MS experts in Britain have to open their minds - Telegraph

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: MS is of unknown cause

Postby EJC » Thu Mar 10, 2011 12:20 pm

MarkW wrote:
MarkW replies:
I do not know what Prof Zamboni was thinking when he made this recommendation. For me the logic of staying with DMT/CRAB drugs is this:
1 - MS may be a combination of vascular and immune system problems, so we may need to treat both. An unknown at this time.
2 - Stopping a drug which is helping the patient is considered risky by medics, pharmacists etc.

The most compelling reason to continue everything as before procedure is continuity.

Not so much continuity of drugs etc but to monitor improvements/regression with a known datum.

If you have the procedure then stop taking the drugs you've been on for X number of years - how can you attribute any changes (good or bad) to what's been undertaken.
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Managing Change is Complex

Postby MarkW » Thu Mar 10, 2011 12:26 pm

Thanks Leonard for your congrats.
You comment:
The developments are revolutionary and may go a lot further than MS; the impact will be huge and lead to changes as we have never seen before in the entire history of the medicine. Given the major forces that will no doubt surround such disruptive course, there is a good chance that we will see a complete stagnation of the health system in many countries.

MarkW adds:
If CCSVI syndrome is found in other neurological diseases it will be revolutionary and I agree with you, it could lead to stagnation. This is part of my logic in saying that CCSVI is a syndrome in pwMS and should be treated as such. The whole story could take a decade to be researched, too long to wait for pwMS.

Question: How do you eat an elephant ?
Answer: One mouthful at a time.

Mark Walker - Oxfordshire, England. Retired Pharmacist. 16 years of study about MS.
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