MarkW wrote:I get pretty exasperated when I read that patients are allowing surgeons/IRs to undertake balloon venoplasty or stenting without having a full discussion of their cardio-vascular family history and knowing that a blood screen has been performed before de-stenosis is performed.
LR1234 wrote:I believe most of these clots are probably not due to clotting issues but to damage to the vessels. I have no clotting disorders and I have a totally clotted jugular (actually rather than clotted its now full of scar tissue)
I think just because you have no clotting disorder it does not mean you will not clot. (Even with blood thinners)
Johnnymac wrote:MarkW wrote:I get pretty exasperated when I read that patients are allowing surgeons/IRs to undertake balloon venoplasty or stenting without having a full discussion of their cardio-vascular family history and knowing that a blood screen has been performed before de-stenosis is performed.
What in the above posts could allow you to make this assumption? I can tell you that the pre-screening we have gone through was extensive, and includes blood testing before the procedure..in fact we were instructed to wait until we were within 30 days of the procedure to have the blood work done. I'd be willing to bet Diva and her husband were instructed the same.
Sorry if this response was in-appropriate but it felt like you were taking an unwarranted shot at me or Diva implying we aren't doing the right things for our spouses.
Johnnymac wrote:this is definitely a concern of mine as well with my wife scheduled for her 1st procedure the first week of May. Please keep us updated on what you guys experience.
e Arixtra does not seem to be the answer, so what now?
But, we are just wondering what is the future of CCSVI if a whole lot of people are going to form clots that impede the flow altogether in the jugs?
The question at hand also is do we just keep doing these procedures if John will just keep clotting off? How many blockages can you have before things are really not working as they should and your making it worse? When do stents play into this?
It is so discouraging when you go through all of this and then your told that you have little to no flow in a jug, considering you had more flow pre procedure. Albeit not the right kind of flow, but you had flow before hand.
Any thoughts? Thank you!
cheerleader wrote:We recommend blood coagulation tests prior to any procedures. These include d-dimer, SED rates, or INR.
cheerleader wrote:These include d-dimer, SED rates, or INR.
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