Continuation of Zivadinov/Zamboni study thread---press

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Continuation of Zivadinov/Zamboni study thread---press

Post by cheerleader »

Continuation of Zivadinov/Zamboni study--since the other thread was locked. Which is really too bad, because this all belongs together (please reconsider, Jimmy?)

There has been much press in Italy today on the study---all of the regional and national papers and online medical sites had articles like this one in
Il Corriere

google translate


A CONFERENCE ON DISEASE IN BOLOGNA NEUROVASCULAR
Multiple sclerosis, a U.S. study
confirms the hypothesis of Zamboni
The research, conducted with the University of Buffalo, highlights a relationship between the narrowing of the jugular veins (Ccsvi) and multiple sclerosis

The narrowing of the jugular veins known as Ccsvi causes a slowing of blood flow in the brain that might underlie the symptoms of multiple sclerosis. , According to a preliminary study published in the journal BMC Medicine, which seems to confirm the theories of the Italian doctor Paolo Zamboni. This and other research will be discussed at the annual meeting of the International Society for Neurovascular Disease, ongoing until tomorrow in Bologna with the participation of over 400 researchers from around the world.

The study, conducted in collaboration with the University of Buffalo, has revealed that due to the obstruction of venous typical Ccsvi reduces cerebral blood flow: the 24 subjects examined in this pilot study, 18 were overlapping and Ccsvi sclerosis multiple, and they were young Italians and Americans with an average age under 40 years. "This result - says Zamboni - clearly indicates that the phenomenon of degeneration of the axon (the central component of the nerve), which is ultimately the event that leads to disability, is negatively affected by the malfunction of the veins that occurs in Ccsvi course. " The first act of the meeting was the approval by a consensus conference attended by 40 experts from the International Society for Neurovascular Disease and seven other major national and international companies, practical guidelines for the investigation screening Ccsvi: "This share - Zamboni said in a statement - will soon lead to an improvement in scientific publications, so enriched by the experiences that have since been gained in various centers in the world."

http://www.medicinalive.com/neurologia/ ... csvi-cura/

Multiple Sclerosis and Ccsvi: new confirmation and hope for a cure
Cynthia Iannacci in Neurology .

A new study just published in the journal BMC Medicine seems to confirm the relationship between the onset of multiple sclerosis and Ccsvi ( venous insufficiency Cerebro-Spinal Chronic), which is a malformation characterized by narrowing of the jugular veins that lead to a reduction in flow blood to the brain, responsible for the symptoms of multiple sclerosis itself. The scientific work was made ​​possible thanks to the collaboration between the department of neurology and neuroimaging of the 'University of New York based in Buffalo, whose director is Professor Robert Zivadinov, the center for vascular diseases' s University of Ferrara directly Paolo Zamboni, and the "Good 'of the Bellaria Hospital in Bologna, directed by Fabrizio Salvi.

The data confirm the hypothesis of scientific Zamboni: in 75% of the cases studied, was identified by presence of the two diseases .
In particular the research has looked at 24 patients younger than 40 years, 18 of whom had a match between Ccsvi and Multiple Sclerosis.
"A further given that clearly shows how the degeneration of the axon (the central component of the nerve), a phenomenon that leads to disability, is negatively affected by the malfunction of the veins that occurs in the course of Ccsvi"

Zamboni said, among the first in the world to this hypothesis and found that time is fighting for recognition of their scientific work. Surgery, which aims to widen the veins may in fact be the solution, care malts that many expect. Also recently Nicoletta Mantovani , suffering from multiple sclerosis for years decided to undergo surgery through a method known Zamboni. (note from Cheer--Nicoletta Mantovani is Luciano Pavarotti's widow, the head of the Italian CCSVI Association, and a very vocal advocate.)

Of all the things we discussed during the annual conference of the International Society for Neurovascular Disorders being held in Bologna, during which they were recognized as official guidelines for the investigation of screening for Ccsvi. Zamboni concludes:
"This share will soon lead to an improvement in scientific publications, so enriched by the experiences that have since been gained in various centers worldwide."
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Post by Drury »

Thank you so much Cheer!!!!
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Post by cheerleader »

Also worth noting that the participants in this study who were found to have CCSVI were young...all under 40.

I hope Dr. Zamboni addresses the whole false neurological claim that CCSVI is related to disease progression and aging, because it just doesn't match what he and Dr. Zivadinov saw in this study.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Post by Sotiris »

If the reports are commenting on the same study, which seems to be the case, the second report is very bad since it considers the healthy subjects as patients and it considers that all patients were less than 40 years old when the truth is that their mean age was less than 40 years.
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Post by MSBOB »

I don't care about the design of the study. I only wish to point out that the language is wacky. Scientists don't confirm hypotheses, per se.

Wiki

Karl Popper's formulation of hypothetico-deductive method, which he called the method of "conjectures and refutations", demands falsifiable hypotheses, framed in such a manner that the scientific community can prove them false (usually by observation). According to this view, a hypothesis cannot be "confirmed", because there is always the possibility that a future experiment will show that it is false. Hence, failing to falsify a hypothesis does not prove that hypothesis: it remains provisional. However, a hypothesis that has been rigorously tested and not falsified can form a reasonable basis for action, i.e., we can act as if it were true, until such time as it is falsified. Just because we've never observed rain falling upward, doesn't mean that we never will—however improbable, our theory of gravity may be falsified some day.

http://en.wikipedia.org/wiki/Hypothesis ... hypothesis
Last edited by MSBOB on Wed Mar 16, 2011 12:50 am, edited 2 times in total.
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Post by MSBOB »

It is critical not to compromise patient safety during
the conduct of these research endeavors. Anecdotal reports
have indicated that endovascular procedures including
placement of stents in the IJV have been carried out in MS
patients as a clinical treatment procedure, and in some
cases have led to serious injury. Potentially fatal outcomes
including migration of the venous stent into the heart and
perforation of the ascending aorta are uncommon but
known complications of venous stent insertions.

Any invasive endovascular procedures including angioplasty and
venous stent placement should be discouraged until there is
conclusive evidence to justify their indication in MS.
http://www.hopkinsmedicine.org/bin/o/y/ ... ciency.pdf
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Post by MSBOB »

I have been cured to 100% at least 7 times.

First I was cured by doing nothing. (lasted close to a year)
Second I was cured by smoking cigarettes (lasted close to a year)
Third I was cured by doing nothing again (lasted close to a year)
Fourth I was cured by doing nothing again (lasted close to a year)
Fifth I was cured by exercise (highly recommended, lasted close to a year)
Sixth I was cured by smoking cigarettes (lasted close to a year)
Last I wasn't so much cured and went to a doctor.

My favorite cure was smoking cigarettes. It made me feel the best. Not recommended until further studies are done.
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Post by jimmylegs »

bob welcome to TIMS, i know you are new, so i'll just bring the rules of the board to your attention, and this one in particular

http://www.thisisms.com/ftopicp-1639.html#1639
"If you disagree with someone, please succintly state why and let it go at that. Point, counterpoint, counter-counter point, etc. is not useful-- the reality is that after the first disagreement, you will rarely convince another of something they feel strongly about unless you have shocking new information to share. The drawn-out debates also turn people off from reading the messages in the first place."

i don't imagine the argument is stale for you yet, but it is for everyone else. please let your comments focus specifically on the research posted as opposed to being sarcastic. thanks much!
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Post by MSBOB »

Jimmylegs,

You are absolutely right. I am new here and mad. I feel disappointed and in TIMS and its sponsers.

CCSVI- MS Liberation
MS Liberation abroad today. No wait Experience, Quality. Contact Us.
worldmedassist.com

Liberation Surgery 4 Less
Specialists State of Art Hospital Direct Flight from Houston Daily
healthstarmedicaltourism

CCSVI Liberation Romania
Zamboni Protocol,2011 Available Package Price 6000 Euro Incl.Flight
ccsviromania.com

New MS Treatment
Improve your quality of life with our innovative stem cell therapy!
xcell-center.com/MultipleSclerosis

I will not contribute anymore. My experience given is authentic, albeit sarcastic, and I can't help anyone.

I quit.
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Post by jimmylegs »

hi bob, i hear you, but it's just google ads. you can turn them off. they feed in automatically based on members' activity. if we were all talking about baseball, all our 'sponsorship' would be sporting goods suppliers.

formyruca, please explain why you felt the need to make that comment and whether you think it contributes to a collaborative spirit here at TIMS.
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Post by Motiak »

MSBOB wrote:Jimmylegs,

You are absolutely right. I am new here and mad. I feel disappointed and in TIMS and its sponsers.

CCSVI- MS Liberation
MS Liberation abroad today. No wait Experience, Quality. Contact Us.
worldmedassist.com

Liberation Surgery 4 Less
Specialists State of Art Hospital Direct Flight from Houston Daily
healthstarmedicaltourism

CCSVI Liberation Romania
Zamboni Protocol,2011 Available Package Price 6000 Euro Incl.Flight
ccsviromania.com

New MS Treatment
Improve your quality of life with our innovative stem cell therapy!
xcell-center.com/MultipleSclerosis

I will not contribute anymore. My experience given is authentic, albeit sarcastic, and I can't help anyone.

I quit.
They're google ads. TIMs has nothing to do with what shows up there, google does.

Jimmylegs beat me to it.
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Re: ThisIsMS and Ads

Post by NHE »

MSBOB wrote:You are absolutely right. I am new here and mad. I feel disappointed and in TIMS and its sponsers.
ThisIsMS is a volunteer effort. http://www.thisisms.com/faq-1-.html#3 The Google ads help to pay for hosting the site and its bandwidth.

NHE
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Post by ikulo »

Mods - thanks for doin' what you do.
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Post by jimmylegs »

thx for the nod, ikulo :)
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Post by scorpion »

jimmylegs wrote:hi bob, i hear you, but it's just google ads. you can turn them off. they feed in automatically based on members' activity. if we were all talking about baseball, all our 'sponsorship' would be sporting goods suppliers.

formyruca, please explain why you felt the need to make that comment and whether you think it contributes to a collaborative spirit here at TIMS.
So if we all started putted the word sex in our posts does that mean we could spice up the ads??? Maybe something like" Zamboni's research(sex) points towards (sex) the involvement of CCSVI in(sex)... Well you get the idea! :oops:
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