First book on CCSVI - Let's show our solidarity

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Book on CCSVI

Postby Shayk » Sun Feb 06, 2011 7:17 pm

Michael

Welcome to TIMS and I hope you haven't already departed.

Marie Rhoads, the author of the book, CCSVI as the Cause of MS: The Science Behind the Controversial Theory, is indeed a long time and well respected (at least by some of us) member of the TIMS community. I for one appreciated having more information about her book.

My personal interpretation of the TIMS policy re: advertising is that you did not break the rule.
From Aaron:

Quote:
NO advertising is allowed on the message boards, period. If you like a product, you can tell us about it.

You liked the fact a book on CCSVI was being published and you told us more about it. That seems to me to be well within the rules.

Those rules also state:
[b]But if you gain financially from selling said product[/b], your posts will be deleted and you will be banned from the site without warning
.
I never had the impression that you, Michael, would be gaining financially from selling the book. Hence, I don't think you broke any rules.

I anxiously await the opportunity to read the book. Marie is quite knowledgeable about MS and has always contributed her expertise to TIMS.

Scorpion
As much some of you have wanted the rules of the board enforced on this forum it confounds the imagination why suddenly they should not apply. Seriously
.
Seriously, I do want the rules of the board enforced on this forum and hopefully I've just explained why I personally do not think that rule applies in this situation.

So we can understand why your imagination is so confounded, please also answer the question:
If you could explain what is meant by "ccsvi advertising" that would be appreciated


Scorpion
No one said anything mean spirited.
Again, I respectfully disagree. I think insinuating (I know it wasn't you Scorp) that TIMS members who are interested in supporting CCSVI information and research are reminiscent of "Jim Jones" is very, very mean spirited. That's a lot of us.

I agree with Cheer,
the nastiness, mean-spiritedness and vitriol of certain posters on this thread continues to amaze me
It's another sad, new low point for TIMS. The anger and rage I feel is beyond description. Nor is it good for my MS. That's why I think good people abandon the site, feeling hopeless and helpless. We've been through it a lot.

Take care all

Sharon
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Advertisement

Postby MrSuccess » Sun Feb 06, 2011 8:23 pm

you say you have anger and rage ? well .... just saying that ..... has put smiles on the faces of '' the usual suspects '' .

you have given them exactly what they came for .

far better to reply this way : :roll: ( o )


think about it :wink:



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Re: Book on CCSVI

Postby NHE » Mon Feb 07, 2011 12:54 am

Shayk wrote:My personal interpretation of the TIMS policy re: advertising is that you did not break the rule.
From Aaron:

Quote:
NO advertising is allowed on the message boards, period. If you like a product, you can tell us about it.

You liked the fact a book on CCSVI was being published and you told us more about it. That seems to me to be well within the rules.

Those rules also state:
But if you gain financially from selling said product, your posts will be deleted and you will be banned from the site without warning
.
I never had the impression that you, Michael, would be gaining financially from selling the book. Hence, I don't think you broke any rules.

I anxiously await the opportunity to read the book. Marie is quite knowledgeable about MS and has always contributed her expertise to TIMS.

Scorpion
As much some of you have wanted the rules of the board enforced on this forum it confounds the imagination why suddenly they should not apply. Seriously
.
Seriously, I do want the rules of the board enforced on this forum and hopefully I've just explained why I personally do not think that rule applies in this situation.


Agreed. Moreover, many people have made book recommendations on the Reading Nook forum. These also do not qualify as advertising.

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Postby Lyon » Mon Feb 07, 2011 2:26 am

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Last edited by Lyon on Sun Jun 26, 2011 5:51 am, edited 1 time in total.
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Postby jimmylegs » Mon Feb 07, 2011 10:58 am

IMHO Michael needs to provide some information regarding his financial involvement or lack thereof with respect to this book in particular, and CCSVI treatment in general.

I agree that book reviews by financially disinterested parties should be welcomed.

I also agree that there is a marked advertising flavour to some of the posts, including the near-daily updates which don't contain much discussion with other forum participants.

Other posts by Mr Hannan have promoted medical tourism entities, the first of which was removed as advertising:
http://www.thisisms.com/ftopicp-123080.html#123080
subject: disappearance of my post

I suggest that this particular thread belongs in the reading nook, if anywhere (pending confirmation or refutation of financial linkages). NHE?
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Postby concerned » Mon Feb 07, 2011 11:26 am

Not only do his posts on the board have an advertising flavour, the exact same posts are all over facebook.
concerned
 

Postby Lyon » Mon Feb 07, 2011 11:27 am

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Last edited by Lyon on Sun Jun 26, 2011 5:52 am, edited 1 time in total.
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Shameless solicitation

Postby 1eye » Mon Feb 07, 2011 1:32 pm

Disclaimer: if anybody can figure out a way for me to grab some of those big CCVSI bucks, send me a PM. I feel left-out.

In my old home town newspaper, there was a film reviewer, who I used to read assiduously. I knew if he disliked something, it was not to be missed, and that the inverse would be just as true.

After many months of trying to sift out the chaff here, you may determine for yourself, that with certain by-lines, content will mostly be missing or slanted; that you are likely to disagree, without ever having to click on the topic. For some there may be a masochistic pleasure in clicking regardless. For others, these complaints may be the kind of reverse weather vane my reviewer used to be for me.

With regard to the book referred to here, I have advance ordered my copy from Amazon. I would note that the attention given it, by the so-called skeptics, will generate more sales than Mr. Hannan could, with praise or hear-ye. Mean-spiritedness can be a signpost, pointing away from where you are going.

Rejoice, Marie. You have been given high praise before your book is even shipping!
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: Shameless solicitation

Postby Lyon » Mon Feb 07, 2011 1:40 pm

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Last edited by Lyon on Sun Jun 26, 2011 5:48 am, edited 1 time in total.
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Re: Shameless solicitation

Postby 1eye » Mon Feb 07, 2011 1:52 pm

Lyon wrote:Problem arises with Hannan and what is in it for him?


Except if you are J.K.Rowling, the book business will barely keep your kids in hockey skates.

He's probably just an admirer who thinks he might score a signed advance first edition. I don't feel threatened.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: Shameless solicitation

Postby Lyon » Mon Feb 07, 2011 2:21 pm

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Last edited by Lyon on Sun Jun 26, 2011 5:48 am, edited 1 time in total.
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rejig

Postby 1eye » Mon Feb 07, 2011 2:52 pm

Rephrase: the book business is not going to keep the wolves far from your door, unless you are J. K. Rowling. Sentence structure is a constant struggle for me. Sorry.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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