Cece's turn

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby David1949 » Thu Jan 27, 2011 8:07 pm

I wish you the very best! I'll pray for you. May your treatment be 100% successful on the first try.
David1949
Family Elder
 
Posts: 645
Joined: Mon Aug 23, 2010 3:00 pm

Advertisement

Postby HappyPoet » Thu Jan 27, 2011 8:11 pm

Best wishes, Cece
User avatar
HappyPoet
Family Elder
 
Posts: 1401
Joined: Thu Jul 09, 2009 3:00 pm

Postby AlmostClever » Thu Jan 27, 2011 8:52 pm

Cece,

Will you be the one performing the procedure or Dr. S?

Try and snag an extra catheter setup for your in-home follow-up! :)

GOOD LUCK!!!!!!!!!!

A/C
If you can't explain it simply, you don't understand it well enough. - Al Einstein
AlmostClever
Family Elder
 
Posts: 366
Joined: Mon Dec 21, 2009 4:00 pm
Location: Houston, TX

Postby CaptBoo » Thu Jan 27, 2011 8:55 pm

Wishing you a fair wind in your sails.

Boo
<div>There be no dragons   ...Reese Palley</div>
User avatar
CaptBoo
Family Elder
 
Posts: 122
Joined: Wed Aug 18, 2010 3:00 pm
Location: SC, NM

Postby orion98665 » Thu Jan 27, 2011 8:58 pm

"Wishing you the best and good luck!!!!!"
orion98665
Family Elder
 
Posts: 135
Joined: Sat May 29, 2010 3:00 pm
Location: Vancouver, Wa

Postby Kleiner » Thu Jan 27, 2011 9:02 pm

All the best Cece! You're in great hands!

Can't wait to hear all about your adventure.
User avatar
Kleiner
Family Member
 
Posts: 33
Joined: Mon Sep 27, 2010 3:00 pm
Location: Ontario, Canada

Postby Donnchadh » Thu Jan 27, 2011 9:11 pm

May good health and speedy recovery be with you!!!!

(But please, don't try to post while being treated by the good Doctor :wink: )

It's your turn now....you earned it.

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
User avatar
Donnchadh
Family Elder
 
Posts: 513
Joined: Sat Jan 23, 2010 4:00 pm

Postby HopingHusband » Fri Jan 28, 2011 12:21 am

Go for it !!!!

You have contributed so much to this board !!

All the very best to you !!

Rest first !!....and then let us know how it went !!!
User avatar
HopingHusband
Getting to Know You...
 
Posts: 17
Joined: Thu Dec 10, 2009 4:00 pm
Location: Calgary, Alberta, Canada

Postby pairOdime » Fri Jan 28, 2011 2:59 am

What a wait it has been...praying for the best possible outcome CeCe.
It's a paradigm shift
pairOdime
Family Elder
 
Posts: 162
Joined: Sun Dec 05, 2010 4:00 pm

Postby Flashover81 » Fri Jan 28, 2011 5:55 am

Wishing you the very best....
User avatar
Flashover81
Family Member
 
Posts: 31
Joined: Tue Apr 20, 2010 3:00 pm

Postby Cece » Fri Jan 28, 2011 7:22 am

Countdown: 15 days away

So much support. Thank you. :D

We are part of something big here, with CCSVI, and I am honored to be sharing the journey with everyone here.

I've looked up my drug plan on its extremely slow-loading website. Dr. Sclafani's anticoagulant of choice is Arixtra, 5 mg, but it is not on my plan. Lovenox was covered, so I resigned myself to the Lovenox. Then I checked if a different dosage of Arixtra might be available. Jackpot! Arixtra 2.5 mg is on my plan. That means two shots a day instead of one, but I'm a pro from my Copaxone days, no problems there.

I am waiting for the all-clear, yes-this-is-going-through from Holly before I would be so bold as to get my airline tickets.

I sent an email for the Hubbard's registry packet in case Dr. Sclafani will agree to filling out the form needed for Dr. Hubbard's patient-centric registry. (www.hubbardfoundation.org) And I took the water calculator test that Cheer has posted about. (http://nutrition.about.com/library/blwa ... lator.htm; I need 2.4 liters or my jugulars will restenose out of thirst alone.) My husband requested the days off of work. My daughter talked about the Statue of Liberty and all that she will be seeing in New York.

One day closer.

Yes, it will be a long two weeks. :D
Cece
Family Elder
 
Posts: 9024
Joined: Mon Jan 04, 2010 4:00 pm

Postby jozee » Fri Jan 28, 2011 8:08 am

Cece,

So happy for you!!!

Jozee
User avatar
jozee
Family Member
 
Posts: 27
Joined: Thu Dec 03, 2009 4:00 pm

Re: Cece's turn

Postby BadCopy » Fri Jan 28, 2011 8:10 am

Cece wrote:Countdown: 16 days away

:D

Most of my insurance issues have been worked out. Still waiting on the preauth now and a few details but it looks like it's a go.

I called my GP this afternoon to get an appointment to get an Arixtra prescription and a blood test per American Access Care's instructions.

I am nervous but very happy!


Very nice to hear!!!!
User avatar
BadCopy
Family Elder
 
Posts: 141
Joined: Sun May 23, 2010 3:00 pm
Location: 10,000 Lakes

Postby hope410 » Fri Jan 28, 2011 8:30 am

Can't wait for the in-depth reporting (afterwards, of course!) Will we get a YouTube video of the procedure itself? :lol: Is Dr. Sclafani medicating you to keep you quiet so he can concentrate? LOL :wink:

What a quiet board it will be around here during your procedure with both you and Dr. Sclafani absent! It will feel like a playground without the monitors supervising! :D

I wish you the greatest result possible!
User avatar
hope410
Family Elder
 
Posts: 125
Joined: Mon Mar 08, 2010 4:00 pm

Postby belsadie » Fri Jan 28, 2011 9:27 am

SOOOOOOOO happy for you . waiting myself for a "Sclafani date".

Be sure to keep all of us up to date with your recovery!

Good Luck and God's Speed!!!!!!!!!!!!!!!!!!!!!!!!!!!
User avatar
belsadie
Family Elder
 
Posts: 106
Joined: Sun Mar 28, 2010 3:00 pm

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service