First book on CCSVI - Let's show our solidarity

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby cheerleader » Fri Jan 28, 2011 6:47 pm

Hi Michael--
Thanks for reminding us about Marie's new book.
You can trust that we'll keep Marie's book as a current thread around here, since she started her research and writing on this very forum! You can read all of her posts, as MRhodes on This Is MS.

Marie is speaking live tonight in Seattle--
here's a link to the live stream.

http://www.ustream.tv/channel/ccsvi-in- ... -gathering

take care,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby whyRwehere » Thu Feb 03, 2011 12:56 pm

Congratulations Marie, on finishing your book. When I have enough money to buy my Kindle, I will by the downloadable version.
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Postby concerned » Sun Feb 06, 2011 9:29 am

Once again, this seems like advertising to me.
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Postby scorpion » Sun Feb 06, 2011 10:32 am

concerned wrote:Once again, this seems like advertising to me.



From Aaron:

NO advertising is allowed on the message boards, period. If you like a product, you can tell us about it. But if you gain financially from selling said product, your posts will be deleted and you will be banned from the site without warning. Thank you for your understanding of this simple rule.
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Postby Lyon » Sun Feb 06, 2011 10:58 am

..
Last edited by Lyon on Sun Jun 26, 2011 6:50 am, edited 1 time in total.
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Postby IHateMS » Sun Feb 06, 2011 11:26 am

Lyon wrote:
scorpion wrote:
concerned wrote:Once again, this seems like advertising to me.



From Aaron:

NO advertising is allowed on the message boards, period. If you like a product, you can tell us about it. But if you gain financially from selling said product, your posts will be deleted and you will be banned from the site without warning. Thank you for your understanding of this simple rule.


Yes, but it's CCSVI advertising so it's OK.


give it a rest already.
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Postby scorpion » Sun Feb 06, 2011 11:45 am

Thisisms has always been an ad free forum. I am sure once the moderators get wind of this intrusion they will address the rule violation as they would on any of the forums.
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Postby CureIous » Sun Feb 06, 2011 12:19 pm

IHateMS wrote:
Lyon wrote:
scorpion wrote:
concerned wrote:Once again, this seems like advertising to me.



From Aaron:

NO advertising is allowed on the message boards, period. If you like a product, you can tell us about it. But if you gain financially from selling said product, your posts will be deleted and you will be banned from the site without warning. Thank you for your understanding of this simple rule.


Yes, but it's CCSVI advertising so it's OK.


give it a rest already.


Seriously.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby scorpion » Sun Feb 06, 2011 12:26 pm

CureIous wrote:
IHateMS wrote:
Lyon wrote:
scorpion wrote:
concerned wrote:Once again, this seems like advertising to me.



From Aaron:

NO advertising is allowed on the message boards, period. If you like a product, you can tell us about it. But if you gain financially from selling said product, your posts will be deleted and you will be banned from the site without warning. Thank you for your understanding of this simple rule.


Yes, but it's CCSVI advertising so it's OK.


give it a rest already.


Seriously.


As much some of you have wanted the rules of the board enforced on this forum it confounds the imagination why suddenly they should not apply. Seriously.
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Postby cheerleader » Sun Feb 06, 2011 2:51 pm

I would hope that all realize Marie Rhodes is MRhodes from This Is MS, and that her contributions on this forum would allow her some respect. She is not on here, selling the book....it is someone else she does not know. I asked Michael to remove his posts, since advertising is not allowed on TIMS.

Michael removed his other post, but seems to have missed this one. Perhaps Jimmy or NHE will remove it soon.

In the meantime, the nastiness, mean-spiritedness and vitriol of certain posters on this thread continues to amaze me. If any of these men had written a book, you can be sure there would be much back slapping and atta-boys. Talk is cheap, and actions speak much louder than anonymous words.

An idea not coupled with action will never get any bigger than the brain cell it occupied. ~Arnold Glasow

cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby CureIous » Sun Feb 06, 2011 3:00 pm

scorpion wrote:
CureIous wrote:
IHateMS wrote:
Lyon wrote:
scorpion wrote:
concerned wrote:Once again, this seems like advertising to me.



From Aaron:

NO advertising is allowed on the message boards, period. If you like a product, you can tell us about it. But if you gain financially from selling said product, your posts will be deleted and you will be banned from the site without warning. Thank you for your understanding of this simple rule.


Yes, but it's CCSVI advertising so it's OK.


give it a rest already.


Seriously.


As much some of you have wanted the rules of the board enforced on this forum it confounds the imagination why suddenly they should not apply. Seriously.


If you could explain what is meant by "ccsvi advertising" that would be appreciated. I would think a memo to the admin would be a preferred way to deal with this, vs. an outright lambaste, but that's just me... Dogpile away, please, whatever gets you through the day.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby scorpion » Sun Feb 06, 2011 3:14 pm

cheerleader wrote:I would hope that all realize Marie Rhodes is MRhodes from This Is MS, and that her contributions on this forum would allow her some respect. She is not on here, selling the book....it is someone else she does not know. I asked Michael to remove his posts, since advertising is not allowed on TIMS.

Michael removed his other post, but seems to have missed this one. Perhaps Jimmy or NHE will remove it soon.

In the meantime, the nastiness, mean-spiritedness and vitriol of certain posters on this thread continues to amaze me. If any of these men had written a book, you can be sure there would be much back slapping and atta-boys. Talk is cheap, and actions speak much louder than anonymous words.

An idea not coupled with action will never get any bigger than the brain cell it occupied. ~Arnold Glasow

cheer


No one said anything mean spirited. I in fact plan on reading Marie's book and hopefully discuss it afterwords in the reader's nook forum. There are not rules of the board for one group of people and not others.

“The skeptic does not mean him who doubts, but him who investigates or researches, as opposed to him who asserts and thinks that he has found”
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Postby Cece » Sun Feb 06, 2011 3:17 pm

scorpion wrote:As much some of you have wanted the rules of the board enforced on this forum it confounds the imagination why suddenly they should not apply. Seriously.

For me it's not about wanting rules to be enforced, it's about wanting us to play nice and respect each other's different opinions (including pro-CCSVI opinions, including anti- opinions) and remember that, differences aside, we've still got plans to have a beer someday together. I am sad that there are people who find the water here too hot and who choose not to take part in the community here because of it. So as much as we're all able to take a deep breath and a step back, it is a good thing.
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Postby scorpion » Sun Feb 06, 2011 3:21 pm

Cece wrote:
scorpion wrote:As much some of you have wanted the rules of the board enforced on this forum it confounds the imagination why suddenly they should not apply. Seriously.

For me it's not about wanting rules to be enforced, it's about wanting us to play nice and respect each other's different opinions (including pro-CCSVI opinions, including anti- opinions) and remember that, differences aside, we've still got plans to have a beer someday together. I am sad that there are people who find the water here too hot and who choose not to take part in the community here because of it. So as much as we're all able to take a deep breath and a step back, it is a good thing.


I agree Cece.
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Postby Lyon » Sun Feb 06, 2011 5:25 pm

..
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