Everything needs to be put in context. Each treatment and way of managing MS needs to be put in context. When I was first diagnosed, the neurologist impressed upon me that a person with MS is in a state of emergency and that damage could be happening constantly whether or not we saw it constantly.
Angioplasty -- risky, effective compared to . . .
I can't think right now but that's a quick list
I was told it would be "irresponsible" for me to NOT use one of the most harsh treatments and treat my MS aggressively. This meant that every three weeks I risked severe side effects and experienced several, with the complete encouragement of my medical team. Finally I had a life-threatening side effect and had to stop.
So, angioplasty, risky compared to what?
I'm not trying to be inflammatory at all, just analytical. Hard to convey online.
L, I completely understand! I feel frustrated thinking that if Dr. Dake had been allowed to treat that final handful of people (me among them) I would be MUCH more functional! I lost so much during those months!
But it is definitely true that if a person can take a chance on waiting, then more and more information emerges on best practices.
editing: OK, I am going to risk looking like a complete fool here but I am trying to illustrate a point. Please help me out, someone like NHE!
I lost my math to a lesion somewhere along the way!
So the global risk of MS is something like one-tenth of one percent. But if you have a parent with MS, your risk goes up to one percent. That sounds just awful -- your risk is, say, a hundred times higher if you have a parent with MS. But it still means you are 99 percent likely to NOT have MS. MOST people do not have MS!
So if I thought about this with regard to a procedure like angioplasty -- and mind you I am not saying this is the case, I am just trying to make a possible analogy or what-if scenario -- suppose for the global population there was a very low risk, and for people with MS the risks were higher -- I believe we would still have an overwhelmingly good chance of avoiding complication if we went to doctors who were following best practices. I am amending this to follow Cece's clarification that I mean current best practices -- the best info we have at the time. The majority of people do not have complications.
You know, you can tell I am having the most trouble thinking when my posts are the longest.