Untrained Doctor->US?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Untrained Doctor->US?

Postby johnny21 » Wed Jan 26, 2011 6:55 am

hi,

i'm currently searching for someone who can diagnose ccsvi. i'm in germany and have a referral from my GP to a vascular surgeon to do an US. I can't find someone who is familiar with the "zamboni method". what are your experiences in untrained vascular surgeons/radiologists to diagnose ccsvi or rather problems in the jugular veins?

btw: i'm just searching for a diagnosis. Treatment would be an option in the next few years because my ms is very mild and i'm very young. I only had one relapse (one lesion in the spinal cord/two in the brain (periventricular))

johnny
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Why travel to USA

Postby MarkW » Wed Jan 26, 2011 7:17 am

Hello Johnny21,
Why travel to the USA? The diagnosis and treatment is available in Germany, Poland, Belguim and UK, much closer than USA.

MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Re: Why travel to USA

Postby johnny21 » Wed Jan 26, 2011 7:22 am

MarkW wrote:Hello Johnny21,
Why travel to the USA? The diagnosis and treatment is available in Germany, Poland, Belguim and UK, much closer than USA.

MarkW


US means ultrasound in this case. Of course, i'm planning to get the diagnosis in germany. But prof. vogl in frankfurt doesn't work with refferals/NHS so i would have to pay for it.
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Postby Cece » Wed Jan 26, 2011 9:17 am

I think it's hit-or-miss with the untrained surgeons. False negatives being more likely than false positives, so if an untrained IR can find CCSVI, it's probably pretty obviously there, and if he can't, then a second opinion from someone experienced is a good idea. Best of luck Johnny!!
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Healthcover In Germany

Postby MarkW » Wed Jan 26, 2011 10:27 am

Hello Johnny21.
It did not cross my mind that any state/country health cover would pay for a doppler scan. You will get something that very few people receive, if you do. I suggest you try the German forum for help with this.

MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Re: Untrained Doctor->US?

Postby frodo » Wed Jan 26, 2011 11:41 am

johnny21 wrote:hi,

i'm currently searching for someone who can diagnose ccsvi. i'm in germany and have a referral from my GP to a vascular surgeon to do an US. I can't find someone who is familiar with the "zamboni method". what are your experiences in untrained vascular surgeons/radiologists to diagnose ccsvi or rather problems in the jugular veins?

btw: i'm just searching for a diagnosis. Treatment would be an option in the next few years because my ms is very mild and i'm very young. I only had one relapse (one lesion in the spinal cord/two in the brain (periventricular))

johnny


In Frankfurt, there is Dr. Vogl which uses only MRV, but he is in contact at least with two ultrasound doctors. They are Dr. Schmitz-Rixen and Dr. Meyn. I do not know exactly how they are organized, but I think the "entry point" is still Dr. Vogl.

You can search for his email in this forum. Somebody posted it long time ago.
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