Physical therapy after ccsvi treatment?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Physical therapy after ccsvi treatment?

Postby Crystwo » Mon Jan 17, 2011 8:11 am

I start physical therapy today...anyone else had PT after their procedure? I go 4 days a week, 2 in the pool and 2 in their facility. Doc said that balance is very much a weight bearing and a brain activity, so those of us pretty confined to a wheelchair, our brains forget quickly (with so much iron clogging up the works, I guess it's not surprising!). He had never heard of ccsvi put said that it made sence to him (why can't my neuro admit to that?) and will tell his other MS patients about it. I am excited to see what he can do for me.

So my question...anyone else have pt afterwards? How is it going? Did it help speed reovery along?
User avatar
Crystwo
Getting to Know You...
 
Posts: 20
Joined: Sun Jan 02, 2011 3:00 pm

Advertisement

Postby EJC » Mon Jan 17, 2011 8:44 am

No but it's something we're going to look into.

We have decided to give it at least 6-8 weeks post procedure before getting stuck in to anything particularly strenuous but I have no doubt it will help Emma.

How long did you leave it before you started?
User avatar
EJC
Family Elder
 
Posts: 616
Joined: Tue Apr 20, 2010 2:00 pm
Location: Surrey, UK

Postby Crystwo » Mon Jan 17, 2011 10:58 am

I had the angioplasty 18 days ago. Dr. Arata said to start PT right away though.

I just got back from the first session.

Interesting excersises. Lay on floor; legs bent and tighten butt and lift off of ground; do 10 times. 2. Lay on ground; legs bent; tighten butt and tummy; pull legs to chest; do 10 times. 3. Lay on ground; one leg bent, one leg straight; tighten hamstring of straight leg and raise it parallel in height to bend leg...10 times. Do all 3 of these in a controlled manner (for me I can control up but then coming down the legs want to quiver or spas or flop...not pretty.
4. Do controlled stand and sits without the aid of anything (10 times). 5. Stand at my walker and stand on right leg for 30 seconds paying attention to all the muscles needed to do this (don't use my toes to keep my balance rather touch the walker when needed)4 on each leg. Do all of these twice a day or more if it doens't tire me out too much. Always stop when you need too.

If your insurance covers PT, go ahead and start. Nothing but good could come out of it. I'm excited. :D
User avatar
Crystwo
Getting to Know You...
 
Posts: 20
Joined: Sun Jan 02, 2011 3:00 pm

Postby EJC » Mon Jan 17, 2011 12:55 pm

It's that sort of programme we're looking for, Emma isn't wheelchair bound but she was starting to get quite close.

I'll make some enquiries this week.
User avatar
EJC
Family Elder
 
Posts: 616
Joined: Tue Apr 20, 2010 2:00 pm
Location: Surrey, UK

Postby lucky125 » Mon Jan 17, 2011 2:36 pm

I had to wait a month to begin PT after my procedure because I couldn't get an appointment any sooner.

I started going twice a week. I am working on strengthening my quads, hip muscles, and abs. I am also working on balance.

The best part is my physical stamina! I can push myself to work really hard, and my nerves don't stop my muscles from cooperating. I also recover very quickly from all of the exertion.

Please read about my PT experience on my blog www.myliberationadventure.blogspot.com. Check out my Dec 31st post: repair, recover, rebuild.

Good luck!
Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com
User avatar
lucky125
Family Elder
 
Posts: 173
Joined: Wed Dec 02, 2009 3:00 pm
Location: USA

Postby thornyrose76 » Mon Jan 17, 2011 5:54 pm

At 34 I am wheelchair bound, should I even bother after the venoplasty , I reaelly want to? But who's going to listen to me? I am not paralyzed...but I can't m ove my legs other than a few lifts off the edge io f the bed in the morning ..I have a lot of spacticity , and they twitch a lot too.( Sorry don't mean to hijack the the thread).
User avatar
thornyrose76
Family Elder
 
Posts: 462
Joined: Mon Nov 23, 2009 3:00 pm

Postby lucky125 » Mon Jan 17, 2011 6:07 pm

thornyrose76 wrote:At 34 I am wheelchair bound, should I even bother after the venoplasty , I reaelly want to? But who's going to listen to me? I am not paralyzed...but I can't m ove my legs other than a few lifts off the edge io f the bed in the morning ..I have a lot of spacticity , and they twitch a lot too.( Sorry don't mean to hijack the the thread).


Assuming you can afford PT, please give it a try. My spasticity improved after my procedures, and I've had it for at least 13 years. You'll never know what you can do unless you try. The PT will probably have strategies to help you with many things you never even thought of. They are so smart. Give it a chance!
Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com
User avatar
lucky125
Family Elder
 
Posts: 173
Joined: Wed Dec 02, 2009 3:00 pm
Location: USA

Postby msgator » Mon Jan 17, 2011 6:09 pm

I had the proceedure Oct. 15th and started physical therapy the week before Christmas. I have balance problems and an uneven gait, and widened base, but did not use any assissted devices for walking.

The four weeks I have been going to PT have been very helpful. My balance is improving, and i am getting stronger and if nothing else I have become very aware of where my weaknesses are because I have been compensating for so long.

Good luck. I really don't think it can hurt.

Ann
always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
User avatar
msgator
Family Elder
 
Posts: 103
Joined: Wed Mar 17, 2010 3:00 pm
Location: USA

ccsvi

Postby blossom » Mon Jan 17, 2011 8:52 pm

i am checking out places that offer electrical stimulation therapy in their facility. dr. wahls who has ms and got herself out of the wheelchair by diet and electrical stimulation recomends it. as i understand from what i've tried to check out the one referred to as a russian electrical stimulator is the best. those of us that are very limited have less options so why not if possible try it? you can also purchase them but of course you have to have someone available to help which is not a reality for some of us.

just putting the thought out there.
User avatar
blossom
Family Elder
 
Posts: 1377
Joined: Thu Dec 03, 2009 3:00 pm
Location: south western pa.

Postby Lelo » Tue Jan 18, 2011 2:27 am

Hi I have not been on the forum for quite a while.

This is so important, meen the pt. I did the procedure in March 2010 and for me the excercises is so important to continue my recovery. I also need to tell you all that my big improvement, witch I felt was big started just 6 months post procedure.

So have patience and continue to struggle with your excercises.
User avatar
Lelo
Family Member
 
Posts: 46
Joined: Thu Nov 19, 2009 3:00 pm
Location: Sweden

Postby Crystwo » Tue Jan 18, 2011 8:57 am

Yes, everyone do pt if you are finacially able!! Today, just one day after my 1st session, I am more aware of the muscles used to really balance (not just my toes!). I was able to stand in the shower, wash my hair and tip my head back (!) and not lose my balance because I knew to focus on gluts, hamstings, calves etc. These muscles 1. never use to work or 2. I just wasn't aware that I needed to focus on them! I think, like many of us, just taking a shower was the focus and not how we did it. :cry:

EVERYONE go to PT no matter what your current condition is. The therapist will be able to help you with something. AND be sure to tell him about the CCSIV!
Crys
User avatar
Crystwo
Getting to Know You...
 
Posts: 20
Joined: Sun Jan 02, 2011 3:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service