CANADA: IF COMPLICATIONS...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CANADA: IF COMPLICATIONS...

Postby thornyrose76 » Sat Feb 05, 2011 1:37 pm

Given the horrific status quo regarding CCSVI in CANADA-if ccsvi patients develop complications post angioplasty aren't physicians in CANADA suppose to help patients? Wasn't that promise made months ago? What are the particulars on this specific issue as of Feb 2011? 8)
User avatar
thornyrose76
Family Elder
 
Posts: 462
Joined: Mon Nov 23, 2009 4:00 pm

Advertisement

Postby DrCumming » Sat Feb 05, 2011 4:18 pm

Hi,

My understanding is that they have been instructed to care for the patient in anyway they need. It doesn't make any sense to me the issues around this. People leave Canada to get bariactric surgery and if they come back home and have problems they get cared for.

I recently spoke to 2 Canadian IR's. One was positive and said they will do whatever needs to be done. The other basically said tough bananas for patients leaving and getting care elsewhere and that he had no intent at all to deal with them. Nice.
User avatar
DrCumming
Family Elder
 
Posts: 209
Joined: Sat Dec 25, 2010 4:00 pm
Location: Minneapolis, MN

Postby mavis » Sat Feb 05, 2011 5:19 pm

I got the care for the blood clot that developed in my stent. I was put on Heparin immediately and now I'm on Warfarin. It was really nice to see several doctors working together for my care.

I am in Ontario.
User avatar
mavis
Family Member
 
Posts: 78
Joined: Sun Sep 26, 2010 3:00 pm

Postby concerned » Sat Feb 05, 2011 5:30 pm

mavis wrote:I got the care for the blood clot that developed in my stent. I was put on Heparin immediately and now I'm on Warfarin. It was really nice to see several doctors working together for my care.

I am in Ontario.



While I would hope that doctors would do whatever is medically reasonable to help people who develop serious problems as a result of the procedure, I fear that the lack of follow up people are talking about really means "having the procedure done again because it didn't work" or demanding doctors perform risky procedures to remove clots that are maybe best left alone, because otherwise they'll never be "liberated".
concerned
 

Postby thornyrose76 » Sat Feb 05, 2011 6:30 pm

mavis wrote:I got the care for the blood clot that developed in my stent. I was put on Heparin immediately and now I'm on Warfarin. It was really nice to see several doctors working together for my care.

I am in Ontario.


As how it should be, doctor's caring for the sick and CARING, period. One becomes a doctor because they want help those that need their help. To do otherwise is medecine run amok! Nice to see that you were helped!
User avatar
thornyrose76
Family Elder
 
Posts: 462
Joined: Mon Nov 23, 2009 4:00 pm

Follow-Up Dr's Names

Postby HopingHusband » Thu Feb 10, 2011 1:27 pm

If anyone knows of any Dr's names willing to do a follow-up, please let us know.

We are scheduled to go to PI in March 7.

Thank you in advance.

Very much Appreciated.
User avatar
HopingHusband
Getting to Know You...
 
Posts: 17
Joined: Thu Dec 10, 2009 4:00 pm
Location: Calgary, Alberta, Canada

Postby esta » Fri Feb 11, 2011 12:36 pm

FALSE CREEK in vancouver bc is fabulous for follow-up...
PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia
User avatar
esta
Family Elder
 
Posts: 385
Joined: Wed Nov 25, 2009 4:00 pm
Location: Summerland. BC Canada

Postby Cece » Fri Feb 11, 2011 12:49 pm

DrCumming wrote:Hi,

My understanding is that they have been instructed to care for the patient in anyway they need. It doesn't make any sense to me the issues around this. People leave Canada to get bariactric surgery and if they come back home and have problems they get cared for.

I recently spoke to 2 Canadian IR's. One was positive and said they will do whatever needs to be done. The other basically said tough bananas for patients leaving and getting care elsewhere and that he had no intent at all to deal with them. Nice.

Isn't that something. I don't get it either.

I suppose with bariatric surgery there is already well-known follow-up protocol. With CCSVI, there is disagreement over its very existence, disagreement over the important of the jugulars, disagreement over what should be considered a complication and what should be done about it? I remember LR saying that in the UK, if a jugular clots, the standard of care would be to leave it but that they treated hers because it was extensive clotting down the arm.

It is a roller coaster we are on, especially those of us who got on early. The canadian version of the roller coaster seems to be lacking some safety belts...and man what you guys pay per ride....
Cece
Family Elder
 
Posts: 9018
Joined: Mon Jan 04, 2010 4:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service