This Is MS Multiple Sclerosis Community: Knowledge & Support

I have a patient who does not have funding to be treated in new york; he must be treated in michigan.

are there any physicians in michigan treating ccsvi

you can pm me if necessary.

There are threads every few weeks complaining about a lack of treating IRs in Michigan. One of your patients being treated later this month is considering travelling from MI to MN for the follow-ups. (So if you find one in MI, it might help her too.)

Girlgeek33, you'd know if anyone does....
Or Lyon, perhaps you know?

David1949, did anything ever come of that Novi, MI possibility that hadn't opened yet?

I checked our old Hubbard Registry map, when they listed all the places where an IR had inquired about being part of the registry, it included:
Warren, MI
Grand Rapids, MI
Ann Arbor, MI
Novi, MI
Did anyone request of the Hubbards for the contact info of these places? (Side note: this was how a poster here got Dr. Cumming's name, a few months ago! Good times.)

If you find one please let me know. I've contacted;
Beaumont hospital
Oakwood hospital
Henry Ford Hospital
Crittenden Hospital
University of Michigan med school
Wayne state med school ( where Dr. Haacke works)
Michigan Cardiovascular institute.
No dice on all of them.

There are two on the Hubbard Foundation's map but both are "in the process" and are not providing treatment yet. I'm not holding my breath for either of them.

My guess is that there is a state Institutional Review Board which has put the nix on it.

.

Is AAC in Chicago too far?

Interesting. I never would have guessed the possibility of multiple doctors lurking.

So why not? Any treating physicians in or around Western Pa? Feel free to PM me.

I visited the Novi Vein office Friday and spoke with the receptionist/office manager. She is not sure why the Hubbard Foundation has them as yellow, as they have not done anything yet. The Dr is currently busy opening 2 other locations. Interestingly, the receptionist told me one of the employees was recently diagnosed with MS.

Perhaps a call from a reputable doc would spur Dr. Miller to pick up the pace?

Jeffrey H. Miller MD
248-344-9110

I also spoke with another Dr. a couple of months ago that showed interest, but has not contacted me since our initial conversation.

Paolo G. Marciano, MD, PhD - (313) 593-7292
Dearborn, MI - Oakwood Hospital

This was just posted on the FAcebook site:


http://www2.med.umich.edu/healthcenters ... l_id=15361

contact info here:
http://doctor-finder.sirweb.org/details.cfm?xid=150719

Bhakti has been posting today---she is very happy about her treatment with Dr. Williams as his first patient, and was looking to support him.
Cece, you are FAST!
Apparently, Dr. David Williams is collecting information and interested in conducting a study.

Here is his University of Michigan profile--
link

hope this helps, Dr. S--
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Advanced Radiology in Grand Rapids initially showed interest but seem to have backed off in the past 3 mos.

Interventional & Vascular Institute of Northern Michigan in Marquette "may be ready to provide followup by June 2011"...what the heck? - all I asked for was a simple/typical ultrasound!

There is a female vascular surgeon in Grand Rapids who did meet with my daughter and is "extremely interested" (can't remember her name right now).

The Novi site has gone back to blue on the Hubbard Map.

GOT TO SAY I AM SHOCKED! I AM A PATIENT AT THE U OF M MS CENTER AND THE DOCS THERE ARE SLIGHTLY INTRIGUED...BUT DOING PROCEDURES AT THE U? SHOCKING...THEY ARE SO TIGHT THEIR CORNERS SQUEAK.

FOR WHAT YOU PAY IN GAS AROUND HERE YOU COULD GET A CHEAP SEAT TO LAGUARDIA....

I called Dr. Williams office two days ago. No reply yet!

Did you talk to anyone, David, or just leave a message?

His email is listed on the University of Michigan site too:
http://surgery.med.umich.edu/vascular/p ... dwms.shtml