As for docs saying they aren't treating MS, I'm kinda with concerned on that one. I don't know of any IR that isn't requiring an MS diagnosis before doing angioplasty. So how can you say you aren't treating MS?
Dr. Hubbard's IRB does not require an MS diagnosis. He will refer to treatment if a patient is found to have CCSVI by the two Zamboni criteria, no other diagnosis needed.
sara-sama also was posting about a few people with ALS turning up with CCSVI and being treated by Dr. Sinan.
But, yes, the vast majority of patients with CCSVI also have MS.
I like what Dr. Dake said, about CCSVI being a promoter of MS. (With there being other promoters too: genetics, immune system, low vitamin D during childhood, etc.) So then by treating CCSVI, it is taking away a promoter of MS, which may then affect the MS.
Good point about the fatigue in PPMS. Lesions and motor difficulty and inflammation and depression are all other possible fatigue agents. They aren't too relevant in my case. I can't wait until we have all the data. I think bilateral jugular stenoses might end up being especially correlated with MS fatigue, as compared to other possible CCSVI configurations. It seems logical, anyway. Just as it seems logical that lumbar vein abnormalities, MT syndrome and azygous blockages may be associated with spinal MS.