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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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marcstck
PostPosted: Wed Feb 09, 2011 2:25 pm 
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I think you folks will get a kick out of it…

http://www.wheelchairkamikaze.com/2011/ ... g-red.html

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www.wheelchairkamikaze.com


Last edited by marcstck on Wed Feb 09, 2011 3:53 pm, edited 1 time in total.

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pairOdime
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PostPosted: Wed Feb 09, 2011 2:28 pm 
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I greatly enjoyed the piece Marc....nicely done. You've got my vote:)

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HappyPoet
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PostPosted: Wed Feb 09, 2011 4:41 pm 
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A Must Read!

Marc's newest blog entry is one of his best entries ever. He tells our story like our story really is. From the sadness of cancer patients dying to the funniness of men being "chrome domed and limp schlonged," this paragraph is a wonderful example of Marc's mastery of using emotion in writing:

marcstck AKA Wheelchair Kamikaze wrote:
When it comes to medical research, our society has its collective head up its ass. We have extensively trained and credentialed brilliant minds working on cures for baldness and erectile dysfunction while cancer patients are dying, MS patients are becoming crippled, Parkinson's patients are losing control of their bodies, diabetics are going blind and losing limbs, and Alzheimer's patients are watching the very essence of who they are slip away. Granted, being chrome domed and limp schlonged may indeed be upsetting, but sorry, Buster, get to the back of the line. Oh, but wait, I keep forgetting that making money is the goal here, and aging men will go deep into hock for a head full of wavy hair and a phallus that will spring to life at the drop of a pill.

Thank you, Marc, for capturing so many of my feelings about being a person with a chronic illness. I especially love the paragraphs about neurologists. Terrific work!

You've got my vote, too! :D
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AlmostClever
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PostPosted: Wed Feb 09, 2011 4:59 pm 
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Well done! MS 101 Essential Reading as always!

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If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Cece
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PostPosted: Wed Feb 09, 2011 5:17 pm 
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fantastic as always...
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IHateMS
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PostPosted: Wed Feb 09, 2011 5:30 pm 
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read it yesterday.

it rocked :!: :!:
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concerned
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PostPosted: Wed Feb 09, 2011 5:54 pm 
I read this yesterday as well.


Eloquent and engaging, as always.
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blossom
 Post subject: ccsvi
PostPosted: Wed Feb 09, 2011 7:45 pm 
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as always you have the gift of putting into words what we are thinking and living. noone does it better.
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Trish317
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PostPosted: Wed Feb 09, 2011 7:45 pm 
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Intelligent, articulate, and insightful as always, Marc....
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CaptBoo
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PostPosted: Wed Feb 09, 2011 8:35 pm 
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One of the reasons I discount almost every post made by concerned, lyon and scorpion is that nothing they say relates to the physical and emotional relationship I have with this disease. I truly believe they know nothing about it. On the other hand, while I may or may not agree with everything WK blogs, I have no doubt that he and I share the same disease and have the same single-mindedness in our quest to maximize our quality of life and therefore the quality of life of those who share it with us. Thank you Marc for putting into words the feelings of a lot of us.

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rainer
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PostPosted: Wed Feb 09, 2011 11:27 pm 
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CaptBoo wrote:
One of the reasons I discount almost every post made by concerned, lyon and scorpion is that nothing they say relates to the physical and emotional relationship I have with this disease. I truly believe they know nothing about it. On the other hand, while I may or may not agree with everything WK blogs, I have no doubt that he and I share the same disease and have the same single-mindedness in our quest to maximize our quality of life and therefore the quality of life of those who share it with us. Thank you Marc for putting into words the feelings of a lot of us.


So in order to compliment one person, you have to insult three.
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cah
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PostPosted: Thu Feb 10, 2011 1:01 am 
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Marc, you crushed my hypothesis that a rant in english isn't quite possible without using the f*-word... :lol:

Really like it. If it wasn't for my relatives, your blog is one of the best ways to learn what it really means to have MS.

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scorpion
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PostPosted: Thu Feb 10, 2011 5:44 am 
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rainer wrote:
CaptBoo wrote:
One of the reasons I discount almost every post made by concerned, lyon and scorpion is that nothing they say relates to the physical and emotional relationship I have with this disease. I truly believe they know nothing about it. On the other hand, while I may or may not agree with everything WK blogs, I have no doubt that he and I share the same disease and have the same single-mindedness in our quest to maximize our quality of life and therefore the quality of life of those who share it with us. Thank you Marc for putting into words the feelings of a lot of us.


So in order to compliment one person, you have to insult three.


Not insulted at all Rainer. Sometimes it is hard for me as well not to lash out at the world around me and blame others for not the finding "the cure, not working hard enough, etc, but I take a step back and realize what has happened to me is just the luck of the damn draw.
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hopeful2
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PostPosted: Thu Feb 10, 2011 11:13 am 
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Great rant, Marc. I felt better just reading it!

Patrice
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Drury
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PostPosted: Thu Feb 10, 2011 4:10 pm 
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Brilliant Marc!

Drury
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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