This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi Michael--
Thanks for reminding us about Marie's new book.
You can trust that we'll keep Marie's book as a current thread around here, since she started her research and writing on this very forum! You can read all of her posts, as MRhodes on This Is MS.

Marie is speaking live tonight in Seattle--
here's a link to the live stream.

http://www.ustream.tv/channel/ccsvi-in- ... -gathering

take care,
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Congratulations Marie, on finishing your book. When I have enough money to buy my Kindle, I will by the downloadable version.
Why

Once again, this seems like advertising to me.

From Aaron:

..

give it a rest already.

Thisisms has always been an ad free forum. I am sure once the moderators get wind of this intrusion they will address the rule violation as they would on any of the forums.

Seriously.

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

As much some of you have wanted the rules of the board enforced on this forum it confounds the imagination why suddenly they should not apply. Seriously.

I would hope that all realize Marie Rhodes is MRhodes from This Is MS, and that her contributions on this forum would allow her some respect. She is not on here, selling the book....it is someone else she does not know. I asked Michael to remove his posts, since advertising is not allowed on TIMS.

Michael removed his other post, but seems to have missed this one. Perhaps Jimmy or NHE will remove it soon.

In the meantime, the nastiness, mean-spiritedness and vitriol of certain posters on this thread continues to amaze me. If any of these men had written a book, you can be sure there would be much back slapping and atta-boys. Talk is cheap, and actions speak much louder than anonymous words.

An idea not coupled with action will never get any bigger than the brain cell it occupied. ~Arnold Glasow

cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

If you could explain what is meant by "ccsvi advertising" that would be appreciated. I would think a memo to the admin would be a preferred way to deal with this, vs. an outright lambaste, but that's just me... Dogpile away, please, whatever gets you through the day.

_________________
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

No one said anything mean spirited. I in fact plan on reading Marie's book and hopefully discuss it afterwords in the reader's nook forum. There are not rules of the board for one group of people and not others.

“The skeptic does not mean him who doubts, but him who investigates or researches, as opposed to him who asserts and thinks that he has found”

For me it's not about wanting rules to be enforced, it's about wanting us to play nice and respect each other's different opinions (including pro-CCSVI opinions, including anti- opinions) and remember that, differences aside, we've still got plans to have a beer someday together. I am sad that there are people who find the water here too hot and who choose not to take part in the community here because of it. So as much as we're all able to take a deep breath and a step back, it is a good thing.

I agree Cece.

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