This Is MS Multiple Sclerosis Community: Knowledge & Support

I am on the waiting list for Edinburgh, having been scanned at the end of October.

My booking ref # is in the 720‘s. Can anyone give an idea as to what number booking Edinburgh is up to and how quickly they are working through the list?

Are procedures to be undertaken at Guildford, and if so, when and by whom? Can we presume this may decrease the waiting time for Edinburgh? Or is Dr Reid to split his time between the two clinics?

Reports of azygous vein ballooning at Edinburgh seem important, but this wasn’t scanned at my appointment in October - is this a recent development? .

Can anyone explain the significance of my scan results obtained by Vic, the sonographer? I am told the norm for each measurement is 1.

L CCSVI 90° L JUGULAR CSA : 3.54 mm² L JUGULAR DELTA CSA : 10.05 mm²
L CCSVI 0° L JUGULAR CSA : 13.60 mm² L JUGULAR DELTA CSA : 10.05 mm²

R CCSVI 90° R JUGULAR CSA : 7.01 mm² R JUGULAR DELTA CSA : 15.77 mm²
R CCSVI 0° R JUGULAR CSA : 22.78 mm² R JUGULAR DELTA CSA : 15.77 mm²

How long is one required to be in Edinburgh?

Any hotel recommendations for wheelchair dependent patients?

I'm certainly not an expert, but I may be able to provide a little insight.



I can't make any sense out of that statement.



Cross sectional area (CSA) is a measurement that's used since the veins rarely have a round shape making a measurement of vein diameter unhelpful. I assume that 90° and 0° refer to the sitting and lying down positions respectively. Delta CSA is the difference between the two positions. The jugular veins should be smaller when sitting up or standing as compared to lying down (often referred to as the supine position). A negative delta CSA is one of the Zamboni criteria for CCSVI indicating that the jugular diameter does not increase when lying down and is smaller than when sitting or standing. A negative delta CSA infers that blood flow does not increase in the jugulars when lying down as it should. However, your delta CSA measurements are positive. This is confusing. It would be best to verify that the assumption regarding the 90° and 0° positions is indeed correct. Since it is still relatively early in the treatment of CCSVI, different doctors may be using different notation.

NHE

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Thanks, NHE. I'll try to get this clarrified.