Loobie wrote:I'm thinking about getting imaged again by one of the docs that has done well over 500 of these now in hopes that whatever flow problems I have (if you remember, at the time, we were just looking for stenosis) can be corrected if any.
walcat wrote:Loobie - Thanks for the update! It's thanks to all you pioneers I was tested and treated for CCSVI, my life is so much better. I enjoying reading how everyone is doing. My doctor told me he's discovering it's the azygos that affect the legs. I'm now 5 mos. post.
Loobie wrote:I also know that the power of HOPE is a very, very powerful thing indeed. You are doing something proactive for your disease and you're going to feel hope where you may have been hopeless before.
... so that's my 18 month update; doing pretty good, but not MS free. There is simply no 'mechanism' yet for any of us to say "yep, I know it stopped it and I'm done with MS". If there was, I'd say it, but I just have to be honest.
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