Writing to GP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Writing to GP

Postby Talltree11 » Tue Jan 18, 2011 7:08 am

Hi All, I want to tell me GP about CCSVI and my intention to have the treatment. Anyone wriiten to GP and have a template letter... I don't know where to start...there's so much to say and I want to come across balanced> Help anytone. K
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Postby EJC » Tue Jan 18, 2011 2:01 pm

I printed off as much information as I could find (published medical journal type stuff) made and appointment and went to talk to him.

He'd never heard of the procedure, but now we're 6 months on and Emma had the procedure in Decemeber.

We visited him again last week, he'd read as much information as he could, has asked to see Emma monthly to monitor her and actually refers to her as "our guinea pig". He's very open minded and quite supportive.
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hi :))

Postby leetz » Tue Jan 18, 2011 4:41 pm

I did the same thing...print off as much information as you can!!! Keep up the good fight and God Bless !
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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Postby HappyPoet » Tue Jan 18, 2011 9:05 pm

This link from the CCSVI Alliance website will help guide you through this process:
http://ccsvialliance.org/index.php?opti ... &Itemid=82

Best of luck!
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Postby Talltree11 » Mon Jan 24, 2011 7:34 am

Thnak you for all your cooments. (off to Bulgaria in the morning!)
Kx
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