No Valves Now? Causing Trouble?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby CD » Thu Mar 24, 2011 5:10 pm

Jenny, are you on any anti-coagulants, shots or Aspirin? I found Warfarin or was it the Lovenox, I don't really know for sure, made me dizzy when I bent over to pick something up.

Then I blamed a new blood pressure medication. Since I am only on Aspirin now, I don't get positional dizziness. Could any of this be the case with you? Just thinking.
CD
User avatar
CD
Family Elder
 
Posts: 217
Joined: Sun Dec 19, 2010 4:00 pm
Location: USA

Postby griff » Sat Mar 26, 2011 7:09 am

Billmeik wrote:Im just trying to convince myself to get the valve otomy. In poland last year they found bad stenosis at the valve on one side.After ballooning twice it closed back up on the table,so they asked to put in a stent across the valve. This would effectively make the valve destroyed too. I said no.
Now I want to follow Bill Code's advice and go see arata.

what i would like is a stent with a mechanical valve. Dunno,it just seems like those valves need to be there for a reason.

I might just go for it. Sounds like it works great on the ms.


Hi Billmeik, I have the same concern about losing my valves. I talked to an IR (who is not involved directly in CCSVI) and he told me that time will tell what is the impact of destroying/leaving the valves permanently open as blood can flow at a higher speed to the heart this way. He thinks valves not only prevent reflux but also slow down the strong blood flow to the heart as gravity could be strong here.
If you go to Arata, he will open up the valves as far as I know.
User avatar
griff
Family Member
 
Posts: 95
Joined: Fri Mar 25, 2011 4:00 pm

Postby griff » Sat Mar 26, 2011 7:20 am

[quote
Lyon actually has an interesting thought above ... though neck veins still scare me to have a stent in, considering unless you're in a halo, you move your neck quite a bit (awake and sleeping).[/quote]

I talked to some decent IRs and a vascular surgeon who are involved in CCSVI operations and all of them told me that stents should be avoided. Just look at all the posts here with problems with valves, lots of clotting, scarring. It is not good. They use it most frequently in Poland, but they do not care about patients after the treatment, no monitoring just taking your money.
User avatar
griff
Family Member
 
Posts: 95
Joined: Fri Mar 25, 2011 4:00 pm

Postby eric593 » Sat Mar 26, 2011 9:28 am

griff wrote:Hi Billmeik, I have the same concern about losing my valves. I talked to an IR (who is not involved directly in CCSVI) and he told me that time will tell what is the impact of destroying/leaving the valves permanently open as blood can flow at a higher speed to the heart this way. He thinks valves not only prevent reflux but also slow down the strong blood flow to the heart as gravity could be strong here.
If you go to Arata, he will open up the valves as far as I know.


Would this happen? Wouldn't gravity only be a factor if the IJV's were involved in blood flow in upright as well in supine positions? If the vertebral veins take over the flow while upright and the IJV's collapse, gravity shouldn't be a factor in increasing blood flow unimpeded through IJV's without valves, right?
User avatar
eric593
Family Elder
 
Posts: 475
Joined: Sun Feb 17, 2008 4:00 pm

Previous

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service