Cece wrote:There have been some talk lately that maybe the first procedure sets the bar for how much improvements can be achieved in any future procedures. This might be true in some or many cases but I don't think it's true in mine. Back in February, my left arm numbness retreated but I was still having odd sensations in the arm (tingles, discomfort, it's hard to describe!). This time, the numbness is gone, there are no odd sensations, and just as I can say my right foot that formerly had residual foot drop is now equal to my left foot that never did, my left arm is feeling equal to my right arm. At no point in the last year, even after my procedure in February, would I have said that. I hope it lasts.
More to say later about fatigue, cogfog, overstimulation, exercise, and colors colors colors.
Cece wrote:Hugs, Vivianne. Say hi to Dr. Sclafani for me. I hope you get amazing results.
I have since done far more walking that what it would've taken to set that foot off, and nothing.
* it is too early to make the call but this week I have noticed cogfog and fatigue improvements, following my second procedure two weeks ago. Serious cogfog improvements. Fingers crossed.
HappyPoet wrote:Everyone, here is a link to an excellent anatomical drawing to compare to Cece's excellent actual CT images (not of herself): Hemiazygos and Azygos veins
Cece wrote:Your finger-, toe-, knee- and nose- crossing are paying off, I think, although who knows how long it will last? But here is what I have to report: three days ago, on Tuesday morning, my minute-to-minute functioning improved by quite a degree. And it has stayed that way since then. Why Tuesday morning, two weeks post-procedure? Why so sudden? Why not after the first procedure, back in February? I don't know. But this covers cogfog and fatigue. It is very different than my norm, in a good way. The best way I could describe it is it's as if I was at a really loud concert, for however many years, and then on Tuesday morning the band finally went home to sleep it off. There is an absence that is palpable.
I could try to describe it further but it is hard to describe and, also, let's see if it lasts. If it does, it is remarkable.
drsclafani wrote:while we have all been speaking about trying to fix this with one procedure, i have been mulling around the idea of a second treatment 3-6 months after the first empirically as a second stage of a procedure rather than as a restenosis treatment. I wonder whether you can actually stretch and tear things open in ond phase. I havent done it yet.
while we have all been speaking about trying to fix this with one procedure, I have been mulling around the idea of a second treatment 3-6 months after the first empirically as a second stage of a procedure rather than as a restenosis treatment. I wonder whether you can actually stretch and tear things open in one phase. I haven't done it yet.
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