Nothing I'd like better than to change the name of the blog to "Walking Kamikaze"…
Hell yeah, even if it all didn't come this year.
Do you ever hear from the NIH anymore?
I haven't heard from the NIH since last summer, but I think I'm going to get in touch with them again soon. Seems that I'm as much of a medical mystery is ever, and now the possibilities of lupus and neurosarcoidosis have been brought into the picture. I'm seeing a rheumatologist on Friday, to check out the lupus possibility. I've tested negative for it before, but I'm told that, much like MS, testing doesn't always tell the whole story.
I had a lumbar puncture several weeks ago, and my CSF is being examined down to the cellular level using flow cytometry and Facscan technology. Hopefully, this will shed some light as to what might be going on in my central nervous system. Luckily, my neuro maintains a state-of-the-art research facility as an adjunct to his clinical practice. Here's a brief description of the flow cytometry process:
http://csf.arl.arizona.edu/index.php/se ... rting.html
Seems that my pituitary may have been attacked by some disease process, which isn't typical for MS. This has resulted in a cascade of endocrine problems over the last several years, which suck.