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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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zanne10000
PostPosted: Wed Feb 23, 2011 11:11 am 
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Hi Everyone!

I live in Washington State and a local credit uni0n is sponsoring a contest called Cartwheel for a Cause. I had to submit a 60 second video about a charity I wanted to support. I chose The Hubbard Foundation and if my video receives the most votes, they receive a $5000 donation!

I went there a week ago and was treated one week ago today for blocked right and left internal jugulars and webbing in my azygous. I feel great!

Here's a link to the voting if you'd like to see my video (#16) and vote for it! http://www.veritymom.com/cartwheel-for-a-cause/


Thank you all!

Suzanne Perkins :D [/url]


Last edited by zanne10000 on Wed Feb 23, 2011 11:55 am, edited 2 times in total.

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daniel
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PostPosted: Wed Feb 23, 2011 11:44 am 
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voted!
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zanne10000
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PostPosted: Wed Feb 23, 2011 11:53 am 
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Thanks so much Daniel! Feel free to share this with any of your friends too! I love the Hubbard Foundation because they have started a Patient-Centric Registry, so that no matter where you go to get treated, you can give a form to your IR to fill out and they will collect data on you. There are so many people getting this procedure and yet no one has an accurate count, so the more numbers we can get, the more data we can throw at the neurologists! (even if it's "anecdotal" :) )
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AlmostClever
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PostPosted: Wed Feb 23, 2011 12:15 pm 
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Done!

Hope your recovery is going well!

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If you can't explain it simply, you don't understand it well enough. - Al Einstein
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marcstck
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PostPosted: Wed Feb 23, 2011 12:40 pm 
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Voted!

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Marc
www.wheelchairkamikaze.com
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Trish317
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PostPosted: Wed Feb 23, 2011 12:48 pm 
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cheerleader
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PostPosted: Wed Feb 23, 2011 12:48 pm 
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Hey Suzanne!
Great cartwheel! Love that you're working to help the Hubbards. I'll post over on Facebook, maybe we can give you a "bump" :)
keep healing, keep moving-
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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zanne10000
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PostPosted: Wed Feb 23, 2011 12:53 pm 
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Thanks, everyone, and Marc, I got goosebumps when I saw you responded! Your blog is THE BOMB! (is that passe'-- can't figure out how to do accents on here!).

I'm doing great-- feeling good, although I guess like everyone, I keep waiting for the other shoe to drop and every little thing has me thinking that I've restenosed!

:P
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thornyrose76
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PostPosted: Wed Feb 23, 2011 1:14 pm 
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Voted and good luck! :D
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Cece
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PostPosted: Wed Feb 23, 2011 1:39 pm 
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Voted!
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Only the first vote will be counted per legitimate email address.
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AMJ
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PostPosted: Wed Feb 23, 2011 5:01 pm 
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voted :)
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PointsNorth
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PostPosted: Wed Feb 23, 2011 5:11 pm 
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VOTED.

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blossom
 Post subject: ccsvi
PostPosted: Wed Feb 23, 2011 11:03 pm 
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VOTED!!
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CD
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PostPosted: Wed Feb 23, 2011 11:26 pm 
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Suzanne I voted for you too. Good luck!
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bruce123
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PostPosted: Thu Feb 24, 2011 6:26 am 
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Voted.
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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