where to get ccsvi treatment?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

where to get ccsvi treatment?

Postby oshik » Sat Jan 29, 2011 11:57 am

Hello,
I'm from Israel and im asking this on behalf of my mother.
my mother is diagnosed with MS since 1985. only recently we heard about the ccsvi treatment.
i found on the internet a number of institutes that carry out the treatment,and wanted to know if anyone can recommend on where to get it done.
for this kind of treatment the price is not an issue. we want the institute with the best and most experienced doctors in the ccsvi field.
so far i sent emails to private scan which operates in Belgium and euro-medic which operates in Poland.

Thanks in advance,
Oshik.
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Postby Pepe » Sat Jan 29, 2011 12:45 pm

Hi,

First of all, welcome!

You can see more clinics here:

https://docs.google.com/present/view?id=dc7tk26n_65c5s7zmhh&interval=5

Good luck,
Pepe.
María was Dx RRMS 1996. SPMS since 2003; Dx CCSVI by Dr. Simka on Dec.-2009; Balloon angioplasty on Jan.-2010 in Katowice (Poland); Betaseron (2000-2009); Tysabri since June 2009. BBD since 2003. IBT since Jan.-2010.
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Postby ykonstan » Sat Jan 29, 2011 3:24 pm

why can't u have it in Israel?

http://www.thisisms.com/ftopict-9661.html
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Postby Cece » Sat Jan 29, 2011 7:43 pm

Dr. Sinan in Egypt would be close. He is one of the most experienced in the world at this and has been very innovative with his methods.
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Postby AlmostClever » Sat Jan 29, 2011 7:59 pm

How is Dr. Sinan's clinic being affected by the recent protests? Might be easier somewhere else!
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Postby K9 » Sun Feb 06, 2011 12:21 pm

You can also do it in Tokuda hospital in Bulgaria. I think the price is a little under 5000 euros
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treatment sites

Postby Rosegirl » Sun Feb 06, 2011 1:04 pm

You must weigh the benefits of traveling to a foreign site against the benefits.

For example, a few doctors around the world have done many of these procedures. But each of them stresses the need for follow up, so staying close to home might have some benefit.

Within the next few months, there may be a "recipe" for doing CCSVI venograms. This kind of procedure has been done for decades, but there are fine points to treating CCSVI that hopefully will be contained in the documentation. Dr. Hubbard, among others, says that retreatment may be necessary, and you may (or may not) want to stick with the same doctor if future treatment is required.

www,CCSVI.org offers basic information for both the patient and any doctor you choose to work with. At http://www.hubbardfoundation.org, the Hubbard Institute can provide a package of information that will help capture the data from your mother's treatment so it can be studied to help identify what method(s) and treatment(s) are best.

Some countries outside the US have fewer restrictions on exposure to radiation. Some doctors are claiming universal success without providing documentation to prove their claims.

After the procedure, your mother may need medication to prevent clotting, screening to judge the effectiveness of the treatment and/or to access the likelihood of restenosis and perhaps physical therapy.

Because this is an exciting but extremely new form of treatment, if your mother is not experiencing extreme difficulty, it might be advisable to wait a few months until the procedure is more studied for the most effective methodology. There are few patients who have been successfully treated more than a year ago, so this concept is still evolving.

I was treated about nine months ago by a doctor who took a very conservative approach. He found several problems, but only treated one. The net result was that I got no benefit. I intend to be retreated, but I will be a much more skeptical (and hopefully wiser) patient the next time.
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Postby oshik » Mon Feb 07, 2011 4:35 am

Thank you very much for all the replies.
i will talk with my mother and explain everything to her.
im really glad i found this forum.

Oshik.
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