CCSVI and Hypothyroidism (Underactive thyroid)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI and Hypothyroidism (Underactive thyroid)

Postby dc10 » Thu Jan 20, 2011 3:29 pm

i had balloon angioplasty in December of both Jugular veins and the Azygos vein.

But in March 2010 had my bloods taken for Full Blood Count, and Liver Function as i had to take antibiotics for a few weeks.

At the same time as these tests i requested a Thyroid test (TSH + Free T4) as read its worth checking.

So back in March i showed an under active Thyroid = Hypothyroidism
As i was following the CCSVI route i ignored the thyroid as although my TSH showed under activity, my T4 levels were in range so thought nothing was wrong.

But now im liberated ive looked into Hypothyroidism more and i have many of the symptoms which i just presumed were 'MS' ones:

loss of libido
constipation
dry brittle hair - only been like this since taking abx last year
and has remained
twitching muscles
decreased sweating
intolerance to cold/heat
over sensitive hearing
dry skin
difficulty with balance

So i just wanted others opinions on the connection of CCSVI and Hypothyroidism, is this common?

I have had my bloods sent off again for a full thyroid screen so i will start 'Levothyroxine' if the results come back showing an under active thyroid agian,

Can the Levothyroxine be harmful to my venous system/blood flow or nervous system damage?
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Postby dc10 » Fri Jan 21, 2011 2:23 pm

any thoughts on this?
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Postby Cece » Fri Jan 21, 2011 2:29 pm

Ever since Dr. Sclafani mentioned that collaterals of the jugulars may flow directly through the thyroid, I've been waiting for more to come out on the CCSVI-thyroid connection.
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Postby marcstck » Fri Jan 21, 2011 5:12 pm

I don't know about a CCSVI-Hypothyroid connection, but there is an established MS-Hypothyroid connection. A large percentage of MSers suffer from Hypothyroid, often from Hashimoto's thyroiditis, an autoimmune condition that attacks the thyroid.

I have Hashimoto's, which is detected by the presence of anti-thyroid antibodies in the blood.

Hypothyroid is actually fairly common, especially in women. If blood tests indicate that your thyroid levels are below normal, you should see a qualified endocrinologist for proper treatment.
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thyroid

Postby he1en » Fri Jan 28, 2011 8:38 am

I had the ccsvi treatment 2 weeks ago. When I had the doppler he ran it over my thyroid as well. I have been told to get my thyroid levels checked. Blood test next week
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Postby hope410 » Fri Jan 28, 2011 9:05 am

Hmmm... I have almost all of those symptoms... except no weight gain. Is that necessary? I've weighed the same weight for 20 years (107 pounds).

I've had normal thyroid tests. But do you think I need the "free T4" or some other one to know for sure? I don't think I've had that one, just a general test.
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Re: CCSVI and Hypothyroidism (Underactive thyroid)

Postby bigfoot14 » Fri Jan 28, 2011 9:28 am

dc10 wrote:But now im liberated ive looked into Hypothyroidism more and i have many of the symptoms which i just presumed were 'MS' ones:

loss of libido
constipation
dry brittle hair - only been like this since taking abx last year
and has remained
twitching muscles
decreased sweating
intolerance to cold/heat
over sensitive hearing
dry skin
difficulty with balance

So i just wanted others opinions on the connection of CCSVI and Hypothyroidism, is this common?


My wife has had most of the above symptoms for the past 20 years, but until recently she had a over active (hyper) thyroid...in the last two years it has switched to the under active (hypo) .....none of the symptoms changed, except for the weight gain (and she's not happy about that at all)

My wife is scheduled for the CCSVI procedure on Feb 23, so we'll see what, if anything, changes
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My Thyroid changed after CCSVI

Postby PatGF » Tue Apr 19, 2011 2:51 pm

My ultrasound the day after my venoplasty did not show any thyroid abnormality. My 3 month follow-up did. I don't have my blood results yet and will have another ultrasound next week. I'm sure that I was sub-clinical for thyroid dysfunction and the procedure may have caused some inflammation. My mother had Graves Disease so I am not surprised. The symptoms (lack of energy) improved for a month after the procedure and slowly I am having more fatigue. At least it isn't a case of restenosis and that this condition is treatable.
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Postby CD » Tue Apr 19, 2011 4:02 pm

I think I have a little of everything over the years, in many body parts. 8O

On my first CCSVI US, it was mentioned that I have a small goiter, and many nodules in the Thyroid. I said, "Yes I know." I get tested often with blood work, take Synthroid for low Thyroid function (Hypo-Thyroid) and once every year I get my Thyroid US. I am due in May again for the US, the blood work a bit sooner.

I have to say, I asked my IR who has preformed my Thyroid biopsies on my dominant nodules a few times, about the Thyroid draining into the Jugulars. He said, yes.

He is not the same IR who did my CCSVI procedure. That was Dr. Gary Siskin. My Thyroid IR doctor had Dr. Gary Siskin as his professor and mentor, they are still good friends too.

To get to the point, since I had the CCSVI procedure, my Thyroid does not hurt or look or feel swollen. I had to give away all clothing tops that were not V-neck shaped. They hurt my Thyroid, scarves too.

Now my Thyroid does not hurt, I find that interesting. Also I had low blood sugar, hypoglycemic. I don't get that anymore. Seems more normal now. I self-test with monitor.

Still until the end of May's testing, Thryoid US and full blood work up, I will not know for sure it these corrections are from the CCSVI procedure.

My Endocrinologist and Neurologist both know I was treated for CCSVI and seem okay with my decision. :)
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Postby jacksonsmommy » Tue Apr 19, 2011 6:22 pm

I'm the only one in my family with MS (no thyroid probs for me), but my whole mother's side is absolutely riddled with thyroid problems. Coincidence? I suspect that my mother (low thyroid, no MS) does actually have CCSVI because of her very cold feet....
CCSVI procedure May 31, 2010
RRMS - Official diagnosis January 2009
MS symptoms since at least 2000 (EBV trigger 98?)
75 - 80% Resistant Stenosis in Left Jugular - Stent
Tokuda Hospital, Bulgaria (Dr. Petrov)
Immediate and substantial results!!
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Postby CenterOfGravity » Wed Apr 20, 2011 7:10 am

I discovered I was hypothyroid while trying to get pregnant, turned out blood tests from 10 years earlier showed it too, but weren't interpreted that way by the GP doctors. For many years I thought symptoms like those listed in the first post were MS related, and turned out many were thyroid. After a few incidents, what I also found was I don't convert T4 to T3 (the active thyroid hormone) properly, and with help from nice doctors, I added cytomel (T3) to my regimen. That was life changing. I went from needing 8-10 hours of sleep to 7-8, but able to function on 5-6 if need be (prior to any thyroid meds, less than 8 hours of sleep for more than 1 night in a row and I couldn't get out of bed). The relationship of hypothyroid to MS I don't know, but I definitely have thyroid antibodies (hashimotos) and I wish it was detected earlier, because the body needs that delicate balance of hormones to function at its best.
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Postby CindyCB » Wed Apr 20, 2011 3:15 pm

I have an underactive thyroid caused by Hashimoto's and also found out this year that I have CCSVI.

I do not have an MS diagnosis (last MRIs were a year ago though, maybe things have changed) but I have a neurological condition that's been baffling doctors for a while now.

I believe it's all due to CCSVI, the right side of my body feels numb, I suffer with terrible brain fog, migraines and fatigue too. Tried different forms of thyroid meds, even with T4 & T3 levels looking good I feel awful but my body and head hair grow back and I look less puffy.

Recently my levels dipped again but when I try to raise my thyroxin e it triggers thr CCSVI symptoms so badly I have to give up.
Thyroid disease, Vitamin D deficiency, hypermobility, 'ME/CFS', CCSVI (stenosis both sides and assymetric malformed valves), TMJ - No MS but many neuro symptoms.
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Postby jimmylegs » Wed Apr 20, 2011 6:55 pm

AFAIK hypothyroid and low zinc are linked.
also it's hard to synthesize 25hydroxyvitamind3 without adequate zinc. i reacted to d3 3x better after optimizing my zinc status.
possibly try researching thyroid test levels in 'healthy controls' and see if you match :)
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Postby Shannon » Thu Apr 21, 2011 4:53 am

I have taken Levoxyl for years for underactive thyroid. if I skip my medication, I do actually get a sore neck and enlarged gland. It had been borderline at first, but during pregnancy with my fourth chilld is when it went way off. That was almost 6 years ago now. I don't know if there is a relationship. but my Mom has bad thyroid issues and had the radioactive iodine procedure which just killed her thyroid altogether. She has to take medication to replace it. She doesn't have MS, but does have RA.
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