CCSVIhusband wrote:I hope this doesn't get taken the wrong way - no, more than that, I hope this isn't the wrong place to pose this question (because I don't think there's anything wrong with the question) ... I don't intend it to be so - but I think SoapDiva's comments brought the thoughts on to me.
A Thrombosis ... is basically a scab right? A clot that forms a scab?
Normally the body has ways to deal with these clots (it happens when you bruise deeply, etc) ... and I hear about athletes (Tommy Frazier comes to mind) as someone who get clots in their legs, but they are able to get them taken care of.
So, when you say thrombosis, what does that mean exactly? Does that mean occlusion? Because you mention ballooning still, but not being able to break the thrombosis.
And how long does it take for a thrombosis to be come permanent? Like a scab it should heal right? Or does it become an occlusion? I'm confused.
Thank you everyone for the well wishes and words of encouragement.
CCSVIHusband: I believe thrombosis to mean there is a clot blocking the way for the IVUS and the catheter to get through. He said he could not break it up or get through it. Just kept going through the vein one way or the other. It was the side that was ballooned in Nov. so the thrombosis occurred after at some point.
John was on Arixtra for 20 days after the first procedure and is again this time. There was mention of follow up U/S sooner this time (20 days) because John could have some clotting issues we don't know about that his body just does naturally.
The ballooning I mention was the other side that was not thrombosed. There was a vein in the LONG neck area that actually had TWO valves instead of one that had abnormalities. Dr. Sclafani thought John must have been an athlete with the large and long veins. Nope, not an athlete.
John did not sleep well, but seems to be in pretty good spirits this morning. We are going to venture out to sight see. I will drive of course. He did alot of icing of the neck last night which seemed to help alot. Have a good day everyone.
Boyfriend dx'd 6-6-06!!! RRMS............CCSVI procedure done on Nov. 13, 2010 and March 7, 2011 by Dr. Sclafani!