Hopefully Cece re-finds this ... I know we're having an ongoing discussion that nobody else can follow across about 7 threads.
But my wife made an interesting comment to me last night ... and it semi-relates to this.
Though the conversation was a bit longer than this ... I'll give you the general highlights (won't bore you with discussion of our cats being bad, or the news, or Seinfeld - because the conversation drifted in and out between each of those)
We were laying in bed probably about 10:30 ... and she kind of looked over at me and said "I can feel my blood flowing in my neck."
I asked her what she meant by that.
She said, "well, I can feel where the blood pumps in my neck, when I lay down. I can feel where it was ballooned, and the blood flows past it ... kind of like when you get done running or lifting and your blood is really pumping and you can 'feel it'. Have you heard of this before?"
I said "no ... but it doesn't surprise me. The balloons do a lot of damage to the veins, so I'd imagine there's still injury to them and you SHOULD feel it, but what exactly do you mean?"
She said, "well, I can feel it (she pointed to where on both sides of her neck) ... and said, I can feel it like being sucked down into my chest."
I said "I THINK that's a good thing. That means there's flow, and like I've told you, when you lay down, all of a sudden your nose and extremities get warm and your color gets so much better ... so I'm not surprised your flow is better when laying down, after your jugulars are opened up."
Has anyone else had this feeling?
I just thought it was really interesting she could feel it ... and that her hands/nose continue to warm almost immediately after laying down and letting her jugulars open.
On the note about the disclaimer Cece ... yes, I know.
... I suspect a lot of doctors will be proving it in time ... I just like doing some of my own research and musing and trying to tie things together.
Regarding the azygous ... I think as we go along, we're going to see it's so VERY critical in the whole realm of CCSVI. I'm convinced it's still under-diagnosed (even by the best of the doctors). I think that's going to be the vein that gets the most results too for people. I say this with a lot of anecdotal stories, but also with a lot of reaching out to people privately and discussing results, techniques, etc - both patients and doctors. I think/hope for Loobie he'll have something there ... and I DON'T think it all necessarily ties to leg issues as some would have you believe. I think it will prove to be more than that ... as suffocating the spine (by deoxygenation resulting from poor flow) which ties in to the brain will give results of things like fatigue, and many others (I'd speculate even vision, etc - especially l'hermittes) will be reduced by improving the azygous.
I think Dr. McGuckin is on to something with the other veins ... I think if CCSVIers (formerly MSers) have issues in a few main veins, why would it just stop there? Wouldn't vein development across the board be impacted (again, speculation - which I'd tie to Vitamin D deficiency - I fully admit there is something to Vitamin D deficiency ... what with the regions CCSVI is more common to, the whole Middle East/burqa and development of MS/CCSVI there ... the births of babies in late spring/early summer being more prone to MS) it's only logical ... but those veins aren't as "critical" to the spine/brain - and I don't want to stray from CCSVI into other areas as much either (it's critical we get the initial part down before we expand, and give "skeptics" something new to latch on to). The IVC I've speculated about before. I think we'll have answers soon ... the hemi-azygous hasn't got much publicity, but I've heard of treatment here before as well in my conversations and dealings.
Anyway ... very interesting stuff, and days ahead.
This IS CCSVI