Controversial surgical procedure gives woman her life back

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Controversial surgical procedure gives woman her life back

Postby Cece » Fri Jan 21, 2011 2:06 pm

http://www.theprovince.com/health/Story ... story.html
Right after MacNeil, 39, had surgery in Tychy, Poland, she said she had an energy spike greater than anything she'd felt for 20 years.

That lasted about six weeks and then she started to deteriorate and, by the beginning of October, felt very fatigued once more.

"Then my energy started to build again and now I'm at a level where, although I'm not 100 per cent, I'm very pleased with it," she added

"I pretty well lived on my couch for two years," she said. "I could never pick my daughter up from school and now I can everyday. So that's really special for me."
Cece
Family Elder
 
Posts: 8994
Joined: Mon Jan 04, 2010 4:00 pm

Advertisement

Postby EJC » Fri Jan 21, 2011 2:15 pm

Yup, that'll be that placebo again........<rolleyes>
User avatar
EJC
Family Elder
 
Posts: 614
Joined: Tue Apr 20, 2010 3:00 pm
Location: Surrey, UK

Postby SaintLouis » Fri Jan 21, 2011 2:41 pm

Great articles you're finding Cece, thanks for sharing.
User avatar
SaintLouis
Family Elder
 
Posts: 153
Joined: Sun Dec 13, 2009 4:00 pm

Postby nellie » Fri Jan 21, 2011 2:52 pm

Thanks Cece for sharing those articles. Gives us all hope!
User avatar
nellie
Family Member
 
Posts: 95
Joined: Wed Jul 21, 2010 3:00 pm

Postby Cece » Fri Jan 21, 2011 3:55 pm

There are always these sorts of articles coming out of Canada. The trick seems to be to search for liberation procedure instead of CCSVI. :)
Cece
Family Elder
 
Posts: 8994
Joined: Mon Jan 04, 2010 4:00 pm

Postby garyak » Fri Jan 21, 2011 4:36 pm

This would seem to provide some hope for at least some patients who experience initial improvement but then slide backwards weeks latter
User avatar
garyak
Family Elder
 
Posts: 314
Joined: Sun May 30, 2010 3:00 pm
Location: grande prairie , alberta,canada

Postby EJC » Sat Jan 22, 2011 3:18 am

Emma experienced the "one week slide" - in her case it lasted about three days. We have no idea what it was, it could have been a mini relapse, it could be the body reacting to it's new blood flow - we just don't know.

After three days it just disappeared and all the post op improvements returned along with a few more bonus improvements.

We're now a month on and she continues tiny daily incremental improvements. It's only when you take a week by week or month by month snapshot that you realise the extent of the improvements.
User avatar
EJC
Family Elder
 
Posts: 614
Joined: Tue Apr 20, 2010 3:00 pm
Location: Surrey, UK


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service