Hi Cece, Blossom and CD,
thanks for your wishes which came to fruition.
I cannot imagine a more knowledgeable and thorough doctor than Dr. Sclafani. In fact, sorry to tell you CD, he did not find problem in all three areas; he found problems in all 4 areas and treated them.
As expected I had narrowing in my left IJV due to narrow valve which he dilated. Next he dilated my right hypoplastic IJV even though he did not give me much hope there.
Then he looked at my azygous vein where he found 3 problem areas which were dilated. Finally he looked at the iliac vein where I had an unusual problem where the vein was split in 2 segments with
blood being pushed toward the azygous vein using the iliac-lumbar vein as a collateral, so he dilated both segments to improve the flow.
The procedure lasted over four hours, not the 30 minute common in other places.
I am already experiencing some improvement , I can walk better and I have more strength in my right hand.
I was happy to hear about your improvements after your procedure.
I was also diagnosed with PPMS; even though, my own neurologist has never named it. I had my first procedure; however, they spent only 30 minutes on the procedure and dilated only my right IJV. As it has collapsed, I am looking for my second treatment somewhereelse. I am just wondering, if you are aware of any symptoms or signs that might indicate problems other than in the IJVs and azygos. I noticed that you had problems in the iliac vein as well. I guess this is something that can be examined only if they enter the left side, so most of the doctors like dr Sinan would not look at. What other veins did dr Sclafani examine in your case? I have already showed my images to dr Sinan and he told me that he would ballon and cut the right IJV valve and dilate the left valve and also the valve in the azygos. So, he saw problems in all three veins. I am afraid that I pay a lot again for my second procedure and some problem that is not checked may be present.
How long is the waiting list with dr Sclafani? Unfortunately, in my country, we have only state health insurance so it would not cover the CCSVI procedure; therefore, I must pay by cash.