This Is MS Multiple Sclerosis Community: Knowledge & Support

[Mattia]

http://www.ccsvi-sm.org/?q=node%2F717
It is a found-rising campain organised by the italian CCSVI-MS association. As someone of you may know, Prof. Zamboni left the trial sponsored by AISM-FISM (italian MS-Society) because they didn't want to use the right protocol and there was a seroius risk to have wrong results.
Now Prof. Zamboni can have his own trials officially supported by the University of Ferrara. But he needs funds to start the trials.
Please, donate to help Prof. Zamboni demonstrate the correlation CCSVI-MS!!

[Cece]

Thanks Mattia for posting this important link.

Between this and Dr. Haacke's need for funding (as he did not receive any of the NIH grants or MS Society grants that could have helped him), perhaps we need to organize and fund-raise.

CCSVIhusband, I know you have skills in this arena! Any ideas?

[ThisIsMA]

Hi Mattia,

Thank you for posting this link!

Would it be possible to have a Paypal link added to the website so that people can make a donation easily from a computer?

I would like to donate, but I don't know how to do this using a bank account number from another country.

If anyone else knows how to do this, please let me know.

Thank you,

Mary Ann

[Algis]

You simply need the IBAN code in thee link. You may just print that image, go with it or fax it to your bank with the amount to transfer. They know how to do; they do it everyday.

[Mattia]

Thank you to everyone!
I posted the link to the page with the codes for an international payment.
I'll contact the people of the association in order to know if it is possible for them to set up a Paypal payment on the web-page.
Mattia
PS.: Sorry for my English.

[Mattia]

Hallo
I'm back on these pages to say that it is now possible to donate for the research of Prof. Zamboni using Paypal.
Here's the link to the site of the italian CCSVI-MS association where is possible to donate: http://bravedreams.ccsvi-sm.org/en
Pleas, help Prof. Zamboni, help the research to proof the correlation between CCSVI and MS!!!
Thank you

Mattia

[orion98665]

Hi, i'm assuming this is another link you can use to donate using paypal.

http://www.ccsvi-sm.org/

It is. Donation made!!



Bob

[Mattia]

Yes Bob, it is a link to the the same web-site.
Thank you for your donation!
I hope other MS-sufferers here will join us and support Zamboni's official trials!
Mattia

[Persistent]

Donation made. Thanks.

[Mattia]

Thank you to those who have made a donation.
We're still far away from the target.
Here can be found detail about the trials and the related costs: http://bravedreams.ccsvi-sm.org/en/clinical-trial
And here the onéline list of the donors with the reached amount: http://bravedreams.ccsvi-sm.org/en/clinical-trial

Please support Prof. Zamboni!
http://bravedreams.ccsvi-sm.org/en/dona ... -donations

Mattia

[ThisIsMA]

I donated today!

Thank you for adding the paypal link. This makes it so easy to donate to Dr. Zamboni's clinical trial of CCSVI. I'lll try to remember to come back once a month and donate again.

Mary Ann

[secondopinion]

If there is a project looking for financial support and its proposed mechanism of action is in clear contradiction with evidence based and generally accepted medical knowledge, then one has to ask first, maybe this is just a project for profit only?
I am not against innovative and aggressive new treatments, but in case of MS I would better think for aggressive immunosupressive/immunomodulatory treatment, like rituximab (which has been shown to be effective even for progressive disease, in subsets of younger people) or similar and first-line, not for "rescuing" patients whose brain tissue is unfortunately already too much destructed beyond the line of repair.

[Cece]

As I understand it, CCSVI is not in contradiction with the previous immune/autoimmune theory, it dovetails nicely with it. There was always the missing piece of the puzzle for why the immune reaction begins in MS and how the leukocytes get into the CNS when the blood brain barrier should keep them out in large numbers. CCSVI may be a promoter of the condition of MS as it is already understood. With the very high association with MS that has been shown and the possible effect on blood flow to the organs most affected in MS (brain and spine), I consider it very much worth supporting research into CCSVI.

[1eye]

I was going to post, that maybe this is just another posting by some anonymous troll, but as usual I have to stick in my $0.02 and point out that dying persons are people too and deserve rescue. The CCSVI procedure has much evidence behind it. It also has been known to be used to rescue the dying, and damaged people.

I find it heartless to refer to anyone as "destructed" (sound like Malden?) 'beyond repair'. Of course it is common for ego-rich overly self-inflated would-be doctors to play at being God, but to describe a human being that way is something that, if God existed, He would never do, even if He were playing at being human. That is a game a completely moral being would find too dangerous, as it would risk behaving like the person who sent that posting.

Of course you can try drugs, even mabs, as a last resort, which one would hope would not be necessary, after attempting the obvious Liberation procedure.

If there is a project looking for financial support and its proposed mechanism of action is in dispute by the mean-minded, perhaps donating to it might be one of the best possible ways to allocate scarce money, since the human race might profit greatly by putting these fools in their places, and silencing them forever?

They would probably not be quiet, not knowing even what is good for themselves. It is better, as Lisa Simpson is fond of saying, to remain silent and be thought a fool, than to speak up and remove all doubt. Or, as the chef in the restaurant I used to work at used to say: "It's better to shut up and people think you're stupid, than to open your mouth and prove it."

[1eye]

As I understand it, CCSVI is not in contradiction with the previous immune/autoimmune theory, it dovetails nicely with it. There was always the missing piece of the puzzle for why the immune reaction begins in MS and how the leukocytes get into the CNS when the blood brain barrier should keep them out in large numbers. CCSVI may be a promoter of the condition of MS as it is already understood. With the very high association with MS that has been shown and the possible effect on blood flow to the organs most affected in MS (brain and spine), I consider it very much worth supporting research into CCSVI.

You have just pointed out why it is a dangerous things to do to an 'MS' patient, to give them Tysabri. Its mechanism of action is to prevent leukocytes from crossing the blood-brain barrier, when it has been breached by some unknown mechanism, or, as we now know, by CCSVI. If they are prevented from entering the CNS compartment, when normally at least they, could cross into it, they are prevented from keeping PML (and who knows what other pathogens?) in check. The auto-immune hypothesis has been proven by this drug to be a deadly 'theory'. Other drugs somehow induce leukemia, though one could speculate that a condition involving angiogenesis might have something to do with that as well (do they cause leukemia in healthy controls?).

If, as we now know, there is no auto-immune condition causing hyper-immunity, some 'MS' patients might have *hypo*-immunity, and be prime targets for PML. Especially those who have had immune modification by Interferon or chemotherapy, or even steroids.