help, i need a treating physician in michigan

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
drsclafani
Family Elder
Posts: 3182
Joined: Fri Mar 12, 2010 3:00 pm
Location: Brooklyn, New York
Contact:

help, i need a treating physician in michigan

Post by drsclafani »

I have a patient who does not have funding to be treated in new york; he must be treated in michigan.

are there any physicians in michigan treating ccsvi

you can pm me if necessary.
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Post by Cece »

There are threads every few weeks complaining about a lack of treating IRs in Michigan. One of your patients being treated later this month is considering travelling from MI to MN for the follow-ups. (So if you find one in MI, it might help her too.)

Girlgeek33, you'd know if anyone does....
Or Lyon, perhaps you know?

David1949, did anything ever come of that Novi, MI possibility that hadn't opened yet?

I checked our old Hubbard Registry map, when they listed all the places where an IR had inquired about being part of the registry, it included:
Warren, MI
Grand Rapids, MI
Ann Arbor, MI
Novi, MI
Did anyone request of the Hubbards for the contact info of these places? (Side note: this was how a poster here got Dr. Cumming's name, a few months ago! Good times.)
David1949
Family Elder
Posts: 927
Joined: Mon Aug 23, 2010 2:00 pm
Contact:

Post by David1949 »

If you find one please let me know. I've contacted;
Beaumont hospital
Oakwood hospital
Henry Ford Hospital
Crittenden Hospital
University of Michigan med school
Wayne state med school ( where Dr. Haacke works)
Michigan Cardiovascular institute.
No dice on all of them.

There are two on the Hubbard Foundation's map but both are "in the process" and are not providing treatment yet. I'm not holding my breath for either of them.

My guess is that there is a state Institutional Review Board which has put the nix on it.
Lyon
Family Elder
Posts: 6071
Joined: Wed May 03, 2006 2:00 pm
Contact:

Post by Lyon »

.
Last edited by Lyon on Sun Nov 20, 2011 3:42 pm, edited 1 time in total.
User avatar
anamishguy
Family Member
Posts: 48
Joined: Fri Feb 19, 2010 3:00 pm

Post by anamishguy »

Is AAC in Chicago too far?
User avatar
strongshoulder
Newbie
Posts: 8
Joined: Wed Jan 12, 2011 3:00 pm
Location: Western PA
Contact:

Post by strongshoulder »

Interesting. I never would have guessed the possibility of multiple doctors lurking.

So why not? Any treating physicians in or around Western Pa? Feel free to PM me.
User avatar
formyruca
Family Member
Posts: 29
Joined: Wed Aug 04, 2010 2:00 pm

Post by formyruca »

I visited the Novi Vein office Friday and spoke with the receptionist/office manager. She is not sure why the Hubbard Foundation has them as yellow, as they have not done anything yet. The Dr is currently busy opening 2 other locations. Interestingly, the receptionist told me one of the employees was recently diagnosed with MS.

Perhaps a call from a reputable doc would spur Dr. Miller to pick up the pace?

Jeffrey H. Miller MD
248-344-9110

I also spoke with another Dr. a couple of months ago that showed interest, but has not contacted me since our initial conversation.

Paolo G. Marciano, MD, PhD - (313) 593-7292
Dearborn, MI - Oakwood Hospital
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Post by Cece »

This was just posted on the FAcebook site:
Bhakti Deepali Shankara:

David Williams at the University of Michigan- I was his first patient and now he wants to treat more AND start a study
http://www2.med.umich.edu/healthcenters ... l_id=15361

contact info here:
http://doctor-finder.sirweb.org/details.cfm?xid=150719
User avatar
cheerleader
Family Elder
Posts: 5361
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Post by cheerleader »

Bhakti has been posting today---she is very happy about her treatment with Dr. Williams as his first patient, and was looking to support him.
Cece, you are FAST!
Apparently, Dr. David Williams is collecting information and interested in conducting a study.

Here is his University of Michigan profile--
link

hope this helps, Dr. S--
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
newlywed4ever
Family Elder
Posts: 255
Joined: Thu Apr 17, 2008 2:00 pm
Location: Michigan
Contact:

Post by newlywed4ever »

Advanced Radiology in Grand Rapids initially showed interest but seem to have backed off in the past 3 mos.

Interventional & Vascular Institute of Northern Michigan in Marquette "may be ready to provide followup by June 2011"...what the heck? - all I asked for was a simple/typical ultrasound!

There is a female vascular surgeon in Grand Rapids who did meet with my daughter and is "extremely interested" (can't remember her name right now).
David1949
Family Elder
Posts: 927
Joined: Mon Aug 23, 2010 2:00 pm
Contact:

Post by David1949 »

formyruca wrote:I visited the Novi Vein office Friday and spoke with the receptionist/office manager. She is not sure why the Hubbard Foundation has them as yellow, as they have not done anything yet. The Dr is currently busy opening 2 other locations. Interestingly, the receptionist told me one of the employees was recently diagnosed with MS.

Perhaps a call from a reputable doc would spur Dr. Miller to pick up the pace?

Jeffrey H. Miller MD
248-344-9110

I also spoke with another Dr. a couple of months ago that showed interest, but has not contacted me since our initial conversation.

Paolo G. Marciano, MD, PhD - (313) 593-7292
Dearborn, MI - Oakwood Hospital
The Novi site has gone back to blue on the Hubbard Map.
User avatar
elliberato
Family Member
Posts: 82
Joined: Wed Aug 04, 2010 2:00 pm
Contact:

Post by elliberato »

Cece wrote:This was just posted on the FAcebook site:
Bhakti Deepali Shankara:

David Williams at the University of Michigan- I was his first patient and now he wants to treat more AND start a study
http://www2.med.umich.edu/healthcenters ... l_id=15361

contact info here:
http://doctor-finder.sirweb.org/details.cfm?xid=150719
GOT TO SAY I AM SHOCKED! I AM A PATIENT AT THE U OF M MS CENTER AND THE DOCS THERE ARE SLIGHTLY INTRIGUED...BUT DOING PROCEDURES AT THE U? SHOCKING...THEY ARE SO TIGHT THEIR CORNERS SQUEAK.
User avatar
elliberato
Family Member
Posts: 82
Joined: Wed Aug 04, 2010 2:00 pm
Contact:

Re: help, i need a treating physician in michigan

Post by elliberato »

drsclafani wrote:I have a patient who does not have funding to be treated in new york; he must be treated in michigan.

are there any physicians in michigan treating ccsvi

you can pm me if necessary.
FOR WHAT YOU PAY IN GAS AROUND HERE YOU COULD GET A CHEAP SEAT TO LAGUARDIA....
David1949
Family Elder
Posts: 927
Joined: Mon Aug 23, 2010 2:00 pm
Contact:

Post by David1949 »

cheerleader wrote:Bhakti has been posting today---she is very happy about her treatment with Dr. Williams as his first patient, and was looking to support him.
Cece, you are FAST!
Apparently, Dr. David Williams is collecting information and interested in conducting a study.

Here is his University of Michigan profile--
link

hope this helps, Dr. S--
cheer
I called Dr. Williams office two days ago. No reply yet!
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Post by Cece »

Did you talk to anyone, David, or just leave a message?

His email is listed on the University of Michigan site too:
http://surgery.med.umich.edu/vascular/p ... dwms.shtml
Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”