supporters of Bill Peart

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

supporters of Bill Peart

Postby Cece » Mon Mar 14, 2011 7:46 pm

http://tinyurl.com/4fjy8zb

Bill Peart was just denied by Nova Scotia Health Minister Maureen MacDonald after asking for a compassionate exemption so that he could have CCSVI treatment in Canada.

His declining health may prevent him from travelling to New York state for treatment next month.

We've heard this same story, where the friends and family make a tremendous effort and get their loved one to treatment despite the difficulties and expense. We've also heard this same story, where the patient does everything within his means to get CCSVI treatment but MS wins out.

People have died on the waitlists. People with names, lives, and loved ones.

I can't listen to these stories without getting tied up in knots. Other procedures are available on a self-paying basis in Canada. Out of compassion alone, this should be available too, so that ill people do not have to travel if they choose that CCSVI treatment is right for them.
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Postby thornyrose76 » Mon Mar 14, 2011 7:49 pm

What's going on with the class action lawuit(s)?
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Postby thornyrose76 » Mon Mar 14, 2011 7:49 pm

Human rights complaint?
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Postby prairiegirl » Sat Mar 19, 2011 10:10 am

Bill's wife Donna posted the sad news (CCSVI Toronto Facebook page) that Bill passed away early this morning. My heartfelt condolences to the family.
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Postby thornyrose76 » Sat Mar 19, 2011 12:42 pm

My condolences to his wife and family. I am so very sorry. It's disgraceful and horrible how Canada is handling the issue of CCSVI.
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Postby Cece » Sat Mar 19, 2011 1:07 pm

Terrible news. My condolences to the family.
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Postby 1eye » Sat Mar 19, 2011 4:08 pm

My condolences to his family and friends.

Part of grief is anger. I have made a tiny bit of progress at managing mine, but news like this makes it flare up. It's a terrible inhumanity.

The politicians who have bowed to pressure from Canadian neurologists and other angry doctors should all hang their heads in shame. The newspaper story will go down in history along with Bill Peart's name, to show the depths these people drag their constituents to.

Vote to get Dr. Duncan into Canadian Government.

http://www.thisisms.com/ftopict-15858.html

P.S. If anyone shares this anger thing with me:
http://www.apa.org/topics/anger/
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby Blaze » Sat Mar 19, 2011 4:09 pm

I'm so sad for Bill and his family and so angry for the rest of us. I sincerely hope Bill didn't die in vain and that this will wake some people up. I suspect, however, that is simply wishful thinking on my part and that little will change.

Blessings to Bill's wife and family. Please know that the hearts of 75,000 Canadians are with you in your loss.
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Postby Trish317 » Sat Mar 19, 2011 5:16 pm

My thoughts and prayers are with his family.
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Postby Cece » Sun Mar 20, 2011 10:19 pm

Looking for liberation


Donna Peart was surrounded by family and friends during a benefit this past weekend for her husband Bill. Bill will be traveling to New York in April for MS liberation therapy which he hopes will relieve his symptoms from this neurological disease....

Published on February 27, 2011

NEW GLASGOW – Bill and Donna Peart are counting down the days until April 12.

It’s not because spring will be just around the corner, but because it’s the day Bill hopes to be liberated from his multiple sclerosis symptoms.

“Bill has had MS for over 15 years,” said his wife Donna during a benefit for the couple Saturday at the Northend Recreation Centre. “I heard about the liberation treatment on the news so I called up Yvonne Andersen and asked her how she had done it.”

Anderson, who is from the Pugwash area, recently traveled to Albany, New York for the therapy that breaks through out blockages on the side of person’s neck. MS patients who had it done say their symptoms are relieved almost immediately after having the procedure done.

“She gave me all the information that she had and I called Albany for Bill,” said Donna.

At the time she called, New York doctors were backlogged and booking appointments for July, she said, adding they had told her they had a lot of Canadians waiting to be liberated from their MS.

“I told him I didn’t know if Bill would be around in July so they gave a March date,” she said.

However, Bill’s MS symptoms have progressed significantly this month and he has been in the hospital for the past two weeks because of numbness on one side of his body. Physicians in New York agreed to move his appointment to April 12 so the Pearts can find out which is the best and most comfortable way to get Bill to the United States.

Other obstacles are the costs involved with the therapy, Donna said. She recently wired $9,000 to the hospital for his short stay and the procedure will cost about another $3,000.

Donna said Bill, who is 56 years old, has been unable to work lately at his job as a teacher at Northumberland Regional High School because of his symptoms and she had to retire in October from her job at Michelin to help take care of him.

“I am hoping we can raise quite a bit,” she said. “Bill is still hoping he will be able to get back to work. When you have no hope you have nothing.”

Hope is what brought family and friends together in large numbers this past weekend in support of the Pearts. Many people attended an afternoon gospel concert and evening dance at the recreation centre.

There was nothing but praise for Bill, who fellow co-worker Maureen Murphy says is a “teddy bear”.

“Everybody that knows him, loves him,” she said. “Bill is a big man, about six foot, two, but he is so gentle and so kind and he is wonderful with the students.”

Murphy said donations can dropped off at Northumberland Regional High School in Bill’s name.


http://www.ngnews.ca/News/Local/2011-02 ... beration/1

I copied the article in full.
Bill was 56 years old. A teacher and a husband.
This article was from two weeks before his death from MS. It is a tragedy that this man did not get the chance to have CCSVI treatment that he wanted. You can read in the article, Albany moved him up on the waitlist because of his condition, that is admirable, I only wish it had been enough.
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Postby bluesky63 » Mon Mar 21, 2011 3:11 am

I am so, so sad to read this. I just don't understand how *anyone* can justify this. My heart goes out to his family, friends, students, and community.

While people bat theories back and forth as though they were a game, treating multiple sclerosis has a point -- to save actual human beings. For every person who comes to our attention, there are countless more who never come to such a spotlight, who have inadequate support, resources, information. These images haunt me.

"Heartbreaking" can be overused, and yet what other word is so appropriate?
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Postby PCakes » Mon Mar 21, 2011 8:35 am

Each and every day in Canada unapproved measures are taken to save a life. I am sure of, and have witnessed this.
I am so so very sorry for this man and his family.

If the neuro'logic'al community is in fact watching, per MarkW's words, embrace your good fortune and please unlock the doors.
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Postby erinc14 » Mon Mar 21, 2011 8:54 am

this is so shokingly bizarre it takes my breath away .
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Postby Cece » Mon Mar 21, 2011 10:23 pm

Last spring we had a patient who had posted in Dr. Sclafani's thread, not long after he stopped being able to do procedures at the hospital, who passed away before being able to have the procedure. She had been pursuing it for months. It was hard back then, there was not the availability that there is now. Then in June, we had Barb Farrell, who had signed a do-not-resuscitate order, because she had been deteriorating rapidly. She was able to get treated for CCSVI.

At the ISET meeting in January, Dr. Sclafani said he was alone or in the distinct minority among other doctors for saying that he would do the procedure on a patient deteriorating like that or with a very high EDSS score.
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Postby 1eye » Tue Mar 22, 2011 8:06 pm

Don't forget Dr. Duncan's cousin (see speech). I think there are bound to be other examples, out of 12000.

Like me; it seems a great coincidence that in spite of no remissions for years, and being told my neurologist, who had never seen me in a wheelchair before, that I should definitely stay in it, I have been using my walker again for months, and only use the chair on rare occasions. I call it a remission. If you disagree that makes less than zero difference to me.

I don't believe in coincidences. I think the proof of this science is exactly in the ability to help those for whom there is no other help. I could not take any DMDs (not by my own choice). Mitoxantrone did nothing but make my heart fail. There is absolutely no justifiable reason not to try to rescue the dying. To do otherwise is cruel, inhuman and criminal. Yes, it boggles the mind. It also turns the stomach. Hippocrates would have called the police.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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