Cece's turn

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby prairiegirl » Sat Feb 12, 2011 2:03 pm

Great to hear all went well! :D
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Postby Kathryn333 » Sat Feb 12, 2011 2:08 pm

Thanks for the report, Dr. Sclafani. Congratulations. Cece, can't wait to read all about it. I'm so happy for you. :D
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Postby AlmostClever » Sat Feb 12, 2011 2:21 pm

drsclafani wrote:With her permission, i am informing you all that everything was completed exactly as planned with no hiccups or problems.

The dangerous surgery was completed without ruptured veins, infections or any of the other feared horrid complications

Immediately after the procedure, Cece is now seeing colors vividly and sounds did not grate on her.

i will leave the rest for her to describe.



s


Are you sure you didn't have to cut off a toe or remove an eye? Did you have to put her on a respirator and will she need a pacemaker now?

Seriously, glad to jear it went well! Now, we can all relax!!!
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Postby CaptBoo » Sat Feb 12, 2011 2:31 pm

Looks like the doubters will have to wait for the next one to prove their notions of danger and lack of efficacy, this one has landed on the side of the zealots. Maybe next time guys.

Can't wait to get the words straight from Cece's fingers.
<div>There be no dragons   ...Reese Palley</div>
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Postby hopeful2 » Sat Feb 12, 2011 2:45 pm

Thanks for the update Dr. Sclafani---I've been thinking about Cece all day! What great news (I'm doing a little dance of happiness).
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Postby MS_HOPE » Sat Feb 12, 2011 4:09 pm

So happy to hear of Cece's uneventful procedure, and directly from the good doctor himself!! If anyone deserves the best outcome (though don't we all?), Cece does! Rest up, Cece, and only afterwards, type away!!

Thank you, Dr. Sclafani! (I regret that I've been out of the CCSVI loop for a bit, and missed being part of the OFFICIAL BIG thank-you!)

Exciting times, these. :D :D
CCSVI:  Making Sense of MS
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Postby sara-sama » Sat Feb 12, 2011 4:10 pm

Thanks , Dr. Sclafani. Congratulations Cece .
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Awesome!

Postby Rose2 » Sat Feb 12, 2011 4:22 pm

CeCe!!!
You have been there for all of us for soo long. True Congrats on your procedure, your patience and endurance.
NOW REST!!! Please! It is exciting and so tempting to overdo it. So many changes come along slowly and some can be quick.
1.5 years later and I am still improving in MANY ways!
Sincerely,
Rose2 ;)
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Postby fernando » Sat Feb 12, 2011 4:26 pm

Congratulations!
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Postby Nunzio » Sat Feb 12, 2011 4:39 pm

Hi CeCe,
I am glad you are still alive and well.
I thought Dr. Sclafani would have allowed you to take your laptop in the surgical room with you. Do not worry; the vivid color you are seeing now are due to the anesthetics used during the procedure.
Hope you will have long lasting improvements.
Stay warm, we are all expecting to learn the detail of the procedure from you soon.
Best wishes
Everybody here brings happiness, somebody by coming,others by leaving.  PPMS since 2000<br />
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Postby MaggieMae » Sat Feb 12, 2011 5:39 pm

Cece

Been checking this site every few hours and saying a little prayer for you too. I'm so happy to hear that all went well and hope that you continue to improve.
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Postby drbart » Sat Feb 12, 2011 5:41 pm

drsclafani wrote:The dangerous surgery was completed without ruptured veins, infections or any of the other feared horrid complications

Excellent! Luca Brasi has been called off.. assuming he checks his voicemail..
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Postby drsclafani » Sat Feb 12, 2011 5:52 pm

Nunzio wrote:Hi CeCe,
I am glad you are still alive and well.
I thought Dr. Sclafani would have allowed you to take your laptop in the surgical room with you. Do not worry; the vivid color you are seeing now are due to the anesthetics used during the procedure.
Hope you will have long lasting improvements.
Stay warm, we are all expecting to learn the detail of the procedure from you soon.
Best wishes


nunzio
what anesthetics would they be?
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Postby Cece » Sat Feb 12, 2011 6:06 pm

I was just googling fentanyl to see when it wears off or what might be effects of the fentanyl.

some initial thoughts:
everyone with MS needs access to this procedure. We need to figure this out, it can't be that impossible, which doctors are going to move this forward and how to support them, the goal being to get this as widely available and safely performed at the minimal expense, in the fewest number of years.

I had improvements on the table. My right jugular was 80% occluded, my left was 100%. After the right jugular was ballooned, the wooziness I was feeling from the fentanyl suddenly cleared, the colors that had been dull became bright, I became aware of the music playing in the background, and my ability to breathe deep and hold my breath when he asked me to was now easy when it had been hard.

I never felt woozy from the next dose of fentanyl as I had from the first.

Even getting back to the hotel, the music in the lobby was pleasant but disturbing - disturbing because it is pleasant when it would not normally be and because I am noticing it when I hadn't the previous days.

I am tired, from the procedure and all the nerves.

If Dr. Sclafani is so inclined, perhaps he will post the images from the procedure today, so that everyone can see the before-and-afters and admire his handiwork? It was exactly as it should be afterwards, free-flowing and wide open.

My azygous too is of interest, it was enormous. It would seem to have been recruited to help drain the brain as the blood was going down the verts then through the azygous instead of directly through the jugulars.

He was able to use fairly large balloons. I believe my right was 16 mm as measured by ivus, so he oversized by 2 mm with an 18 mm balloon, which showed two waists if I overheard correctly. On the left it was smaller, but not by much.

I am now tired, a little overwhelmed by the odd sights/sounds, and with a sore neck, but very pleased with how things went, and as always impressed with Dr. Sclafani's skills and kindness.
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Postby newlywed4ever » Sat Feb 12, 2011 6:09 pm

drsclafani wrote:With her permission, i am informing you all that everything was completed exactly as planned with no hiccups or problems.

The dangerous surgery was completed without ruptured veins, infections or any of the other feared horrid complications

Immediately after the procedure, Cece is now seeing colors vividly and sounds did not grate on her.

i will leave the rest for her to describe.



s



WONDERFUL news! Glad you both survived :wink:
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