The fact that having the procedure and if 1vein closes up that is 1 vein too many.
We are in agreement on this. I sometimes feel like Chicken Little, I am more panicky about clots than most around here, but I've seen outcomes of people who do lose veins. I don't want it happening to anyone.
Cece, to set the record straight, I did say I had a clot and it was in my stent. The other veins had NO clots. But my veins are now closed from scarring. Nothing to do with blood clots.
Scarring is the word for the end result after a blood clot has reorganized and become part of the wall of the vein. (It's like the vein scabbed over with the clot, then the scab dissolves and the scar is left. The scabbing or clotting in the first place is a result of the injury to the vein when it is ballooned.)
Scarring as a result of clotting can happen to anyone, but hypercoaguability makes it more likely. To have all three veins gone...it's a terrible outcome.
What about the ones that do not get improvements and got worse, and do not try another procedure? They will not know what condition their veins are in.
I agree, the message needs to get out to this group too. Follow-up doppler ultrasounds -- they dont' have to be full ccsvi ultrasounds, just a quick check of the valve area of the neck for clotting -- need to be done while patients are still within the window of time that clotting can be treated. By three months, a clot may be permanent. They may be most common immediately after the procedure.
I'll be going in for a follow-up ultrasound shortly too.
My point is that with some people when they restenoses (and about 50% do) The stenosis is more than what was originally.
I think you make an important point - people assume that restenosis is just a return to what it was before, they don't realize it can be even worse than it started.
I hate coming off as confrontational, dania, we need to hear your experiences here, they are valid and they are cautionary and I wish you all the best in turning this around.