Conflicting CCSVI Data

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Conflicting CCSVI Data

Postby scorpion » Wed Feb 16, 2011 5:00 pm

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Postby garyak » Wed Feb 16, 2011 5:14 pm

burks is a partner in crime

Dr. Burks disclosed financial relationships with Acorda, Allergan, Avanir, Bayer, Biogen Idec, Novartis, and Serono.
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Postby scorpion » Wed Feb 16, 2011 5:58 pm

garyak wrote:burks is a partner in crime

Dr. Burks disclosed financial relationships with Acorda, Allergan, Avanir, Bayer, Biogen Idec, Novartis, and Serono.


8O Nevermind. Disregard the entire article!!!!!!!!!!
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Postby MrSuccess » Wed Feb 16, 2011 6:11 pm

I have.



Mr. Success
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Postby scorpion » Wed Feb 16, 2011 6:13 pm

MrSuccess wrote:I have.



Mr. Success


:D
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Postby Jugular » Wed Feb 16, 2011 6:21 pm

"Neurologists believe the interventionalists are overstating the possible value of CCSVI and that commercial interests are overriding scientific inquiry," according to Dr. Burks, a neurologist and clinical professor of medicine at the University of Nevada, Reno. Patients, armed with anecdotal evidence downloaded from the Internet, are certain that CCSVI surgery is the miracle they’ve been waiting for and perceive the hesitancy of U.S. and Canadian neurologists to embrace the treatment as evidence of a possible conspiracy with pharmaceutical companies who stand to lose billions of dollars if the surgery becomes a first-line treatment, he said. Further, he noted, advocates of CCSVI claim that neurologists who refuse patients’ demands for diagnostic testing and surgical referral for CCSVI are jeopardizing the safety of those patients, who are traveling to foreign countries such as Poland, Bulgaria, Mexico, Costa Rica, and India to get the care that they cannot receive in North America.


To sum up, neurologists are objectively neutral about CCSVI and have only their patient's best interests in mind in rejecting this radical unproven treatment until better research is performed. Those performing the procedures, on the other hand, are only in it for the money and their supporters are comprised of conspiracy theorists, internet bloggers, and nut jobs
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Postby Salvatore24 » Wed Feb 16, 2011 6:41 pm

*Yawn*

Any chance of finding some neutral articles scorpion?
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Postby jackiejay » Wed Feb 16, 2011 7:20 pm

didn't realize this burks was in "financial relationships" with 6 ...count them 6... pharmaceutical companies.....you know in his heart of hearts that he is hoping for negative data....what a joke.
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Postby rainer » Wed Feb 16, 2011 7:26 pm

Because if a researcher supports CCSVI, this forum is just as rigid about examining their associations with drug companies. :roll:
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Postby Cece » Wed Feb 16, 2011 7:27 pm

Multiple sclerosis patients and endovascular interventionalists were elated when Italian researchers reported in 2009 that they had found evidence of chronic cerebrospinal venous insufficiency in nearly every MS patient they had studied and that in many cases, balloon angioplasty and sometimes stent placement of central thoracic veins reduced or eliminated signs of the disease.

IRs were elated in 2009? Nope...that was when we couldn't get treated for trying...even in Feb, 2010, I had an IR telling me this was junk science.
Further, he noted, advocates of CCSVI claim that neurologists who refuse patients’ demands for diagnostic testing and surgical referral for CCSVI are jeopardizing the safety of those patients, who are traveling to foreign countries such as Poland, Bulgaria, Mexico, Costa Rica, and India to get the care that they cannot receive in North America.

Who needs a neurologist's referral? I sure didn't.
Both camps point to the much publicized case of a Canadian MS patient who traveled to Costa Rica for jugular vein angioplasty and died from a ruptured vessel as evidence that supports their respective positions, said Dr. Burks.

This feels like politicizing his death.
Additionally, "we need to establish a CCSVI patient registry that documents outcomes and adverse events, as well as other relevant data, and disseminate that document widely to all groups," Dr. Burks said. Doing so will go far toward mending the fractious community and directing energy toward optimal patient care, he stated.

I am 100% in favor of registries of all kinds.

scorpion, thanks for posting this, I might not agree with everything that's said but I like to know what is being said.
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Postby CureIous » Wed Feb 16, 2011 7:56 pm

There doesn't appear to be any neuros left in the entire world who aren't vascular insufficiency experts when the numbers from imaging studies are that tantalizing low hanging fruit they are desperate for.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby scorpion » Thu Feb 17, 2011 4:21 am

Just a fyi this article was not posted here to change any of the mind's of the people who posted above. If some of you actually believe that neurologists are worried CCSVI is going to put them out of business more power to you.


To sum up, neurologists are objectively neutral about CCSVI and have only their patient's best interests in mind in rejecting this radical unproven treatment until better research is performed. Those performing the procedures, on the other hand, are only in it for the money and their supporters are comprised of conspiracy theorists, internet bloggers, and nut jobs


You said this Jugular, not me. In fact generally no I do not think this is the case at all. As for nut jobs ,well there are some things I just refuse to discuss on the internet!!!
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Re: Conflicting CCSVI Data

Postby Lyon » Thu Feb 17, 2011 6:12 am

..
Last edited by Lyon on Fri Jun 24, 2011 6:57 pm, edited 1 time in total.
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Postby erinc14 » Thu Feb 17, 2011 6:49 am

it's a myth that ms is an autoimmune disease and it took a vascular surgeon to show this not a neurologist and now they're so hostile they're practically foaming at the mouth .
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Re: Conflicting CCSVI Data

Postby Cece » Thu Feb 17, 2011 6:51 am

Lyon wrote:
scorpion wrote:http://www.internalmedicinenews.com/news/neurology/single-article/conflicting-ccsvi-data-lead-to-call-for-new-research-united-message/713c8924c8.html

I've never seen anyone so staunchly held to a statement when they haven't said a word scorp! This is a first!

NEW thisisms POLICY!: If you're going to post an article at thisisms make sure that you agree with every word of it and are willing to defend it to the death!

dear Lyon, your sarcasm is delightful. And I do not mean that sarcastically.
t's a myth that ms is an autoimmune disease and it took a vascular surgeon to show this not a neurologist and now they're so hostile they're practically foaming at the mouth .

My ms specialist foamed at the mouth, absolutely. It will be interesting, our next appointment, now that I've had the procedure.
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