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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

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Postby LR1234 » Mon Jan 17, 2011 1:54 pm

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Last edited by LR1234 on Tue Mar 06, 2012 1:12 am, edited 1 time in total.
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Postby L » Mon Jan 17, 2011 3:28 pm

Well, I assume it is still there. Hopefully I will know after Wednesday morning when I see a vascular doctor.

I had no blood flow in my left jugular vein before the procedure, because of a dysfunctional valve, and I have none after (I presume) thanks to this thrombosis.

The area aches a little, to answer your other question.

I was on clexane and plavix, my neurologist took me off the clexane but continued the plavex.

What would your answers be?
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Postby L » Mon Jan 17, 2011 3:41 pm

Well, hopefully I'll have news on Wednesday. Good luck with it not recurring. Have you been told that this is a possibility?
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Postby mavis » Mon Jan 17, 2011 3:54 pm

For those who have had the unfortunate complication of a clot in their jugular

How do you feel MS wise?

--Terrible which just shows CCSVI is real. After my jugular stenosed again due to thrombosis, my legs are much heavier and weaker, I have no energy, and I have increased numbness all over.

How does the clot feel in you neck? (are you aware of it)?

-- Not really. Sometimes I feel a bit of stretching, or pulling in the area, but no pain.

Is your MS worse or better than before the complication and procedure?

-- Worse than before the complication, better than before the procedure.

Are you on blood thinners to stop the clot growing? If so which ones?

-- First Heparin, now Coumadin.
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