Chicago-March 29th--CCSVI Alliance Symposium

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Chicago-March 29th--CCSVI Alliance Symposium

Postby cheerleader » Fri Mar 04, 2011 11:25 am

Tuesday, March 29, 2011 6:30-9:00pm
Hyatt Regency, Chicago

CCSVI Alliance presents an Educational Symposium
Dr. Michael Dake--moderator with a panel of eight experts
Further details to follow--
Last edited by cheerleader on Thu Mar 24, 2011 8:54 pm, edited 1 time in total.
Husband dx RRMS 3/07
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Postby Cece » Tue Mar 08, 2011 9:07 am

Come and hear leading medical and scientific professionals discuss current key questions and concerns related to Chronic Cerebrospinal Venous Insufficiency (CCSVI) and Multiple Sclerosis (MS). The multi-disciplinary panel includes:

Michael Dake, MD -- Thelma and Henry Doelger Professor (III), Department of Cardiothoracic Surgery, Stanford University

Bulent Arslan, MD -- Associate Professor of Radiology, University of South Florida

E. Mark Haacke, PhD -- Director of MR Facility, Wayne State University

Ziv Haskal, MD -- Professor of Radiology and Surgery Chief, Vascular and Interventional Radiology, University of Maryland

Lindsay Machan, MD -- Radiologist, Vancouver Hospital & Health Sciences Centre, Vancouver British Colombia, Canada

Donald Ponec, MD -- Interventional Radiologist, Director of Interventional Radiology, Tri-City Medical Center - California

Salvatore Sclafani, MD -- Interventional Radiology & Vascular Radiology

Gary Siskin, MD -- Vascular and Interventional Radiology, Albany Medical Center

The panel will also take written questions from the audience. Contact deborah.huntermills@ccsvi.org with any questions about the event or registration. Hope to see you there!


You can register here: http://tinyurl.com/63d5vwq
Quite a line-up!
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Postby cheerleader » Tue Mar 08, 2011 12:14 pm

Here's the official invitation---

Hope lots of Chicago area people can make it. The event is free of charge, and will be very enlightening.

link to invitation

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Postby ozarkcanoer » Thu Mar 10, 2011 7:38 pm

My husband and I are coming !!! We are taking the train from St Louis to Chicago. I will be having my second CCSVI procedure on March 16th in Baltimore and my IR, Dr Ziv Haskal, will be part of the roundtable. I hope to meet some of my online friends in Chicago too !!! Thanks CCSVI Alliance for hosting and planning this event.

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Postby cheerleader » Fri Mar 11, 2011 8:49 am

So glad you are coming, OC! It will be a terrific event--
CCSVI Alliance is working hard to keep the doctors talking, the studies coming, and the progress continuing.

The Tampa event was a huge success--lots of new doctors (neurologists and vascular) learned about CCSVI from the original investigators, and are now going ahead with their own studies. And the patients got to meet each other and spend a wonderful weekend together.

This is truly a grassroots effort. We're thankful for all the support.
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Postby cheerleader » Thu Mar 24, 2011 8:56 pm

UPDATE: The CCSVI Alliance Roundtable Discussion on March 29th 6:30-9pm in Chicago will include panelist,
Dr. Avertano Noronha, Associate Professor of Neurology at the University of Chicago

Avertano Noronha, MD, provides skilled care for patients with neurological conditions. He has particular interests in the treatment of multiple sclerosis (MS), autoimmune diseases, inherited neurological conditions, neurological complications of pregnancy, and neurological problems associated with medical disorders. He also provides expert second opinions for complex neurological disease.

Dr. Noronha is actively involved in teaching medical students, residents, and fellows. He lectures regularly on neuroimmunology and neurological diseases. He is also the creator and instructor of "Workings of the Human Brain," a neuroscience course at the University of Chicago.
Dr. Noronha often speaks at national and international conferences on multiple sclerosis and other topics in neurology. He is also an ad hoc reviewer for several scientific journals, including the New England Journal of Medicine, the Journal of Immunology, and Neurology.


To RSVP for this free educational event---

link to invite
Husband dx RRMS 3/07
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http://ccsviinms.blogspot.com
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It was wonderful!

Postby lifeisgood » Wed Mar 30, 2011 5:32 am

Last night was great. Thank you to all that organized it and all the doctors that came and talked. It was great to see and meet all of you and to hear first hand about the procedure and all of the info that was shared.

It was also wonderful to meet and talk to some of the many people that came who had already had the procedure. We were able to connect to hear their stories and it was in person....not cyberspace :)

My husband can't wait to have the procedure done. The doctors did make the point that things are changing day by day and how they treat CCSVI now is not how they will be doing it in a year. They are all learning at such a great pace and they said that perhaps for some people, it might be beneficial to keep watching from the sidelines and wait a bit before having it done. But when you talked to the people that had already had it...it made you want to schedule it right away!

The doctors also mentioned how hard it is to get funding for the trials they would like to do. MS Society isn't too gung-ho on it, drug companies have no interest either. So if anyone knows any multi-millionaires with MS or a MS connection and generous heart... send them to these doctors! It would move things even faster.

Definately well worth it! .......... but paying $50 to park was a bit painful!
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Postby cheerleader » Wed Mar 30, 2011 9:49 am

Life---thanks for posting. The Alliance was really sorry about the parking fee...that was simply highway robbery on the part of the hotel! But so glad that you got to meet Sharon and Debby from the Alliance and hear those wonderful doctors speak for free... I'll pass on your comment to the Alliance board...
Best of luck as you continue in your own search for answers for your husband. I'm with you on that,
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Postby Leonard » Thu Mar 31, 2011 4:17 am

From the 36th Annual Scientific Meeting in Chicago, Ill:
Interventional Radiologists Advance MS Research: Vein-opening
Treatment Safe
http://www.sirweb.org/news/newsPDF/3_MS_final.pdf
Quote from the press release:
SIR stresses the importance for MS patients to continue an ongoing dialogue with their neurologists to discuss their treatment care. unquote
This is all very nice but what if the dialogue is cut off by the neurologist? what if you can not find a neurologist in your country who is open to discuss?
This shows the huge systemic problem, it's a problem of cultural preparation.
Governments should help here, not to solve the medical issues as such, but to facilitate a truly multidisciplinary collaboration, to avoid that energies are spent on abstruse debates of identity and status, to ensure the interests of the patients prevail at all times.
Incidently, this should involve the endocrinologists/micro-cellular specialists as well. see http://www.thisisms.com/ftopict-15188.html
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Postby cheerleader » Thu Mar 31, 2011 10:05 am

The Alliance has taped this round table conference, and it is currently being edited for future hosting on our site, www.ccsvi.org

Many new relationships were forged, many interested doctors (including neurologists) attended and were intrigued and excited by the scientific discussion. Thousands of IRs heard discussion and presentation of CCSVI angioplasty as a potential treatment for MS symptoms at the SIR conference, where CCSVI Alliance hosted a table---there will be many more conferences and discussions in the US and around the world in the next year. Dr. Zamboni is in Australia this week.
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parking

Postby Icechick » Fri Apr 08, 2011 5:46 pm

Being from this area, I am ashamed to say the high parking rates aren't just the hotels, it's the City of Chicago. Parking fees and taxes are outrageous.
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