. Still doing much better than I was pre-procedure. I still have some MS limitations, but I still believe treatment gave me my life back.

Have not used my cane once since the treatment. Used to crawl up stairs and can now RUN up them! Energy levels dramatically improved. List goes on and on....

Ultrasound a few months ago (in Canada) shows stent still patent.

No relapses, except some mild neuro complications from influenza and a cold. Once the underlying infection left, so did the issues. The issues were way less than they were for underlying infections before treatment.

_________________
CCSVI procedure May 31, 2010
RRMS - Official diagnosis January 2009
MS symptoms since at least 2000 (EBV trigger 98?)
75 - 80% Resistant Stenosis in Left Jugular - Stent
Tokuda Hospital, Bulgaria (Dr. Petrov)
Immediate and substantial results!!

Here is the very long thread of Bulgaria, there might be follow-up updates in there:
http://www.thisisms.com/ftopict-9625-bulgaria.html