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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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David1949
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PostPosted: Thu Jan 27, 2011 8:07 pm 
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I wish you the very best! I'll pray for you. May your treatment be 100% successful on the first try.
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HappyPoet
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PostPosted: Thu Jan 27, 2011 8:11 pm 
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Best wishes, Cece
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AlmostClever
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PostPosted: Thu Jan 27, 2011 8:52 pm 
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Cece,

Will you be the one performing the procedure or Dr. S?

Try and snag an extra catheter setup for your in-home follow-up! :)

GOOD LUCK!!!!!!!!!!

A/C

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If you can't explain it simply, you don't understand it well enough. - Al Einstein
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CaptBoo
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PostPosted: Thu Jan 27, 2011 8:55 pm 
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Wishing you a fair wind in your sails.

Boo

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orion98665
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PostPosted: Thu Jan 27, 2011 8:58 pm 
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Location: Vancouver, Wa
"Wishing you the best and good luck!!!!!"
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Kleiner
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PostPosted: Thu Jan 27, 2011 9:02 pm 
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All the best Cece! You're in great hands!

Can't wait to hear all about your adventure.
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Donnchadh
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PostPosted: Thu Jan 27, 2011 9:11 pm 
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May good health and speedy recovery be with you!!!!

(But please, don't try to post while being treated by the good Doctor :wink: )

It's your turn now....you earned it.

Donnchadh

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HopingHusband
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PostPosted: Fri Jan 28, 2011 12:21 am 
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Location: Calgary, Alberta, Canada
Go for it !!!!

You have contributed so much to this board !!

All the very best to you !!

Rest first !!....and then let us know how it went !!!
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pairOdime
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PostPosted: Fri Jan 28, 2011 2:59 am 
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What a wait it has been...praying for the best possible outcome CeCe.

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Flashover81
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PostPosted: Fri Jan 28, 2011 5:55 am 
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Wishing you the very best....
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Cece
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PostPosted: Fri Jan 28, 2011 7:22 am 
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Countdown: 15 days away

So much support. Thank you. :D

We are part of something big here, with CCSVI, and I am honored to be sharing the journey with everyone here.

I've looked up my drug plan on its extremely slow-loading website. Dr. Sclafani's anticoagulant of choice is Arixtra, 5 mg, but it is not on my plan. Lovenox was covered, so I resigned myself to the Lovenox. Then I checked if a different dosage of Arixtra might be available. Jackpot! Arixtra 2.5 mg is on my plan. That means two shots a day instead of one, but I'm a pro from my Copaxone days, no problems there.

I am waiting for the all-clear, yes-this-is-going-through from Holly before I would be so bold as to get my airline tickets.

I sent an email for the Hubbard's registry packet in case Dr. Sclafani will agree to filling out the form needed for Dr. Hubbard's patient-centric registry. (www.hubbardfoundation.org) And I took the water calculator test that Cheer has posted about. (http://nutrition.about.com/library/blwa ... lator.htm; I need 2.4 liters or my jugulars will restenose out of thirst alone.) My husband requested the days off of work. My daughter talked about the Statue of Liberty and all that she will be seeing in New York.

One day closer.

Yes, it will be a long two weeks. :D
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jozee
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PostPosted: Fri Jan 28, 2011 8:08 am 
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Cece,

So happy for you!!!

Jozee
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BadCopy
 Post subject: Re: Cece's turn
PostPosted: Fri Jan 28, 2011 8:10 am 
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Location: 10,000 Lakes
Cece wrote:
Countdown: 16 days away

:D

Most of my insurance issues have been worked out. Still waiting on the preauth now and a few details but it looks like it's a go.

I called my GP this afternoon to get an appointment to get an Arixtra prescription and a blood test per American Access Care's instructions.

I am nervous but very happy!


Very nice to hear!!!!
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hope410
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PostPosted: Fri Jan 28, 2011 8:30 am 
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Posts: 125
Can't wait for the in-depth reporting (afterwards, of course!) Will we get a YouTube video of the procedure itself? :lol: Is Dr. Sclafani medicating you to keep you quiet so he can concentrate? LOL :wink:

What a quiet board it will be around here during your procedure with both you and Dr. Sclafani absent! It will feel like a playground without the monitors supervising! :D

I wish you the greatest result possible!
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belsadie
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PostPosted: Fri Jan 28, 2011 9:27 am 
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SOOOOOOOO happy for you . waiting myself for a "Sclafani date".

Be sure to keep all of us up to date with your recovery!

Good Luck and God's Speed!!!!!!!!!!!!!!!!!!!!!!!!!!!
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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