another person with MS passes away waiting for treatment

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

another person with MS passes away waiting for treatment

Postby Cece » Mon Jan 17, 2011 2:30 pm

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Postby soapdiva884 » Mon Jan 17, 2011 10:22 pm

This link requires a login and password, can't read it 8O
Boyfriend dx'd 6-6-06!!! RRMS............CCSVI procedure done on Nov. 13, 2010 and March 7, 2011 by Dr. Sclafani!
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Postby Cece » Mon Jan 17, 2011 11:02 pm

Sorry, that was on CCSVI Locator. Here it is on Facebook.
http://www.facebook.com/notes/ccsvi-in- ... 5118649919

It is upsetting. My own stenoses are measureable and image-able and treatable. Hers would have been too.
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Postby frodo » Tue Jan 18, 2011 5:12 am

Cece wrote:Sorry, that was on CCSVI Locator. Here it is on Facebook.
http://www.facebook.com/notes/ccsvi-in- ... 5118649919

It is upsetting. My own stenoses are measureable and image-able and treatable. Hers would have been too.


Could be considered a denial of medical attention if she is found to have any blocked vein? At this moment we don't know the consequences of blocked veins and therefore it is irresponsible to leave them unfixed.
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Postby erinc14 » Tue Jan 18, 2011 7:35 am

i've always felt this denial of treatment in canada is criminal . are any lawyers looking into this ?
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shame on us.

Postby 1eye » Tue Jan 18, 2011 10:18 am

My condolences to family and friends. Our government (?) is afraid, or cannot, or do not want to stand up to the neurology and drug lobbies. 'In a democracy the people get the government they deserve.' [Hunter S. Thompson] I don't think we deserve this. Perhaps it is not a democracy any more. Are not all CCSVI/'MS' victims waiting for treatment? For good government? For democracy? One of us dies every day in this country alone. 400 in 2010. Many more may die before this is resolved. History is happening now. Canada and a few notable people will go down in history's book of shame. Support Kirsty Duncan.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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