Recommended diet for CCSVI Patients?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Recommended diet for CCSVI Patients?

Postby dc10 » Sat Feb 19, 2011 4:19 am

ve have been liberated twice (balloon angio of IJVs and Azy),

i was curious what diet is recommended for CCSVI patients>

i read the ccsvi.org site 'helping myself' section and it promotes avoiding red meat and procesased foods/fats

but as the site doesnt mention it, does anyone see a problem with consuming Dairy and Gluten?

thanks
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Re: Recommended diet for CCSVI Patients?

Postby bigfoot14 » Sat Feb 19, 2011 4:47 am

dc10 wrote:i read the ccsvi.org site 'helping myself' section and it promotes avoiding red meat and procesased foods/fats

but as the site doesnt mention it, does anyone see a problem with consuming Dairy and Gluten?

thanks


My wife is having her first procedure on Wed. and we have been trying to get healthier in our eating ....we've given up sugar and caffeine, cut down on salt, I cook everything fresh so processed foods/fats aren't a problem

But if you try to take bread, dairy, and red meat away from my wife, you better bring a gun and some large friends to help
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Postby dc10 » Sat Feb 19, 2011 12:47 pm

thanks ,
does anyone else have opinions on diet for CCSVI patients?
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Postby Coolcatcarrie » Sun Feb 20, 2011 12:09 pm

Hi, im not very good at putting the link in, but on page 2 of this forum pcakes started a topic called quick n easy Vasoconstrictive recommended diet, or something like that. I found it very helpful!
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MY opinion - I have had the procedure and follow a low Iron

Postby Gordon » Tue Feb 22, 2011 12:11 pm

Have a look at this please

http://en.wikipedia.org/wiki/File:Multi ... HO2002.svg

and this.

http://www.who.int/vmnis/anaemia/preval ... naemia.pdf

In my opinion It is the iron in our diets combined with CCSVI that causes MS.

Of note is this country, it sticks out like a sore thumb.... and is a paradox

http://geography.about.com/library/cia/ ... guiana.htm

Why do they have such a prevalence of MS when the others surrounding countries do not ???

The Geology of this nation tells the story, High in water soluble iron it looks like, and it gets into all the foods, plants etc, ( still researching). Friends of mine are from the area have have extremely high levels of iron in their blood that has alarmed their Canadian Doctors.

If you draw a venn diagram and assign Stenosis to one circle, Time to the other and Diet / iron to the third the intersection of these produces MS

The larger any one of the circles is the greater the chance of having MS. If you do not have CCSVI then you will not get Clinically defined MS. If you have a diet with no iron, you will not get MS. (this is impossible though as Iron is in everything). Time is time and you cannot eliminate that.

I have reduced iron in my diet. I have reduced Vitamin C in all forms completely becuase

http://www.ncbi.nlm.nih.gov/pubmed/3304065

Ann N Y Acad Sci. 1987;498:324-32.

Is there a physiological role of vitamin C in iron absorption?
Hallberg L, Brune M, Rossander-Hulthén L.

Nonheme iron usually constitutes more than 90% of the dietary iron. Its absorbability is a resultant of the balance between factors enhancing and inhibiting the absorption. Ascorbic acid is the most potent enhancer, and is the same for native and synthetic AA. The enhancing effect is strongly dose related (log dose/effect), and is different for different meals probably mainly due to varying content of inhibitors in the meals. AA also increases the iron absorption from simple meals with no known inhibitor, probably because AA impairs the formation of unavailable iron complexes with ligands normally present in the gastrointestinal lumen. The effect of AA is so unequivocal and marked that it must be considered as a physiological factor essential for the absorption of dietary iron.

PMID: 3304065 [PubMed - indexed for MEDLINE]
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Postby tzootsi » Tue Feb 22, 2011 1:21 pm

Have you been to direct-ms.org? This is THE site to go to for tons of info on MS diet, CCSVI, research papers, etc
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Postby bluesky63 » Tue Feb 22, 2011 1:50 pm

Congrats on your procedure(s). I hope you are experiencing relief from symptoms. :-)

You've gotten some good info here about diet. Direct MS will be interesting reading for you.

But I strongly believe that before anyone starts a gluten-free diet they should get tested for celiac disease. Celiac disease/gluten intolerance is one of the differential diagnoses for MS, causing many of the classic "MS" symptoms, and even causing lesions on MRI; very few people get tested for it. Celiac disease is fairly common. I often wonder if some of the people who improve on a GF diet actually have undiagnosed celiac disease, which would account for their "MS" recovery.

It's easy to get tested -- a simple blood test will do, the "celiac panel."

So please, anyone, before starting on a GF diet and making it impossible to test for celiac disease, get yourself tested. :-) OK, over and out for now. :-)
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Postby Daisy3 » Wed Feb 23, 2011 1:08 am

Bluesky,

We did a normal intolerance test that covered gluten. That should be sensitive enough right? My hubby was not shown to be allergic to gluten but allerhic to milk!

Our doctors are not the most helpful of people when it comes to these tests!
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