This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Tue Jun 18, 2013 3:44 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 21 posts ]  Go to page 1, 2  Next
Author Message
PostPosted: Tue Jan 25, 2011 1:24 pm 
Offline
Family Elder
User avatar

Joined: Sun Dec 13, 2009 4:00 pm
Posts: 151
I received this in an email:



BNAC announces




Cerebral Venous Doppler Testing




Chronic cerebrospinal venous insufficiency (CCSVI) research is still in the initial stages.




At this time, the association between CCSVI and multiple sclerosis (MS) is undetermined, and it is not clear whether treating CCSVI has an impact on MS. Recent studies suggest that not all patients with MS present with CCSVI, and that CCSVI can be seen in healthy individuals and patients with other neurological diseases. Nevertheless, many MS patients want to know their CCSVI status.




In response to requests, patients can now be tested at Buffalo Neuroimaging Analysis Center (BNAC) for CCSVI by one of our registered vascular technologists (RVT).




Patients will have a Doppler examination of the extracranial and intracranial veins performed by a member of the BNAC RVT team, trained in the Zamboni research protocol. Recent BNAC studies indicate that the non-invasive Doppler ultrasound approach is preferable for initial diagnosis and for follow-up purposes. It is therefore safer while yielding results similar to invasive venography and can be therefore recommended for initial screening purposes.

Testing is available Monday to Thursday

Evening hours are available

Patients will be informed of the results at the conclusion of the exam

A written report will be mailed or faxed within two business days

Cost: $675



BNAC EXPERTISE



BNAC has performed over 1,500 cerebral venous Doppler exams as part of IRB approved clinical studies with published results or results in press..




Our team is uniquely qualified to assess CCSVI based on their extensive experience in this new vascular Doppler imaging technique.




BNAC is one of only two CCSVI Doppler training centers in the world.




Having analyzed 100,000 Doppler images, we offer this service based on our ability to identify venous anomalies.




Still have questions, click here for FAQ section.




Click here for links to BNAC research related to CCSVI and Multiple Sclerosis.



If you are considering CCSVI Doppler testing, click here to schedule an appointment.


Christina Brooks
Project Coordinator
Buffalo Neuroimaging Analysis Center (BNAC)
100 High Street
Buffalo, New York 14203
716-859-7669 begin_of_the_skype_highlighting 716-859-7669 end_of_the_skype_highlighting


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 1:47 pm 
Offline
Family Elder
User avatar

Joined: Mon Nov 23, 2009 4:00 pm
Posts: 462
I see what they are saying in regards to CCSVI, however why is that those who have MS, found to have CCSVI, then have the venoplasty improve? Case in point Denise Manley? :?


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 4:14 pm 
Offline
Family Elder
User avatar

Joined: Fri Sep 18, 2009 3:00 pm
Posts: 831
This is great news.

And worth every cent .

This is the '' Tipping Point '' that I've waited for.

:idea: Sell the lawnmower ..... rakes and clippers .... and get this

all -important step done ......... :wink:




Mr. Success


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 4:19 pm 
Offline
Family Elder

Joined: Sun Dec 05, 2010 4:00 pm
Posts: 131
Location: WV
Here is the link for the BNAC site concerning the doppler testing service.

http://www.bnac.net/?page_id=648

BNAC notes..."In order to be considered for CCSVI Doppler testing, you must first accept BNAC consent form before you can fill out a clinical questionnaire and request an appointment."

_________________
It's a paradigm shift


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 5:34 pm 
Offline
Family Elder
User avatar

Joined: Wed Apr 28, 2010 3:00 pm
Posts: 178
Location: Ontario, Canada
price might be a tad high....CCSVI testing done in Ontario for $250.00.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 5:37 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8552
It reminds me of last spring, when BNAC offered MRVs at the cost of $4500, which seemed better spent if it was going toward the procedure, nto just the testing.

But, grumbles aside, BNAC has experience and I'd have confidence in the results obtained there.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 5:39 pm 
Offline
Family Elder
User avatar

Joined: Sun May 30, 2010 3:00 pm
Posts: 314
Location: grande prairie , alberta,canada
I had dopper there in Aug and it showed only reflux while laying down and said I didnt have ccsvi ( not enough critiria ) but subsequent catheter venogram with PTA confirmed stenoses which was treated. Doppler has it's limits IMO.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 6:31 pm 
Offline
Family Elder
User avatar

Joined: Fri Sep 18, 2009 3:00 pm
Posts: 831
well .......... we've gone from not having anyone offering this procedure ...... to what we have today ....

the price seems reasonable ........ and you cannot possibly get a better place to begin your CCSVI journey ...... to good health .

The more pwMS that allow BNAC and Dr.s Zivadov and B-W to test and evaluate them ....... will greatly aid ...... in getting this treatment accepted or rejected ....... sooner than later.

I endorse this invitation .


It's what everyone has been waiting for ............



Mr. Success


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 6:46 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8552
Quote:
CCSVI may interfere with the normal venous outflow of the brain, resulting in backpressure within, and deposits of iron around, cerebral vessels. The venous anomalies can be detected using either non-invasive or invasive techniques. Non-invasive techniques include Doppler ultrasound studies of the venous drainage system and magnetic resonance venography, whereas invasive techniques include injection of dye into vessels (catheter venography). Recent studies performed by our group suggest that the non-invasive Doppler ultrasound approach is preferable for initial diagnosis and follow-up purposes, because it is safer and yields results similar to those of the invasive venography studies.

http://vovici.com/wsb.dll/s/8727g48d3d

Is that accurate? We keep hearing that pressure is not the issue.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 7:11 pm 
Offline
Family Elder
User avatar

Joined: Sun Feb 17, 2008 4:00 pm
Posts: 455
jackiejay wrote:
price might be a tad high....CCSVI testing done in Ontario for $250.00.


Yes, disappointing to see more price gouging. False Creek at $500, the Arizona doppler people coming up to Seattle to test people charging even more than that. Yet Ontario let's us know what a reasonable price really is.

And here's BNAC charging well in excess now too.

I guess it's not just Big Pharma out to make as big a profit off of us as possible. I had really hoped CCSVI would introduce less greedy, more compassionate care. Looks like we're not going to get a break from BNAC.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 7:49 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8552
CCSVI Atlanta charges $550.
http://ccsvi-atlanta.org/faq/

BNAC's price isn't unreasonable.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 9:29 pm 
Offline
Family Elder
User avatar

Joined: Fri Sep 18, 2009 3:00 pm
Posts: 831
BNAC is one of only two CCSVI Doppler training centers in the world


That is why you may benefit from BNAC examining you .

Get over the cost . It is justified.





Mr. Success


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 9:55 pm 
Offline
Family Elder
User avatar

Joined: Sun Feb 17, 2008 4:00 pm
Posts: 455
MrSuccess wrote:
BNAC is one of only two CCSVI Doppler training centers in the world

That is why you may benefit from BNAC examining you .

Get over the cost . It is justified.





Mr. Success


That's really interesting considering many of the US u/s techs have come up to Canada for training in Ontario by the Cdn techs who were trained in Italy. It seems that Canada has become a training center itself.

Where it costs $250 per doppler screening to the public. Yet the Cdn-trained techs are returning to the US where the facilities are charging much much more than the Italian-trained Cdn techs. I wonder why the US techs are coming to Canada instead of training at BNAC...

I don't work nor have insurance to cover testing or treatment much less travel/hotel costs. Maybe it seems more reasonable to pay more than double the lowest price (where quality is high) if you aren't paying out of your own pocket. Cece, I know you are postponing your own treatment so you won't have to pay out of your own pocket, maybe that influences what you consider "reasonable", what the cost to you out of pocket of testing/treatment is.

You seem to take issue with treatment facilities that are charging double or more than the "going rate" and caution people about them. Not sure why this being 2.5x the lowest rate and much more than elsewhere is still "reasonable" to you though. I think Albany charges $400.

Mr. Success - please don't direct me to "get over the cost". We are each entitled to our opinion, that is what discussion is all about. You may disagree wth me but you can't stifle me. I STILL think $675 is outrageous given that they are being done for $250 elsewhere and the quality is excellent. Charging so much more feels like they are taking advantage of us to turn as large a profit as possible. I hope people will complain or refuse to go there so the prices come down to something more reasonable.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 10:29 pm 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4695
Location: southern California
well...now we can better understand the context of Dr. Zivadinov's recently published negative MRV research. They are obviously proponents of doppler US to detect CCSVI. Looking forward to BNAC's treatment study.
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 25, 2011 11:10 pm 
Offline
Newbie
User avatar

Joined: Wed Sep 22, 2010 3:00 pm
Posts: 7
Aren't the dopple test pointless especially for Canadians since there isn't anyone qualified to read the results.
Most leave these centres with CD in hand and noone to report.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 21 posts ]  Go to page 1, 2  Next

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. BNAC » CCSVI Diagnostic Testing

LoveActually

7

1489

Fri Feb 19, 2010 7:05 pm

AlmostClever View the latest post

There are no new unread posts for this topic. Update from BNAC on diagnostic testing

EnjoyingTheRide

6

1569

Fri Feb 26, 2010 10:54 am

MaggieMae View the latest post

There are no new unread posts for this topic. Update on self-pay BNAC CCSVI testing

[ Go to pageGo to page: 1, 2, 3 ]

pegmegrund

34

4254

Mon May 24, 2010 6:07 pm

pegmegrund View the latest post

There are no new unread posts for this topic. I have a contact number for BNAC self pay CCSVI testing

ozarkcanoer

0

668

Tue May 25, 2010 6:48 am

ozarkcanoer View the latest post

There are no new unread posts for this topic. Looking for competent MRV, Doppler testing in Texas

GinaMass

3

918

Tue Apr 20, 2010 10:16 am

akaheather View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  
cron


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

Advertise on the premier multiple sclerosis forum