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MarkW wrote:Conclusions in summary: Patient-reported outcomes, like those entered within PatientsLikeMe, offer a unique real-time approach to understand utilization and performance of treatments across many conditions. These patient-reported data can provide a new source of evidence about secondary uses and potentially identify targets for treatments to be studied systematically in traditional efficacy trials.
MarkW wrote:I hoped that someone would notice that neuros use 'mind altering drugs' on pwMS when these drugs are not registered for such a use (called of label prescribing). However the same neuros say pwMS cannot use 'off label' balloon venoplasty for de-stenosis. Now that seems fair to me.
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