WinnipegGirl_83 wrote:Thanks for the encouragement. You guys are wonderful.
CD- After the procedure I took a big honkin' Plavix pill but now I am on 75 mg for 30 days plus baby aspirin too. I hope I will see some more improvements but if I don't get worse that would be the biggest prize. Have you had the procedure already? once? twice? how did it go?
WPGirl, I had the procedure twice. The first time my stent clotted. Two days later an ultrasound had showed no flow.
On the third day I had another Venogram and Angioplasty. This time he broke up the clots and put in two more stents because at C1 it showed a flap that would not go away with ballooning, causing reflux, plus the clots, and thus no downward flow, only tons of collaterals. Then I had flow and some tiny clots. Empirically being treated with Warfarin now.
Very disconcerting to say the least. I know how you feel WP Girl. But I still have "hope" no matter what. "It ain't over 'til the fat lady sings."
I think a bone in my neck held it tight or was pushing against it. I don't know. I go soon for my three month check up, I'll let you know. I haven't had the neck pain, back of head pain, or shoulder pain, since he put in the last two stents in.
I was on Lovenox shots and Warfarin the second time. The first time only Plavix, no Aspirin, which I think is important to rid the vein of inflammation.
Inflammation that has to occur, in the ballooned vein, and this can lead to scaring and major blockage. JMO
Aspirin is great, I wish I had that added to my Warfarin now.
I really think getting rid of the inflammation plays a big, big part in healing the vein well inside.
One day Aspirin given alone after the CCSVI procedure may be the answer, who knows? It prevents heart attacks and strokes, and damage if taken right away post stroke, etc.
Give it time to heal and I pray you will have some improvements this time. I heard people see improvement up to 18 months down the road. You never know.