I was thinking about your son... May I ask how old he is? I may be able to help you, but I'm kind of flying blind, here. Has he had an MRI of his head and neck? If so, could you show me an image that goes right down the middle of his head, top to bottom, between the eyes, if you will?
Is there any chance he has EDS (or you, too, for that matter?) SO MANY of us are never diagnosed, and I even missed it myself on my own body the first time through. I'm happy to try to talk you through that if you would like.
If your son is showing brain fog, likely he is not getting enough oxygenated blood into his head. Two "quick and dirty" things you can try are 1) a soft cervical collar for night time (just trim it down with scissors to fit him, and put a cute sock on it to make a game of it -- you can buy them at the drug store). This may help his drainage at night. During the day, I'd try an abdominal binder on him. You can usually get one at the drug store that are too big. Poo. I go on line and order a small one, and some of them can be made as small and tight as you need to make them. See if that doesn't help him when he is up and around.
Depending on his age, other symptoms, etc., I'll have more advice for you, OK?
Both of my kids are affected (and one of our dogs!), so I've got lots of ideas, especially if he is too young for the angioplasty. BTW, my son went through angioplasty just beautifully. He still gets fatigued, but the endo. wants to wait until summertime to work on his hormones.
We have "endocrinology gone wild" in our family (likely due to pressure on our hypothalamus), but mine is finally settling down after a few months on Diamox. I had episodes of horrible acne that came and went, facial hair (ewww..), my weight went up and down for no reason, my hair had times of being a brillo pad, only to go away later, I had episodes of EXTREME hair loss, that stopped and started for no apparent reasons, etc. Interestingly, my periods stopped (no secrets with me, I hope it's OK to share all), BUT after I was on the Diamox for about a month, my periods returned. Amazing, huh? I was also almost bipolar, and that went away, too (praise God, says my hubby).
Puberty is already "endocrinology gone wild", but we want our kids to go through the 'hell that is puberty' in the normal way, if you get my drift.
If you are comfortable with this, lay it on me. All of his symptoms, OK? We'll see what we can piece together for him, bless his heart, and yours.
I'll walk this journey with you, if you will have me.
Special interest in "brain drains" and how they affect numerous conditions, including MS, Ehlers-Danlos, Parkinson's, Alzheimer's, etc. I am a therapeutic optometrist on professional disability with EDS, POTS, CCSVI, mast cell disea