scorpion wrote:Coolcatcarrie wrote:Scorpion - why are you so bothered about trying to prove us positive pro-active go-getters wrong??? I don't understand you at all? Because we have tried ccsvi - we already know we're right!! Haha - what a sausage! Just go dig yourself a hole if that's your attitude? X
What bothers me is seeing people encouraged to get angioplasty 3-4 times and spend $20,000- $30,000 until they see SOME kind of MS symptom improvement. When new people come to this site you want them to believe angioplasty beyond a reasonable doubt improves symptoms of MS however I am sorry but until someone shows me proof that is the case my doubts will continue. Proof, for me, comes from studies showing that CCSVI is more prevalent in MS than in the normal population. Another way to prove that addressing CCSVI is beneficial to MS patients is through long term followup of people who claim they had improvements after angioplasty and sorry this restenosis explanation is not going to cut it. By the way everyone keeps discussing "the proof"people are seeing. How anyone can anyone can make sense out of the countless stories people have posted after their procedure baffles the mind. To say there is some pattern emerging is not true. Some people rise from wheelchairs and run marathons while others notice small improvements in their walking ability after the procedure. Some people do not see results to later. Some people see results than they go away. Some people don't have improvements, than have improvements, than do not again. Some people need three angioplasty procedure to see any improvements. Some people NEVER see improvements. Some people claim to get worse. So what proof and which results??????
I take that response to mean that, despite what you said earlier, you aren't able to supply a link in which scorpion or I stated that improvements after "liberation" weren't real?Coolcatcarrie wrote:Proof is in the results people are seeing, anyway I'll go away my proof and you keep looking for yours.
Lyon wrote:I give up, you're right, just link where scorpion or I told someone that it isn't real to refresh my memory.......with it in mind that saying it isn't proven isn't saying that it isn't real.Coolcatcarrie wrote: - I fail to see what you are achieving by trying to tell us that it's not real???
At that time we didn't call it an agenda but years ago we had a thread like this at thisisms just to let people know where everyone is(was) coming from. Additionally I've done it periodically, especially in the last year or so with the influx of new members.CaptBoo wrote:My agenda is to share information (give and take) with others who have been diagnosed with MS. I am especially interested in sharing information with people who have had their CCSVI treated.
That's an interesting analogy but aside from Colin Rose and MAYBE Mark Freedman, who do you think it pertains to?EJC wrote: Our 12 year old daughter hates green beans, she's never even tried them, but she simply knows they are disgusting and will do her no good whatsoever......ring a bell?
I absolutely do.CaptBoo wrote:so perhaps you can understand my desire to pass that information along to others that may be in a similar situation.
I can easily see why your past partner developed that habit. I'll put it in caps this time.....TELLING YOU THAT YOUR PERSONAL EXPERIENCE CAN'T BE TAKEN SCIENTIFICALLY AS THE GOSPEL (despite the fact that scientifically, the gospel isn't taken as the gospel) SHOULDN'T BE TAKEN AS TELLING YOU THAT YOU DON'T KNOW WHAT YOU'RE TALKING ABOUT.CaptBoo wrote: Mostly, if I say my symptoms have significantly diminished since angioplasty, please don't tell me I don't know what I'm talking about.
That was the best I could to. Interpretation is up to you.CaptBoo wrote:Other than honesty and morality, I guess we're not so different.
Am I reading that right? It seems to say that we are not so different except you are moral and honest and I'm not.
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