Thanks everybody!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Thanks everybody!

Postby marcstck » Mon Feb 14, 2011 5:30 pm

Wheelchair Kamikaze won the "Best Patients Blog" contest. Thanks so much for lending your support, hopefully this next year will have me blogging about lots of good CCSVI news specifically, and about good news for MS in general.

Nothing I'd like better than to change the name of the blog to "Walking Kamikaze"…
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Re: Thanks everybody!

Postby Lyon » Mon Feb 14, 2011 5:58 pm

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Last edited by Lyon on Fri Jun 24, 2011 7:00 pm, edited 1 time in total.
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Re: Thanks everybody!

Postby Vivianne766 » Mon Feb 14, 2011 6:17 pm

marcstck wrote:Wheelchair Kamikaze won the "Best Patients Blog" contest.
...

Nothing I'd like better than to change the name of the blog to "Walking Kamikaze"…


I hope so too.
:)
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Re: Thanks everybody!

Postby marcstck » Mon Feb 14, 2011 6:31 pm

Lyon wrote:
marcstck wrote: Nothing I'd like better than to change the name of the blog to "Walking Kamikaze"…
Hell yeah, even if it all didn't come this year.

Do you ever hear from the NIH anymore?


I haven't heard from the NIH since last summer, but I think I'm going to get in touch with them again soon. Seems that I'm as much of a medical mystery is ever, and now the possibilities of lupus and neurosarcoidosis have been brought into the picture. I'm seeing a rheumatologist on Friday, to check out the lupus possibility. I've tested negative for it before, but I'm told that, much like MS, testing doesn't always tell the whole story.

I had a lumbar puncture several weeks ago, and my CSF is being examined down to the cellular level using flow cytometry and Facscan technology. Hopefully, this will shed some light as to what might be going on in my central nervous system. Luckily, my neuro maintains a state-of-the-art research facility as an adjunct to his clinical practice. Here's a brief description of the flow cytometry process:

http://csf.arl.arizona.edu/index.php/se ... rting.html

Seems that my pituitary may have been attacked by some disease process, which isn't typical for MS. This has resulted in a cascade of endocrine problems over the last several years, which suck.
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Postby KDGO » Tue Feb 15, 2011 7:18 am

Marc
I'm so happy for your win...although for me and I'm sure many many others you are already a winner for your fabulous ability with words and film. Best of luck in your next series of tests.
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Postby HappyPoet » Tue Feb 15, 2011 8:17 am

Hi Marc, this is my post of yesterday morning on your thread that announced the contest. You'll also find other congratulations waiting for you there. Best of luck with your upcoming tests; it must be such a wonderful feeling to have 864 people pulling for you! :D

http://www.thisisms.com/ftopicp-153933.html#153933

HappyPoet wrote:CONGRATULATIONS, Marc!!

Best Patient's Blog of 2010 (Poll Closed)

Brass and Ivory 35.94% (592 votes)

Dean's Stroke Musings 2.06% (34 votes)

Diabetes Mine 7.53% (124 votes)

Dispatch From Second Base 2% (33 votes)

Wheelchair Kamikaze 52.46% (864 votes)

Total Votes: 1,647
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Re: Thanks everybody!

Postby THEGREEKFROMTHED » Tue Feb 15, 2011 2:16 pm

marcstck wrote:Wheelchair Kamikaze won the "Best Patients Blog" contest. Thanks so much for lending your support, hopefully this next year will have me blogging about lots of good CCSVI news specifically, and about good news for MS in general.

Nothing I'd like better than to change the name of the blog to "Walking Kamikaze"…


Congrats Kazmo, well deserved. Now if you would stop eating so many damn knishes maybe you would feel better?
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Re: Thanks everybody!

Postby David1949 » Tue Feb 15, 2011 7:58 pm

marcstck wrote:Wheelchair Kamikaze won the "Best Patients Blog" contest. Thanks so much for lending your support, hopefully this next year will have me blogging about lots of good CCSVI news specifically, and about good news for MS in general.

Nothing I'd like better than to change the name of the blog to "Walking Kamikaze"…


I hope so too and I hope one day we can change the name of the forum to "Thiswasms".
:)

Congrats on winning the contest.
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Re: Thanks everybody!

Postby prairiegirl » Wed Feb 16, 2011 4:06 pm

marcstck wrote:Nothing I'd like better than to change the name of the blog to "Walking Kamikaze"…

I had a lumbar puncture several weeks ago, and my CSF is being examined down to the cellular level using flow cytometry and Facscan technology. Hopefully, this will shed some light as to what might be going on in my central nervous system.


Best of luck to you with these tests, Marc!
And congrats on your well-deserved win!
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