This Is MS Multiple Sclerosis Community: Knowledge & Support

However, both of mine took several hours each.

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<div>There be no dragons   ...Reese Palley</div>

I agree about the time, although I think a thorough Zamboni protocol ultrasound is a good idea for follow-up comparisons, particularly for the information it gives about the verts and the epidural veins, to try and infer about the azygous.

For me, I had the Zamboni protocol ultrasound at American Access Care in Brooklyn as well as an ultrasound by Dr. Cumming here in MN a few months earlier. For the Zamboni protocol one, the tech started with the jugular down at the base (J1) and immediately discovered reflux and visualized a bad valve. I'd met the criteria for CCSVI at that point, about 2 minutes or less into the exam. It went on for another hour or thereabout.

With Dr. Cumming, I cannot remember which came first, but there was one jugular which he immediately centered in on the problem and the other in which he had to investigate a bit longer. He had only done a couple CCSVI ultrasounds before mine, this was back in November.

CCSVI was obvious on both of mine.

yes, Dr. Cumming, he was diagnosed with CCSVI...3/5 of the criteria.

CD, to obtain the most accurate results using the Zamboni protocol we use an Esaote system that has CCSVI specific software and a special multi-directional probe. We also have special calibrated presets for use in evaluating the veins.

Lanie

Civickiller,

I perform the test at CCSVI-Atlanta.

Lanie

Formyruca,

We have evaluated hundreds of people for CCSVI - approximately 98% of patients meet 2 or more out of the 5 criteria for a positive diagnosis. I don’t have access to the full breakdown of the data.

Lanie

Jackiejay,

The Zamboni protocol is approximately 2 hours with the patient in both the supine & seated position. The exam evaluates the full internal jugular, valve, deep cerebral and vertebral veins bilaterally.

Lanie

Lanie,

He was tested using the Zamboni protocol (seated and supine positions) at the Barrie clinic in Ontario....criteria met for CCSVI..3/5....perhaps they have a speedy way of doing it...

Jackie

Jackiejay,

Most of our patients travel a great distance to see us and all of our patients deserve the most accurate Doppler exam. If we did a 20 minute study it would not be enough time to thoroughly evaluate the valves, deep cerebral veins, pathology and anomalies.

Lanie

Lanie, what are the challenges with measuring the deep cerebral veins? Did it take you a while to become consistent at those? Dr. Sclafani has just mentioned that the consensus between Dr. Zamboni and 47 experts at the ISNVD conference these last few days was that the Zamboni criteria will now be reduced to just four instead of five! They are dropping the deep cerebral veins portion. Will this change what you do at CCSVI Atlanta?

Cece,

We understand the difficulty that Songraphers can have who are not properly trained or do not have the proper equipment to evaluate the deep cerebral veins (DCVs). The BNAC training was valuable plus I had 3 additional weeks of training to become proficient at the complete protocol including evaluating the DCVs. We feel it is still important to evaluate the DCVs to assess for reflux from IJV.

Lanie

Azygos cannot be properly evaluated by Doppler. Reflux in the vertebral veins is relatively rare, but problems with the azygos are common. If there are collaterals coming off the vertebrals, then that is often indicative of a problem with the azygos, but the converse is not true. A person can have a problem with the azygos and still not show a problem with the vertebral veins - actually that is often the case.

Although Doppler CCSVI evaluations do not scan the azygos, lumbars, iliacs, renals, etc. it is a very effective screening tool for CCSVI, and an experienced IR will still check the major veins in the chest and lumbar/pelvic areas during the procedure.

although my son's doppler ultrasound was fairly quickly done...one of his qualifying criteria was "abnormal flow in the deep cerebral veins"...

20 minutes for CCSVI doppler?! Just doing the deep cerebral veins for reflux takes up to 20 minutes by itself. As a sonographer certified in this exam I want to share my experience so patients know what to expect from their testing facility to get an accurate diagnosis. I am happy for you that yours came back in your favor but some do not and that is most likely because they were not fully evaluated.

should I assume that his exam wasn't done properly.....