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Writing to GP

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Talltree11

Post subject: Writing to GP

Posted: Tue Jan 18, 2011 7:08 am

Getting to Know You...

Joined: Wed Nov 25, 2009 4:00 pm
Posts: 10
Location: Kent

Hi All, I want to tell me GP about CCSVI and my intention to have the treatment. Anyone wriiten to GP and have a template letter... I don't know where to start...there's so much to say and I want to come across balanced> Help anytone. K

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EJC

Post subject:

Posted: Tue Jan 18, 2011 2:01 pm

Family Elder

Joined: Tue Apr 20, 2010 3:00 pm
Posts: 581
Location: Surrey, UK

I printed off as much information as I could find (published medical journal type stuff) made and appointment and went to talk to him.

He'd never heard of the procedure, but now we're 6 months on and Emma had the procedure in Decemeber.

We visited him again last week, he'd read as much information as he could, has asked to see Emma monthly to monitor her and actually refers to her as "our guinea pig". He's very open minded and quite supportive.

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leetz

Post subject: hi :))

Posted: Tue Jan 18, 2011 4:41 pm

Family Elder

Joined: Tue Oct 06, 2009 3:00 pm
Posts: 287

I did the same thing...print off as much information as you can!!! Keep up the good fight and God Bless !

_________________
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...

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HappyPoet

Post subject:

Posted: Tue Jan 18, 2011 9:05 pm

Family Elder

Joined: Thu Jul 09, 2009 3:00 pm
Posts: 1281

This link from the CCSVI Alliance website will help guide you through this process:
http://ccsvialliance.org/index.php?opti ... &Itemid=82

Best of luck!

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Talltree11

Post subject:

Posted: Mon Jan 24, 2011 7:34 am

Getting to Know You...

Joined: Wed Nov 25, 2009 4:00 pm
Posts: 10
Location: Kent

Thnak you for all your cooments. (off to Bulgaria in the morning!)
Kx

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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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