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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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squiffy2
PostPosted: Wed Mar 16, 2011 7:15 am 
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Many of the issues which are still open on the relationship between CCSVI and MS found an answer at the ISNVD (International Society for Neurovascular Disease) Annual Meeting. The Society, chaired by Prof. Paolo Zamboni, held its meeting in Bologna (Italy) on March 14-15, 2011 under the High Patronage of the President of the Italian Republic.

The Meeting – attended by registered physicians, researchers and accredited journalists – was preceded by a preliminary meeting of the International Scientific Committee on Sunday March 13. It was organized in the form of a Consensus Conference with the purpose of defining minimum starting points in the approach to the investigated diseases.... Read More - http://www.msrc.co.uk/index.cfm/fuseact ... ageid/2954

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PointsNorth
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PostPosted: Wed Mar 16, 2011 10:06 am 
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A nice summary of findings. I will take to my neurologist next week.

PN
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MrSuccess
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PostPosted: Wed Mar 16, 2011 3:04 pm 
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points - I would like to discourage you from bringing any reports or papers supporting your interest in CCSVI ...... with you when you visit your doctor ....... as ........ they HATE this .

I suggest instead ...... that you MAIL them some brief and concise CCSVI information ...... well in advance ..... of your appointment .

I would do this anonymously if possible .

Doctors often have huge ego's ....... as does Mr. Success :wink: ..... and the key to success is often letting someone think it was THEIR idea. :idea:

If you do this ..... don't be surprised if your doctor suddenly offers you hope in a new idea he is investigating ..... :roll: :roll: :wink: :wink:

just plant the seed ......... the tiny seed .........



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AlmostClever
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PostPosted: Wed Mar 16, 2011 4:16 pm 
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I see Stanford presented their animal model. Any more info?

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Cece
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PostPosted: Wed Mar 16, 2011 5:41 pm 
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sou talked about the mouse model and other presentations here:
www.thisisms.com/ftopicp-157139.html#157139
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1eye
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PostPosted: Thu Mar 17, 2011 11:18 am 
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Quote:
the key to success is often letting someone think it was THEIR idea.

Definition I have heard:
Tact: the art of letting the other person have your way.

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drsclafani
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PostPosted: Thu Mar 17, 2011 3:18 pm 
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AlmostClever wrote:
I see Stanford presented their animal model. Any more info?


this won the best scientific paper award.

i was disappointed by it. it is a good first step though
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WeWillBeatMS
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PostPosted: Thu Mar 17, 2011 3:34 pm 
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That is really some good advice Mr. Success. When I just mentioned it to my neurologist some months ago he just rolled his eyes and said something about the internet junk.

WeWillBeatMS

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MrSuccess
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PostPosted: Thu Mar 17, 2011 10:18 pm 
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WWBMS - thanks . Too bad about the attitude ..... hang in there ..... like I said ..... a ONE page CCSVI good news letter .... sent anonymously .... prior to your visit ........ might lead to some good .....

practice your best '' Who me ? " ..... What's ZZF.. ME ? ..... blank innocent expression ..... :wink:

Hang tight ....... things are going in the right direction..........




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Cece
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PostPosted: Thu Mar 17, 2011 10:45 pm 
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This is interesting, here is Dr. Gilhooly's reflections on the ISNVD conference:

http://us1.campaign-archive1.com/?u=646 ... ca3fe91&e=

Quote:
The next ISNVD meeting is in Orlando Florida next year by which time I hope to have at least one completed paper to contribute. Both Paulo Zamboni and Prof Mark Haake asked if I would be involved in the committees of the society and it will be a great honour to do so. The overwhelming feeling at the conference was one of great excitement.


(much more through the link, which might not work, it has a ? in it and it is too late to tinyurl it...I try and get more sleep these days, since sleep actually works for me now...) :)
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MrSuccess
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PostPosted: Thu Mar 17, 2011 10:56 pm 
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this is absolutely amazing . what a great article by Dr. Gilhooly.

Thanks for posting it , Cece .





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MrSuccess
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PostPosted: Thu Mar 17, 2011 11:22 pm 
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from Dr. Gilhooly's report ...... final line .... I quote .....

'' ...... the feeling from both Katowice and Bologna is that this is now unstoppable "



I take no credit for reporting this ..... :wink:



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Cece
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PostPosted: Thu Mar 17, 2011 11:23 pm 
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Unstoppable! That one caught my attention too.

From Dr. Gilhooly's article:
Quote:
One of the most impressive studies presented was by American Neurologist David Hubbard an expert of functional MRI scanning. This advanced type of imaging shows clear differences in blood flow between healthy normal patients and those with CCSVI.


The differences in flow are improved following angioplasty providing an objective measure of improvement which is difficult to achieve with other methods.

Props to Dr. Hubbard!! I've liked the logic of his fMRI BOLD oxygen research from the beginning. Plus, anything that shows measureable objective changes is to the good!
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MrSuccess
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PostPosted: Fri Mar 18, 2011 9:00 am 
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read somewhere .... Dr. Hubbard's presentation at Bologna ..... that he tested 20 pwMS for cognitive function .... you know the drill ..... '' pencil'' .." wristwatch '' ..... '' rose '' ...... '' mouse '' ..........

AFTER all 20 pwMS were treated ...... they were able to MATCH .... the cognitive abilities of his healthy controls ......

This is significant ...... and cannot possibly be a placebo effect .

NOTE : These are cognitive improvements .... NOT ..... physical abilities.


I firmly believe that will follow ......




Mr.Success
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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