This Is MS Multiple Sclerosis Community: Knowledge & Support

I don't know what you think of as seeming decent, but I have seen a lot of what I would call indecent behaviour around this issue and some even here, of all places. Especially around the dead and dying.

Self doubt is usually a tricky one. (worked for Descartes, but we can't all be that smart) I go by the old ye will know them by their fruit. Doesn't always work, but you can't have everything.


No, I don't. I think ego (some of very powerful men, some of decorated men who have past their prime thinking years) has a lot to do with it. So does money.



Thinking does not make a thing true, and neither does popularity. Hitler was a very popular guy for a while there.



They don't defend it because they think it needs them, or because they think if they didn't it would suddenly become untrue.

If anyone defends anything staunchly it is because of a few people who persistently needle them into it. The best offense is a good defense. And because money can effectively bury something. My friend died in 1972 of 'MS'. Doctors have been suspicious of some of the dogma of 'MS' since way before that, but the average patient/loved one group seldom questioned doctors because they were their only hope, and not a very high hope at that. The Internet has changed all that. They call them social networks but I believe humanity for good or ill operates quite differently than it did in 1972.

He might be alive today if he'd had the Internet.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Is that the same doctor in the 60 Minutes stem cell scam, Dr. Morales, that is also offering CCSVI treatment in Mexico?

http://ezinearticles.com/?CCSVI---The-C ... id=5813776

A swift and dignified statement from Essential Health Clinic after the BBC accusations...

http://www.essentialhealthclinic.com/website/images/EHC-statement.pdf

Thanks EJC for providing the link of compalins to the bbc http://www.bbc.co.uk/complaints/

Here another link where one can express the views especifically on the 'Inside Out West' programme on CCSVI. There are 33 comments so far...

http://www.bbc.co.uk/dna/mbpointsofview ... ad=8108628

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Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.

..

I don't know. But if it is, I predict he will give people treatments but only for a very much larger sum than is being charged for it anywhere else.

I'm no judge but he looked and sounded to me like a white American. I had the impression, possibly wrong, that he was operating in the US.

They said he took the money and ran.

One thing I remember was the IV in the thumb (ugh). I think they showed that he had faked all his 'degrees', and claimed to have attended a school that never heard of him. If this guy is doing CCSVI procedures, he is a crook, to be avoided. I find it hard to fathom, but there you are. The CCSVI doctors in the US I have heard about range from the very good and competent to icons in their field.

Like the Italian guy said in that video, just because it is safe in the right hands does not mean it is easy. If anyone thinks they can get it cheaply, they are wrong. The benefit over cost is astronomical, though, compared to things like interferons.

This is being done all over the US. It is not clandestine or illegal in any way. Why would anybody think they had to go to Mexico to get it? There are enablers who act like travel agents in the sense that they will handle all the details, for a price. They are not scamming dying people, as far as I know. They are making things convenient for those who can afford them. I can't.

I thought at one time about teaming up with them to try to help those who are dying of 'MS', and use fund-raising to get the money. It would not work because for one thing I have no experience, and for another I believe the cost would be too high to ask people to donate. To their credit, they were prepared to let me try.

Many, if not most, US CCSVI procedure providers are doing it as part of clinical testing. The information about these patients is being collected in repositories.

Canadians are a different story. Because of efforts like Rose's and the neurologists', people do have to get this procedure away from home.

I would say, do your homework about the doctor(s) and facilities beforehand, and make double sure, even book an appointment, to get after-care done at home. Maybe somebody like CCSVI Alliance should make up a set of recommendations, if they haven't already, to help people in the US. I don't know if there is such a thing in Canada for those seeking treatment elsewhere, but you could try MSLiberation.ca

p.s. checking further, I found: http://www.stemcellpioneers.com/showthread.php?t=3056

an update: the 60 Minutes guy was Frank Morales. The CCSVI doctor works in a hospital and is Dr. Daniel Morales. He is a neurosurgeon.

But it does seem that too many $ are being made doing the Procedure for all of them to know how so quickly. They are now advertising everywhere. Buyer beware!

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

bump: see update above

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

me again. I just received this:

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This was in response to a posting which was an exact copy of the one you can see from me, elsewhere on this thread, about the BBC show.

I have removed what I expect were the offending names from this forum.

I had noted a lot of people were complaining about their postings being deleted. Now I know why. In future, I would ask that moderators here delete anything from me that they see as defamatory, or if expedient, delete the entire posting. I will endeavor not to repeat this.

I will now re-submit, if they are still accepting submissions.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience