calling Zamboni's original patients

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby wobbly » Mon Jan 31, 2011 6:09 pm

JUST WAS LUCKY / now just on hold/ it really just was no big deal 2 have it done that s why i would do it again in a heartbeat 2 think that we were paid 75$ each time i went 4 whatever part of the study was going on [mri s-dopplers etc] and trip 2 italy very minor procedure rather have that then the hell of 1 week avonex/ peace :roll: :roll: :roll:
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Postby Asher » Wed Feb 02, 2011 3:39 pm

thornyrose76 wrote:SPMS symptoms don't come and go, they just come, and come.


This is not true - first hand experience. Stress, sufficient sleep and rest vs. fatigue, weather, humidity, optimism vs. depression, hope vs. desperation, placebo (the best medicine since sliced bread), to name just a few.

This is a simplistic attempt to justify unfounded and unproven claims that there is a causal relationship between angioplasty and MS symptom relief.

None of us has a clue what the hell is going on there. This CCSVI discourse starts to resemble religion - Doctors 'answering' questions? We are ill and we have every reason to want to believe, but for the time being I would opt for the more humble term 'addressing'.
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Postby concerned » Wed Feb 02, 2011 5:43 pm

Asher wrote: This CCSVI discourse starts to resemble religion -



I've felt this for quite some time.
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Postby thornyrose76 » Thu Feb 03, 2011 3:03 pm

well i haven't had this experience, nor have been told that by my physicians, rrms+highs and lows, then spms- progressive state.
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Postby Cece » Thu Feb 03, 2011 4:58 pm

I think the doctors prefer answering specific questions and not trying to answer (or address) the ones where we just don't know yet. If you go back to the beginning of Dr. Sclafani's thread, he was covering some real basics. Types of restenosis, route that the catheter goes, the actual and the imaginary dangers of angioplasty.

thornyrose, what you've said is my understanding of SPMS too.
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