Very nice to read your update, I'm sorry to hear about the weakness in your left leg, but, like you I also experience overall improvement in stamina and lower body strength from the Stanford stents. I agree that the shoulder problem related to accessory nerve impingement has been and still is a bitch to work through, I'm still trying to find the right movements to reverse atrophy in my right shoulder, and I am still not able to exercise like I used to because of this. I'm currently working with a pilates physical therapist who is teaching me how to use other muscles to do the things I used to (sort of).
As you said, hope is invaluable, I'm still on the quest for a cure, additional symptom relief, and a way to slow-down or stop neurodegeneration. I start a 6-month trial of the jellyfish protein apoaequorin as part of the MS Hope Trials tomorrow morning (why not, I didn't experience a significant improvement in brain fog or memory problems from the stents), and I anxiously watch for updates about helminths, I also keep watch for another CCSVI opportunity to participate in (JNI's CCSVI evaluation caught my eye). I got some benefit from the Stanford CCSVI procedure, but I'm not done yet, and I agree with your point and concern about the azygos.
I'm glad to hear you've got a puppy and of your quick turn-around for SSDI. My yorkipoo just had his first birthday, and is a great companion and walk instigator. And, he's smarter than I am, which is sometimes useful.
Update 02/26/2011 - Stopped apoaequorin trial participation on physician advice yesterday (related to concern about calcium channel interaction with another med I currently take). Will be starting low-dose selegiline and
vinpocetine along with additional supplements to slow neurodegeneration.
Last edited by Quest56
on Sat Feb 26, 2011 1:47 pm, edited 1 time in total.
CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
Former Ampyra User
Regular Botox Bladder Injections
300mg d-Biotin / day