This Is MS Multiple Sclerosis Community: Knowledge & Support

Neurologists are brilliant diagnosticians. That’s their strength and, unfortunately, I think they’ve been wooed into the easy research funding of pharmaceutical research.”

That explains the reluctance and even outright dismissive approach Canadian neurologists have taken toward the “liberation” procedure for multiple sclerosis, he says.



Read more: http://www.thestarphoenix.com/health/pa ... z1EPxNcvH9

I am sure some neurologists are brilliant. I am also sure most are not. In any field, there's only some that are brilliant, most are no different than you or me.

by all three veins in the neck, he means two jugulars in the neck and one azygous nowhere near the neck (another journalist error, not Dr. Code himself)

Total agreement here.


RCTs may still be too soon and ethically murky but total agreement that this procedure should be available on a pay basis in Canada by now.

As a (reasonably) young woman, not only does the disease take you away from family and work, but the treatment brings you back. Just saying, anecdotally and all, and it's not true for everyone, different lesion loads or years of damage, but what a difference....

Actually, that aspect has *not* changed. The azygous (I think Dr. Code corrected it to azygos) has always been worked on, since the beginning. It is more beneficial to treat and restenoses less. Maybe at the beginning it was being forgotten by the press because jugulars are more pronounceable. I don't think the interventionalists were forgetting. I don't think we can treat spinal veins.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

I used to be all for clinical trials but at this point I am not sure what they will accomplish. If the trial results are not favorable to the CCSVI crowd they will quickly be dismissed as biased or as a result of faulty testing so at this point they may just be a waste of money. Maybe they will be valuable to people with MS who are still on the fence and are undecided about getting the treatment but to others, unless the results are favorable, the trials will be nothing more than a "Roseian" endeavor.

..

Got to spend a couple of hours with Dr. Code yesterday, he stopped at our home while in southern California. We spoke about medical research. In this article, he was specifically referring to decades of pharmaceutically funded research that have provided MS specialists a wonderful income, and provided funding for their research facitlities at universities and hospitals. It's been a very adventagous relationship for researchers, MS specialists and pharma. Understandbly (to anyone who doesn't have MS, or love someone with MS), they are reticent to see this go.

Clinical trials involving testing and treatment for CCSVI are at BNAC, Albany (2), and starting at Stanford/Miami Baptist this week (finally, woot!) The doctors doing these trials had to find independent funding, no pharma money, no MS Society money, no NIH money. Not an easy task. I think I'll look to the vascular doctors who treat central venous stenosis and superior vena cava obstruction to report back on their independently funded trials.
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS