Cece wrote:I have a question, for those with freezing cold feet pre-procedure and warm feet post-procedure! Did it happen right away, like that same day? I've had improvements I didn't expect, but this is one I was expecting after all the reports of it, and this is one I didn't get. My feet are freezing right now, as if they have an ice pack deep inside. Are there people who still have freezing cold feet post-procedure? Or who experienced gradual warming?
CCSVIhusband wrote:As I recall Cece - your azygous wasn't treated by Dr. Sclafani?
EJC wrote:Emma's feet warmed up the same day, along with her hands.
However they now ebb and flow with heat and cold, but they aren't the stone cold ice blocks they were pre procedure.
He hands went blue yestersday, which at night was followed but a lot of arm and leg pain.
Today her right hand is much warmer than her left hand.
Today Emma undertook her Liberation procedure at the Edinburgh Clinic in snowy Scotland.
As I type this she is still in the recovery room but I've already had a chat with the surgeon, Dr Reid.
They found the following:-
Right jugular - malformed valve, opened using a baloon - normal flow restored.
Left Jugular - malformed valve, plus the entire jugular vein itself malformed, at least half the normal diameter. Dr Reid treated this vein but was reluctant to overtreat, flow has been increased but not to the rate preferred. This is a little wait and see. It's also difficult to predict how this particualr vein would effect things as technically it's not "stenosed" but has actually formed at a reduced size than would normally be expected.
Azygos - A very significant narrowing found at the top of the azygos, again this was balooned and the flow relief in this particular area was not far off "removing a cork from a bottle" - this was quite significant. The dramatic flow change could not be overstated enough by Dr Reid.
We have yet to have another chat with the surgeon this afternoon, I will take notes and post more information as I get it. I'll also post updates initially on a daily basis noting any improvements the Emma has.
All of the malformations found are considered congenital, although this can only be summised rather than being absolute fact it is a reasonable assumption in the eyes of Dr Reid.
I have my fingers crossed.
Emma decided this morning to stop injections of Copaxone.
The procedure itself took around 90 minutes. Follwed by a further 30 - 60 minutes in recovery depedning on the amount of anesthetic required.
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